Help!!! Booked in for Colonoscopy Jan 9th, but need some opinions and assistance!

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sillyliquid
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Date Joined Dec 2017
Total Posts : 10
   Posted 12/13/2017 9:22 PM (GMT -7)   
Hi all,

Ive been reading this page/group for the past week and its all been very informative. To everyone whose posted, thankyou for sharing your stories.

Id like to tell you about mine, and also to get some assistance and opinions if possible.

about 3 years ago I felt as if I had a fissure or some sort of Haemmorhoid as I occasionally started bleeding, but nothign to worry about there, but what i did notice was these funny little lumps which started to get itchy when i sweat, or when i got hot, these little lumps almost felt like an extra hole ( sorry its a weird explanation) and gave off this bizarre odor when they wept. I have no idea what they are and they dont do it often but im sure they have something to do with the Haem family!

For the past 5 or so years, or however long I could remember, i havent eaten fantastic. Not to say ive had a bucketload of junk food, but I just ate what I wanted. During this time and for however long I could remember, I had hard stools. Some would be soft, but mostly hard.

Fast forward to June this year and I decided I wanted to lose weight. I went on to the Keto Diet which is basically Paleo. I held the diet together for about 3 weeks and lost 8kgs which was great, but i becaome constipated, then slowly but surely I begun my BM again. I have been on and off the diet until mid november which I decided I would stop as I thought this was the result of my diarrhea. BUT......

My stools got softer and softer, and within about 2 months I had started to pass blood as well. It wasnt streaky through the stool it was like a pocket of blood and then the stool. The softer the stool the less blood, and I had started taking metamucil to try and keep the stool soft which worked.

I basically was on and off the diet as it was very hard to maintain. And during from end of May to end of June I got sick twice and was on Amoxycillin for close to 2-3 weeks straight.

Since probably middle of August, my stools were basically mush and blood every now and then, and now, its basically liquid and the occasional formed stool, but i dare say its blood coming out as well every time i pass.

I do feel the need to go and do feel the diahorrea urges and when i need to go i have to go, but its probably a bit more controllable now, but still going to the toilet around 6 times a day.

I am very gassy as well and sometimes im on the toilet and only gas and spatter of blood come out, my guts feel like they are bubbling at times too.

I went to see the doctor on sunday and he recommended a Colonoscopy, and believes it possibly could be UC and Spurious diarrhea. So I am booked in for 9th Jan.

This is quite a while away still, and im so anxious about it because i hate needles.

My questions are:

Due to me having no pain really apart from my anxiousness and bloating/bubbling, being 33yo male does this sound like Colon Cancer?

How can I form up my stools? I do not want to keep spurting liquid I want my hard stools back!!!
?

Is there any way I could potentially slow down the blood for now?

What could I do for my diet? As of today I am not drinking and will try and eat as much fish as possible.

Is there any supplements I could take to help me get rid of these symptoms at all?

Sorry for the long winded story, this is the first time ive really said anything to anyone apart from the doctor.

DBwithUC
Veteran Member


Date Joined Feb 2011
Total Posts : 3982
   Posted 12/13/2017 9:50 PM (GMT -7)   
it is possible the paleo diet messed with you gut microbes and the abx messed with them even more. or it could be unrelated, and IBD just a coincidence

the scope is the only way to diagnose IBD and it can also diagnoise colon cancer.

you can eat anti-inflammatory foods and try anti-inflammatory supplements like tumeric.

a short fast might provide bowel rest and slow the blood. but that is not a sure thing.

not all IBD has pain. Some just dull cramping. You could have you primary order tests for c.diff. it could be c.diff instead of IBD, or in addition to IBD.

get iron levels checked to make sure you are not getting anemic.

good luck
11/08: ischemic colitis and scope perf colon. 12cm colon/ileocecal resected. IV antib:sepsis.
01/10: Dx: Mod. UC pancolitis. Rx: Lialda 3x.
02/11: Major flare w/antib:sinus. Rx: 40mg Pred taper. 6mp.
07/11: Histol remiss rt/trans; worse sigmoid. Rx: Rowasa & hydrocort
---
Curr: 1-2 soft-formed stool, no urgency: Lialda 2x, NO PRED, probiotics, Vit-D/C

sillyliquid
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 12/13/2017 9:54 PM (GMT -7)   
Sorry what is abx?
Ill try tumeric
I am starting to feel a bit tired so I will start taking some phero grad c or iron pills just to help out that side of things, but its probably my anxiety about it all that is making me tired and the lack of sleep.

Anything to help with my D though?

Thanks heaps!

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8095
   Posted 12/14/2017 4:47 AM (GMT -7)   
abx = Amoxycillin
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11281
   Posted 12/14/2017 6:53 AM (GMT -7)   
Blood in stool is a reason to investigate a possible Inflammatory Bowel Disorder (IBD) like an Ulcerative Colitis. It could be an UC, but then again it could be any number of other things.

You should have a stool test to check for possible pathogenic causes to your symptoms: infectious-colitis, clostridium difficile (c diff), among other things. If you have any of those things then a one time course of medications should clear it up, and it will not be a problem again going forward.

UC is fairly rare. You'd need a negative stool test for infectious causes, a colonoscopy and biopsies to diagnose a UC. Other things must be eliminated first with similar symptoms.

Colorectal cancer is pretty rare and the most unlikely of the lot. Do you have a family history of CRC? Unless you do, then I wouldn't worry!
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

Severe flares make the common toilet worse than any medieval torture imaginable. The rack? Bah! I survived the thousand razor blade poop for weeks!

quincy
Elite Member


Date Joined May 2003
Total Posts : 29954
   Posted 12/14/2017 10:45 AM (GMT -7)   
Sounds like you have a fistula.
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg / Amlodipine 5mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 15 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!

sillyliquid
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 12/14/2017 12:03 PM (GMT -7)   
Thanks @ipoop

I'm guessing colonoscopy will rule out a lot of these.

How would I get a stool test done if it's just runny though?

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11281
   Posted 12/14/2017 12:34 PM (GMT -7)   
Runny is fine for stool tests.

sillyliquid
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 12/14/2017 12:38 PM (GMT -7)   
Thanks,

So would you recommend going back to doc to ask for stool test in the meantime before colonoscopy? I'd rather get it done

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11281
   Posted 12/14/2017 12:54 PM (GMT -7)   
Yes. If a stool test for pathogens hasn't yet been ordered, then call/visit your doc and ask!

Diagnosis is a process of elimination, and pathogens are always on the list of possibiles...

sillyliquid
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 12/14/2017 2:48 PM (GMT -7)   
Thanks!

Also if I pass a solid/hard stool and there is bright red blood after passing, then that's most likely not the colon is it and more so a fissure of some sort?

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11281
   Posted 12/14/2017 3:46 PM (GMT -7)   
No knowing. Could be either.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

Severe flares make the common toilet worse than any medieval torture imaginable. The rack? Bah! I survived the thousand razor blade poop for weeks!

sillyliquid
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 1/9/2018 4:57 AM (GMT -7)   
So I had my colonoscopy and it's come back I have ulcerative colitis and apparently half my intestine is enflamed. Bit annoying but glad it's been diagnosed. I've got some medication that is an enema which I'll start tomorrow or Thursday which I'm not looking Forward to. I have to go on that for 1 month.

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8095
   Posted 1/9/2018 5:15 AM (GMT -7)   
if 50% of your colon is affected, you should be on an oral med in addition to daily rectal meds - and now, not later -

are you in the US ?
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11281
   Posted 1/9/2018 6:27 AM (GMT -7)   
At least you now know what it is, an UC, and it isn't a colon cancer as you had feared.

Yes, we all have an initial eww factor at the thought of retention enemas. However, the results speak for themselves: they're very effective medications that will heal you and improve your quality of life. I'd take them without delay that night after you have picked up your prescription.

If you have a cut on your finger would you take a pill for it? No, you apply a topical bandaid to the cut. Same goes with enemas, they go straight to the problem area and are applied topically.

