In this thread I’ll be describing many things and methods that I’ve tried throughout the years that many of you may not be familiar with as I try to work with the same disease that we all have in this forum. Before you read on, please note that the following are based on my personal experience and learnings and I don’t have scientific documents to back them up (that does not automatically make them bogus). If you do have the endurance to read this long-ass thread, I’d imagine many of you will raise an eyebrow at some of the things. My intention is just to share and perhaps provide insights from another perspective – I am by no means a doctor.
Brief intro, I was diagnosed with UC in 2011 but I probably had it earlier as I had blood on toilet paper since 2008 but didn’t bother after my physician told me that I shouldn’t worry about
it at such a young age. My background is Chinese and most of the things that I’ll be talking are around learnings from Chinese philosophy/perspective. I’ve been through treating UC in the traditional ways in the west, there are plenty of threads here so I’ll keep that part brief.
Like most of you, I googled UC and how it can be cured on the internet countless number of items. After couple years of enduring UC, I found a Chinese website for a hospital in Beijing that claimed they can cure IBD. I know it sounds total BS, but after careful reading, research and a bit of desperation – I terminated my contract job and left for China to live in a relatively crapty (by North American standards) hospital in hope of curing my disease.
Before I share my daily treatment there, I’d like to discuss cause of UC/IBD/Chronic Illnesses. Most of the contents are revolves around this assumption. I don’t think we can cure something if we don’t even know the cause. In western medicine, the general understanding that UC could be a combination of stress, environment, or your DNA – but mostly unidentified. Here is what I learned:
1. I don’t believe a single food/nutrient/magic pill will cure IBD, because if there is we’d all be drinking and eating whatever we want at this time of year instead having all those fears when it comes to selection for vacation place and dinner table
2. Rather than looking at a specific disease such as UC, it is just a name with different symptom. Root of the general causes for many chronic illnesses are similar
3. This may be very hard to believe for all of you, but IBD is caused by blockages/knots within our abdomen that compresses and thus prevent/limit sufficient blood flow from delivering vital nutrients to the organs. When organs don’t receive proper nutrients, they will provide symptoms to tell you that something ain’t right
4. These blockages can be physically felt but they can’t be detected with x-ray/MRI – I know this sounds total BS but I can attest that this is 100% true
5. These blockages could be shaped in various shapes and sizes. The longer you have them the bigger/harder they become. They could shape and feel like a tennis ball, baseball, sausage, or even a frozen banana
6. The two major causes of these blockages are one – exposing the body to cold weather or drinking/eating frozen/cold food and beverages, and two – Negative emotions such as sorrow, fear, and anger that are trapped within you. Coldness play a really large role in the disease, especially modern days where people gulp down loads of ice cold drink for the good feeling without thinking of any consequences. Cold weather + cold drink/food is probably the worst combination. People who contain and hold their emotion such as anger and fear will also develop more blockages
7. Think of the body as an ecosystem with lymph/blood vessel system as rivers and their tributaries. Organs are the villages that live and depend on the rivers, they also depend on each other. If a bolder clogs the river or the river freezes due to low temperatures – there will be too much water to some villages and reduced water to others
This was my experience with the treatment. It was required that I live in that hospital, where most dorms had from 1 to 4 patients per room. The hospital had about
25-30 patients at the same time during my stay, all were Crohn’s/UC with few Lipoma patients. There is a shabby cafeteria to purchase meals, not much selection. Here is my daily routine:
1. 7 AM: Wake up to have breakfast
2. 8 AM: Soak feet in Chinese herbal medicine in a steel pot for 45 minutes while my doctor checks my pulse and tongue to determine my health state. Medicine is customized and constantly modified for each patient
3. 9 AM: Full body massage from my doctor. This is not your ordinary Swedish or Deep Tissue massage. This is a very painful massage where the doctor will try to clear blockages from toe to neck. The more blockage you have the more pain you will experience during the massage and utilizing elbows with force is a common massage technique. Hurt like a ***** in the beginning however the pain was much reduced in my later stay. At end of the massage they will massage your abdominal region to clear blockages, again this was very painful for many
4. 10 AM: Finish my massage, I usually hang in my room or I go to a local gym to workout
5. 2 PM: After finishing lunch at hospital, my afternoon treatment involved either GuaSha (scraping), cupping, and acupuncture. I then do a second session of feet soaking before getting dinner
6. 6-9PM: I will get a herb enema – and it is required that I hold the liquid for as long as I could
All patients were given very strict diet. We could not eat red meats (with exception of a bit of pork), fried food, baked food including bread, seafood, spicy food, sweet foods, and of course anything cold/frozen. Essentially a very bland diet. We were told that we need to follow that diet for 3-5 years with annual reinforcement (about
a week or two) treatments to completely cure the disease. I broke the diet about
2 weeks after leaving the hospital because it is hard to say no to red meat and baked sweets, but my intestines didn’t enjoy that decision.
