Let us know how it goes. That plan doesn't make a lot of sense to me though. If you do well on remicade, stay on remicade.
I had surgery personally. I exhausted the rx options, and now I live a completely different life, like a person who is not ill. I don't worry about
being immune suppressed. I never get sick. I don't spend money or time on doctors. I don't take medications. It's very risky though, surgery. You really have to be committed to accepting whatever comes. The majority of people do very well, but some don't. You never know what outcome you will have. I go to the bathroom more often, we all do after surgery. The colon is where fluids are absorbed, so we (j-pouchers) need to stay hydrated, and expect to go 4-8x a day. Some more, some less, but that's about
average. The process is pretty long, and grueling compared to other surgeries. I've seen people have heart surgery and heal faster. This is 2-3 steps over the course of months, with major changes to your body. it really tests you & your confidence. You live with an ostomy, it's such a huge shift, but when you live through it, it really gives you perspective on yourself. I am a lot stronger than I thought & i can accept myself even with an ostomy. I never thought I would feel that way, but I was okay with that. Reversal was exciting, but whatever it takes to have a quality of life that gives you happiness is most important.
Moderator: UCCurrently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish