Diet for ukcerative coltis

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Mathilde
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Date Joined Dec 2017
Total Posts : 2
   Posted 12/10/2017 6:24 AM (GMT -6)   
Just want to thank all of you for your helpful posts, but in particular Imagardener2 who has helped me enormously recording how diet got her into remission.

IamCurious
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Date Joined Jan 2010
Total Posts : 3216
   Posted 12/10/2017 8:30 AM (GMT -6)   
Just want to thank all of you for your helpful posts, but in particular Imagardener2 who has helped me enormously recording how diet got her into remission.

I agree. When first diagnosed I was in deep doo-doo because I was allergic to the milder mesalamines and I refused prednisone since I was pre-diabetic and afraid that pred would push me into full-blown diabetes. And I definitely did not not not want to escalate to immunosuppressants or biologics.

I had heard stories that sometimes people would experience spontaneous remission and that is why we no longer hear their stories on the forum. But there were a few, in particular imagardener2, who remained and posted that meds did very little for them but were able to attain remission thru diet.

Those stories were very encouraging and inspired me to find remission without taking meds. I have had only 2-3 short term flares in the past 7 years even though my first two initial flares starting in 2009 were as bad or worse than most flares that I have read on this forum. A recent colonoscopy showed that my colon was clean.

Diet modification can be very helpful for some of us and forums like this are one of the few ways to spread the word since most doctors don't have a clue. Diet can be important even if it allows one to remain on the milder meds rather than escalating to the very expensive and somewhat controversial “big guns”.
Male, born 1951, DX IBD Feb08. No meds, allergic to Mesalamine. Food diary instead of SCD or Paleo.
When needed VSL#3DS sprinkled over powdered psyllium seed is very helpful.

Lactobacillus Reuteri (NCIMB 30242), Culturelle, Saccharomyces boulardii.
Fish oil, curcumin, extra D3, magnesium, multivitamin, glutamine when gut repair needed.

Resistant Starch and lots of fruit & vegetables (but no cruciferous), No Gluten, no soda, no HFCS, no shellfish. No processed foods with maltodextrin, sorbitol, polysorbate80 or carrageenan. No GMO foods saturated with Roundup.
Nature created all of the locks, therefore Nature has all of the keys

Post Edited (IamCurious) : 12/10/2017 7:38:38 AM (GMT-7)


imagardener2
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Date Joined Jan 2010
Total Posts : 5775
   Posted 12/10/2017 12:49 PM (GMT -6)   
Mathilde

Thanks for your post but there are others who do the same including IAmCurious.
Diet continues to be my biggest asset against UC symptoms even though I continue taking Balsalazide as insurance.

Diet modification was very, very hard, completely changing the way I ate, monitoring how my gut reacted to individual foods/drinks. It took several years and multiple tries at "name" diets before figuring out what my gut tolerated and what it does not. But the choices I had left were biologic RX or surgery so I kept trying diet mod until it worked.

It's true, diet mod. will not work for everyone and no GI I've seen ever gives diet any credit for my improvement but I keep seeing mine so he will write out the RX once a year.

My gut still reacts when I knowingly eat/drink something off-list but it's predictable and controllable.
I hope you can get symptom improvement you feel confident in.

Spo307
Regular Member


Date Joined Jun 2015
Total Posts : 28
   Posted 12/11/2017 8:44 PM (GMT -6)   
What would be a good direction to start the diet I already have a food diary and follow it I do I drink alcohol or the spicy food so pretty much boiled chicken or grilled chicken with nothing on it and rice I have noticed some trigger foods that cause me problems such as frosted mini wheat’s and lately pretzels peanut butter is another one that just came in the problem binds me up with knife pain in the gut
47 yr old male
Diagnosed uc 2004 confined to sigmoid end
Lialda
Enimas
Predinsone

imagardener2
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Date Joined Jan 2010
Total Posts : 5775
   Posted 12/11/2017 10:59 PM (GMT -6)   
Food diary will be your best guide but you'll need to do lookbacks over days and weeks not minutes to spot trends. I don't feel it's an allergic reaction, more of a difficulty processing certain foods by a wounded gut.