Tips for using meslamine/rowasa enemas:
  • When you first start using enemas, use them in the bathroom very close to a toilet as they can come up very quick and unexpected. As you get better at them, and more confident, you can administer them in bed.
  • Add extra Vaseline (petroleum jelly) to the tip of the enema.
  • Warm the enema up to body temperature before administering. Put it in a pocket for a while before using, or warm it up under an armpit.
  • Squeeze all of the air out of the bottle before administering. You do not want to inject any air into your bowel as it will both be uncomfortable and make it likely you will need to urgently evacuate the enema fluid.
  • Lay an old towel down as any drips of the enema fluid can stain clothing, carpet, etc.
  • Use one of the positions described in the instructions.
  • Administer the enema slowly, too quickly and you will be less successful. If you wish, you can do one half the bottle first, wait a few minutes, and then administer the rest.
  • Stay reclined on your left side for about 20 minutes to allow the enema fluid to be absorbed. Retire for the night.
  • It takes practice to hold the enema in for 7 hours. Do not get discouraged, and keep trying. Even if you evacuate part of the enema, some will likely remain and heal you. As you heal, it will be easier to retain them for longer lengths of time.

Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

Does the 5-second-rule apply to soup?

sillyliquid
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 1/12/2018 12:46 AM (GMT -7)   
Thanks

I'm getting sharp crampy pains that are quite painful for 30 seconds. Is this due to polyp removal? Is there anything I can do to help it? It gets worse if I've eaten. It's now been 3 days admittedly it has died down a little but is still paonful

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11281
   Posted 1/12/2018 6:38 AM (GMT -7)   
I've gotten sharp pains from bad UC inflammation, feels like a knife-stab, and it got better and then went away as I healed. Trapped gas can cause more mild discomfort, but nothing that strong.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15677
   Posted 1/12/2018 11:27 AM (GMT -7)   
I am happy you've gotten a diagnosis. The pathology should shed more light on the situation. I am sorry that they think it's UC. I hope the enemas help. I agree with Turd, oral meds should definitely be considered with 50% involvement. iPoop is right, the pain might be the UC. I had a polyp removed and I didn't have 3 days of pain, I don't think I even had a day of pain. How are you doing today? Did you start the enemas last night? Did you end up doing a stool test?
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

quincy
Elite Member


Date Joined May 2003
Total Posts : 29954
   Posted 1/12/2018 12:04 PM (GMT -7)   
Hi...good to hear a diagnosis was done and that only one polyp was found and removed. When do you get results?

You need to also be on an oral 5ASA medication as well as the enema. What kind of enema is it?

You could call the doctors office and ask for an antispasmodic. That will help with some of the discomfort after the scope. You could also take tylenol that will help with the pain if you're having the pains regularly.

Keep us posted on any updates.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg / Amlodipine 5mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 15 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!

sillyliquid
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 1/12/2018 12:48 PM (GMT -7)   
I get the results back from the polyps Monday but he said it's deF UC.

I'm on Mesalazine. I had my colonoscopy on Tuesday and only got the balls to do the enema last night. I really ducked at doing the enema but got about 1/4 of the liquid in I reckon and kept it in there for 30 mins. I really do need some of the oral stuff.

The doc said he took a "few" polyps so at a guess it's probably just the removal of them that's causing the discomfort . hopefully it goes away soon.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11281
   Posted 1/12/2018 1:47 PM (GMT -7)   
Stick with it to get better. Try administering half the enema fluid, waiting a few minutes, and then doing the rest as that helped me out (at least if you have to evacuate some you get a second try that way). Ignore the feeling to evacuate the enema, that sensation only lasts about a minute and will go away.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

A semi-finalist in the Olympic 15-meter bathroom-sprint. Aimed for the gold but just ended up getting brown...

sillyliquid
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 1/12/2018 2:36 PM (GMT -7)   
Yeah it was a weird feeling last night I didn't get much up there but it felt like when you get water stuck in your ear hehe

quincy
Elite Member


Date Joined May 2003
Total Posts : 29954
   Posted 1/13/2018 12:26 PM (GMT -7)   
Make them your best friend! Been mine for 29 years....😎

Update us on your biopsie s pathology....get a copy for sure, for records and research and those who are wanting to know.

Absolutely get on oral mesalamine.

What is the brand and dosage of enemas?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg / Amlodipine 5mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 15 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!

sillyliquid
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 1/13/2018 1:27 PM (GMT -7)   
It’s salopak. I deg need oral cause I am only getting 1/4 up there and I want this bloody thing to go away haha

quincy
Elite Member


Date Joined May 2003
Total Posts : 29954
   Posted 1/13/2018 7:39 PM (GMT -7)   
Salopak? Not salofalk? What's the dosage...4g?
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg / Amlodipine 5mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 15 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!
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