The purpose of all treatments above is to clear blockages from the body and promote self-healing. I got to say I really hated some of the treatments such as acupuncture, guasha, and the massage as they were really painful. Though these treatments may be very hard to believe to a westerner, they were used for thousands of years in China. To answer all your question – did it cure my disease? In short, No – however I had a very large blockage in my abdominal region (about
the size of a small snapping turtle, and quite thick – at least 5 CM) and the duration of 2 months removed probably only 20% of them (I previously thought they were my spine lol). I had almost no symptom during my stay and brought feet soaking herbs back to Canada to continue treatment for few months. My symptom gradually returned after a month leaving the hospital. I have to say their treatment make sense and if all blockages are removed the disease would be cured.
I’ve interacted and witnessed many patients from toddlers to elders with the same disease and it is a little assuring that I’m not the only one suffering. I have mild inflammation about
15 CM from the rectum and was one of the less severe ones, there were many who came back for additional reinforcement treatments and new patients. Most patients had satisfactory results during the stay, I think there were only one lady who were still bleeding 3 weeks into the treatment so she left. There were many who already had surgery beforehand to remove part of their colon however it did not cure their disease – they still had symptoms and even complications. There were also many who tried steroid-based drugs or Remicade and all claimed it was effective at the start yet gradually lost effectiveness. The weaker patients were given liquid nutrients to replace meals to alleviate impact to intestines. The doctors were very responsible, their job was very exhausting by having to do all that treatments for 4-6 patients a day.
Having said all that, here are things that I’ve tried that may not be familiar with you. They are mostly results of my research in Chinese sources. I would consider that I’ve used myself as a lab mouse from all the stuff that I read and researched.
1. GuaSha/Scraping – it is essentially scraping your skin with a plate made of stone/antler or even a coin after applying oil. Yes it could hurt but the intent is to remove toxins lying underneath your skin by surfacing them to the skin to be eventually metabolized. Otherwise they will block your blood circulation. This method is a traditional method for many problems and I find it especially useful for chronic muscle pains and to treat the common cold. Not effective at directly treating UC/IBD however it may help
2. Cupping – Create a vacuum inside a cup that mounts the skin by either using fire to burn off the oxygen or a pump. Similar to the above, it surfaces the toxins to the skin as well as excessive moisture/cold. I’ve seen skins where patches of water droplets left on the skin after the cup was removed. It is mostly used in the back along major acupuncture points – again it is very effective in relieving muscle pain and sucking out the cold chi. Not effective at directly treating UC/IBD however it may help
3. Acupuncture – I’ve never felt any significant benefit of acupuncture, had numerous acupuncture treatments and it did very little for my UC. The concept of acupuncture is like flying a kite, you stimulate various points along the string to navigate the kite, however if the abdominal area is blocked, the string is broken and the kite will not be easily steered
4. Chinese Herb Medicine – Seeing few TCM doctors in Canada as well as a ‘famous’ doctor in China who claimed to have great success in treating UC, did not see any significant benefits. Also heard from many the herbs alone is not effective in treating UC. Also want to point out that most TCM doctors in North America are not very experienced and TCM is something that heavily relies on experience rather than standardization
5. Enemas – I’ve used two types of enemas. First is a mixture of pulverized oral Pentasa pill + two well known Chinese herb powders that specialize in treating
open wounds and mouth ulcers. This east-west concoction was very effective as the enema could easily reach my ulcers – usually healing the ulcers in a matter of days. Second is the Salofalk enema – much less effective but more convenient to use. The first type of enema is very good in subsiding symptoms however once I stop using it my symptoms return
6. SCD Diet – didn’t work and was very hard to maintain. Also tried home-made yogurt and it didn’t really help.
7. Food reflexology – They do have benefits, however it didn’t help with my symptoms when I tried. Similar to the knots found in the abdominal area, you will find tiny granular/fibre-like blockages in your feet in the same reflexology area. Clearing them out should help.
