I just wrote a whole reply but it got lost... I am happy you were able to go home, but sorry to hear you're having pain. I remember when I first got home, I was pretty overwhelmed with everything, but I had a home health nurse who came to see me a few times. She helped me change my pouch 3x, after that, I was on my own, but I felt very prepared. Do you have someone coming?
I had 3 steps and the first was the hardest for me by far, but I'd imagine in 2 steps, it's even harder. Stay strong, you will be feeling so much better very soon! As for supplies, you can start ordering samples from all the big manufacturers if you know the general size of your stoma. I used to use the cut to fit wafers, or the moldable, especially early on. My loop was especially hard because it pointed down, and it was short, but I made the best of it. Convex helped a lot, but nothing worked great on my loop like it did with my end ileo. Knowing it was temporary helped a lot with mental aspect. The loop was mentally draining for me because it wasn't manageable compared to the end, which I had for 12 weeks and I was comfortable with. It does get easier.
I am happy to hear you're free of the cancer threat. Did you hear anything about
Moderator: UCCurrently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish