my 17 year just diagnosed.

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mrsjacksmom
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Date Joined Jan 2018
Total Posts : 1
   Posted 1/8/2018 5:08 PM (GMT -6)   
My 17 year old son was just diagnosed with UC.

He is currently hospitalized to try to bring the bleeding under control. he is having diarrhea that looks like mostly just blood. We are on day 3 of steroids, flagil, mesalamine enema and low residue diet. I think his symptoms are getting worse. cry

He's scared. I'm terrified. What now?

He is an otherwise healthy teenage boy.

3timechamp
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Date Joined Oct 2009
Total Posts : 1027
   Posted 1/8/2018 5:25 PM (GMT -6)   
Cortenemas get to any lower inflammation. What steroids is he taking now??? prednisone

Poppie
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Date Joined Feb 2014
Total Posts : 2152
   Posted 1/8/2018 6:11 PM (GMT -6)   
That's rough for a 17 year old.

How long has he been in hospital, as it might take a few days before the Meds kick in and start to work, and stabilize him.

What dosage of steroids is he on.
Samantha
Stopped smoking Jan 2013. Diagnosed Left sided UC, 8th Feb 2014.
Gluten, Dairy, Sulfite, Salicylate, and Histamine intolerant.
Home FMT treatment in July 2016 to ward off reoccurrence of C DIfficile.
Failed Pentasa, Azathioprine and finally Methotextrate due to allergies/intolerance. Taking Humira. Have finally come off Prednisone Yay!!!

notsosicklygirl
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Date Joined Dec 2008
Total Posts : 16731
   Posted 1/8/2018 6:47 PM (GMT -6)   
Poor thing, both of you. It's hard to have UC, but also hard to watch a loved one suffer with UC, or any chronic illness. How was he diagnosed? Did they do a scope and pathology? Are they sure it's UC and not Colitis, or Crohn's? Getting a solid diagnosis is of paramount importance with chronic illness. Try not to stress, he will get better. Now that you're aware of what is going on, there are lots of treatment options. My suggestion is, once he's stable, find an IBD center near you. They are usually at large hospitals or university hospitals, the GIs who specialize in IBD work at these centers & are more aware of the newest and best methods of treating IBD. Did he have stool tests to rule out pathogens?
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

iPoop
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Date Joined Aug 2012
Total Posts : 13219
   Posted 1/8/2018 8:51 PM (GMT -6)   
Cyclosporine is a good rescue medication. Remicade is a good rescue medication.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

Does the 5-second-rule apply to soup?

TroubledTurds
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Date Joined Jan 2004
Total Posts : 8360
   Posted 1/8/2018 9:54 PM (GMT -6)   
iPoop said...
Cyclosporine is a good rescue medication. Remicade is a good rescue medication.


please define rescue in this context -
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

iPoop
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Date Joined Aug 2012
Total Posts : 13219
   Posted 1/9/2018 6:01 AM (GMT -6)   
When a UC patient is hospitalized, one or more rescue medications are tried to get his/her symptoms under control or manageable. They're usually high-dose IV given medications that work quickly (examples include IV steroids, Cyclosporine, or remicade). Once a rescue med works, he/she is stable and has healed enough, they're taken off of the IV, discharged and given pills to take home (pill-form prednisone and other medications). This is the majority of cases.

The goal is to heal, stabilize, and discharge with prescription drugs that will continue healing under the care of a gasteroenterologist. For the majority of us, rescue meds work and we're discharged. Ocassionally the surgery is necessary.

If the UC patient cannot be stabilized with the available rescue medications then an emergence surgery, a colectomy-surgery that removes the large intestine, is performed. He/she leaves with an end-ileo and an appliance (colostomy bag). In several more surgeries one can have an internal j-pouch reservoir formed, the external appliance removed, and poop sitting down. Why is a surgery necessary when uc cannot be controlled? To avoid intestinal-perforations that lead to body-wide infections like a sepsis.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

Does the 5-second-rule apply to soup?

Post Edited (iPoop) : 1/9/2018 4:11:54 AM (GMT-7)


TroubledTurds
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Date Joined Jan 2004
Total Posts : 8360
   Posted 1/9/2018 8:48 AM (GMT -6)   
not what i was asking but thanks anyway -
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 13219
   Posted 1/9/2018 9:28 AM (GMT -6)   
Not entirely sure what you're asking then, unless you wish to elaborate. We've had posters in dire-straights in the hospital during a terrible UC flare and IV cyclosporine or a Double-dose of Remicade pulled them back from that brink. Effective for that purpose. You need a plan for afterwards with the cyclosporine (can't be taken indefinitely), but it does at least buy you time to try other things which is all any rescue med does! Remicade can just be continued so that is a clear-cut afterwards scenario.

All of those work like pred does, you take them for rescue and then transition to others later on once things are under control (sans remicade).

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8360
   Posted 1/9/2018 10:27 AM (GMT -6)   
hang in there mom - sounds like your son is being taken care of -

without knowing more about his situation, it doesn't sound too severe - many folks, including myself probably would have been hospitalized if not for pure stubbornness -

bleeding is always scary but the reality is in most cases the amount of blood loss is typically small - it just looks like a train wreck -

can you tell us more ?
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

Andrina
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Date Joined Aug 2011
Total Posts : 3152
   Posted 1/13/2018 1:22 AM (GMT -6)   
Hi there I was 17 as well when I got diagnosed. I hope he gets better soon.
UC since 2002
Was on Remicade and successfully made the step back to Azathioprine
Currently on 150 mg Azathioprine, Wellbutrin 150 mg, Zoloft 50 mg, CCherbal (as needed), Algaecal
Scope on 6/3/2016 showed no inflammation but scarring
Dexa scan on 10/09/2017 showed decreased bone density, again...
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