8. Mind-reading a set of numbers. This is not voodoo, but a relatively new healing method developed in China that is based on traditional Chinese philosophy. Essentially you read a set of numbers (i.e. 20.30 is read as “two-zero, short pause, three-zero”) in your mind without reading out loud. The idea is that a when a certain number is read it will trigger certain response and chi movements in the body. I’ve tried it once by mind-reading for few hours in a day and surprisingly I had significant improvement the next day. I didn’t bother with doing that much amount of mind-reading afterwards as it was quite boring. I didn’t experience the same improvements afterwards, not sure if I didn’t read enough or it was a fluke. The number set I used was 20.650.30.80. Some other number sets that could be helpful are “72000•650•40”, and “380.70.160”
9. AiJiu – this is essentially a type of dried-up plant rolled up like a thick cigar, while smoldering it provides heat and medicinal properties that is said to improve circulation. It was helpful for a good while when the heat was applied to my abdomen. Later on lost effectiveness and I believe one of the reason is that it covers a relatively small area.
10. Slapping yourself – This is NOT self-abuse but the pain can feel like it. Essentially you slap certain parts of your body till the toxins surface and appears on the skin – some can be large dark colored bumps and may look scary. They will be metabolised by your body and eventually you will have lighter colors appearing after each slapping treatment. This is again something hard to be grasped by the west but here is a YouTube video explained by the person who spread it: https://youtu.be/-SAikultRIA . This did not help with UC however I’ve always had cold hands and by slapping the inner elbow area (opposite of the elbow) – my very first session, which was very painful produced large patches of dark red/purple toxins on the skin. Surprisingly I also smelled noticeable medicine fragrance after the session, my guess is that these were remnants of meds I took before. I had much improved circulation in my hands and they are now much warmer. This along with cupping/guasha is extremely effective in treating arthritis/muscle pain/improving circulation in my experience and removing blockages.
11. Self-abdominal massage – I know where my knots are, I’ve managed to reduce the blockages significantly (I’d say it was about
20 X 30 X 5 CM in approximate volume). However there are some blockages that are directly touching my colon and I usually mess up my colon if I try massaging it. I do NOT recommend this as it is very risky.
12. Heat pads – There are large heat pads where you can microwave them to heat it up, placing it on abdominal and both your feet and covering above ankles provides significant relief.
So, if you ask me what I would recommend. I would:
1. Try avoiding cold or even room temperature water and food to see if it helps. Also all my Chinese doctors tell me that seafood is bad for intestines. Junk sweets and also really sweet fruits should also be avoided, watermelon promotes diarrhea
2. Buy a large heat pad big enough to cover over your abdominal area, even better if you can cover lower back. You can make your own by stitching two pieces of cloth together with multiple compartments and filling with dry-red beans or coarse salt rocks. Microwave the pads enough so it is toasty warm and cover your abdominal region (especially are of inflammation). Cover your feet (or soak in hot water) is also very helpful in promoting sleep. The idea is to promote blood flow to the feet and your organs. Do this for at least an hour a day. I bet most of you have cold feet because the blockage is preventing blood flow.
3. Massage your feet, guide your knuckles with some forces on bottom of your feet with some oil applied to feel for any lumps/granular spots – they are usually painful. You can use the back of a comb (similar to guasha) to massage and clear these blockages
4. I’d give the mind-reading a shot
5. Try abdominal breathing – air should sink below your navel. This is to promote blood flow to your organs
6. For dudes - try abstinence for a while to see if it helps. Especially when you have sore kidneys
Again, I am not recommending massaging the abdominal – but if you are curious you can feel the abdomen of a very healthy individual, a completely healthy person will not have knots but it is uncommon. Most people have knots around their navel. There are more to the stuffs I wrote however I’ve already written half a book worth of words. Many methods described can be applied to many other diseases within this large forum however I’m posting here as I have UC. I currently don't take any meds but I still have a bit blood and symptom - but I can manage pretty well if I heat my abdomen/feet and what I eat.
I’ve browsed this website occasionally and think my experiences may be an interesting read for some of you. I'm not a forum person however I'll try to respond if there are questions. Thank you and Merry Christmas.
Post Edited (KGYL) : 12/25/2017 9:45:06 PM (GMT-7)