Your reaction to both frosted mini wheats and pretzels and peanut butter: my gut hates fiber which both mini wheats and peanut butter have. Some people think "more fiber" helps but not for me. Well cooked spinach however is always beneficial, that's how weird my foodlist is (and uncorrelated to anything).

Good luck with your investigations with diet. If you don't see any improvement then you have those facts to rely on. If you do see improvement you can move forward.
Diet=gluten-free modified Paleo+potatoes+low dairy, low grain, no seafood (IBS),low fiber diet
In remission April 2010 after 10 years of UC after no remission ever
gluten-free =bleeding stopped, dairy-free (less IBS) started remission path+food diary
daily: Balsalazide 750mg and 2 Ginkgold tablet
rarely: VSL#3, mesalamine enema, Canasa supp, Citrucel

Mathilde
New Member


Date Joined Dec 2017
Total Posts : 2
   Posted 12/12/2017 6:05 PM (GMT -6)   
IamCurious your story is so amazing as well! I totally agree with the use of food diaries. I have learned from this forum that although everybody reacts differently to certain diets and food groups, a common healing thread can be detected!
I am going to read some of your old posts.

Imagardener2 you are such an inspiration and you give so much of your time to us all! Your diet shows several similarities to mine.

hunterm87
New Member


Date Joined Jan 2017
Total Posts : 8
   Posted 1/1/2018 3:32 PM (GMT -6)   
Kudos to Imagardener2 for staying engaged.

That is good reminder for myself to be more engaged. After I got I diagnosed with UC a number of years ago, I put it into full remission through a dietary approach. It was not easy nor pretty, but UC at this point is not a factor for me anymore.

Now, I understand that the dietary approach does not work for everyone, but it worked for me. I agree on the importance of a food journal. For me, the SCD diet, coupled with good bottled water and anti-fungal medication (prescribed by doctor) put me on the path to healing.
Diagnosed in 2004 - Ulcerative Colitis
Highly restrictive SCD Diet and later on Anti-fungal Diet (a variation of the SCD diet) since 2005
In remission since 2006
Added back (in moderation) favorite regular food
Take daily home made yogurt, Psyllium Powder (seed and husk), spring water instead of tap water

HJ123
New Member


Date Joined Jan 2018
Total Posts : 1
   Posted 1/2/2018 5:27 PM (GMT -6)   
Hey.. i’m new to all this
been recently diagnosed with uc
i’m 36.. currently on octasa 80mg 6 tans a day
2 iron tabs 1 lanzaprozole and a mesalamine enema at night
stated meds beginning of dec felt a lot better but for the past 4 days have started getting blood in poo again
i kno i need to adjust my diet but am so confused on what i actually can eat
i have kefir after every meal could that be a trigger
what about green tea?? and flaxseeds? are they any good
also what vitamins should i take into my diet

Uniform Charlie
Veteran Member


Date Joined Jul 2015
Total Posts : 727
   Posted 1/4/2018 12:30 PM (GMT -6)   
HJ123 said...
Hey.. i’m new to all this
been recently diagnosed with uc
i’m 36.. currently on octasa 80mg 6 tans a day
2 iron tabs 1 lanzaprozole and a mesalamine enema at night
stated meds beginning of dec felt a lot better but for the past 4 days have started getting blood in poo again
i kno i need to adjust my diet but am so confused on what i actually can eat
i have kefir after every meal could that be a trigger
what about green tea?? and flaxseeds? are they any good
also what vitamins should i take into my diet


Here is a very good article with an overview of current knowledge on diet and UC. It includes links to several studies if you would like to dig a bit deeper. I don't believe there is any one diet that is a silver bullet. When I was first diagnosed, I did the specific carbohydrate diet. It is a good starting point but may not be right for you. I am no longer doing the diet and have been feeling fine. I may return to it again. Actually, I am going to create a new thread since the article is very good.

See below:

/www.dietvsdisease.org/ulcerative-colitis-diet/
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