Surgery a sucess

New Topic Post Reply Printable Version
46 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 882
   Posted 1/11/2018 10:24 AM (GMT -6)   
He opened me up. There was scar tissue in the way

DBwithUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4107
   Posted 1/11/2018 10:29 AM (GMT -6)   
Well, glad you are through it either way.

did you end up with plans for 2-step or 3-step?
11/08: ischemic colitis and scope perf colon. 12cm colon/ileocecal resected. IV antib:sepsis.
01/10: Dx: Mod. UC pancolitis. Rx: Lialda 3x.
02/11: Major flare w/antib:sinus. Rx: 40mg Pred taper. 6mp.
07/11: Histol remiss rt/trans; worse sigmoid. Rx: Rowasa & hydrocort
---
Curr: 1-2 soft-formed stool, no urgency: Lialda 2x, NO PRED, probiotics, Vit-D/C

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 882
   Posted 1/11/2018 12:22 PM (GMT -6)   
We discussed 3 step bc of Pred. I think that's still plan

valli1234
Regular Member


Date Joined Aug 2017
Total Posts : 132
   Posted 1/11/2018 9:13 PM (GMT -6)   
3timechamp said...
Valli where t your scars??


My incision is cut through the lower abdomen at the top of the pubic hair just over the hairline it’s about 6-7 cm and I also had about 6 laparoscopic incisions all have healed up pretty well still tender a bit but now manageable 👼 I am luck my kids do everything around the house and the boyfriend helps out a great deal . So everything is healing up well.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16289
   Posted 1/11/2018 10:32 PM (GMT -6)   
Mine is like vallis, pubic area. Then I have the stoma. The other's are invisible now. There were a few tiny ones, one in the belly button i think. i don't remember exactly. They do heal pretty well. I have bad luck with scars, so I am thankful mine healed okay. I wish the stoma scar wasn't there...
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 5090
   Posted 1/12/2018 12:45 AM (GMT -6)   
3timechamp said...
We discussed 3 step bc of Pred. I think that's still plan


If they didn’t build a jpouch during the 1st step then you’re going to need the full 3 steps.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 882
   Posted 1/12/2018 4:45 AM (GMT -6)   
Everything fine with catheter. Was not a big deal. Yea I think my big incision will keep me in hospital little longer. Had surgery Tuesday. So sometime next week?? When I see Dr today I will ask how many steps. I do have bag. Maybe solid food today

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 5090
   Posted 1/12/2018 11:34 AM (GMT -6)   
Don't try to rush out of the Hospital. It's better to stay there an extra day then to be readmitted with an issue. I had to readmitted once and it wasn't fun going through the ER, it was awful on a Saturday night in NYC.

Another time my surgeon was on vacation and they tried to release me but I wasn't feeling well and my family refused to take me home. The next day I ran a fever and they found abscess, I was held for another 5 days.

When I had my hip replaced last year I refused to leave when they wanted to discharge me because I didn't feel well enough. That night I started vomiting from Ileus, the next day the nurses and my surgeon commended me for listening to my body.

You'll be doing the same thing at home as what you're doing at the hospital, sleeping and laying in bed. It's better to do it at the hospital under medical supervision.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16289
   Posted 1/12/2018 11:53 AM (GMT -6)   
I agree with Keith, better to stay a little longer than to have to rush back. I stayed longer than I wanted to, and mine was laparoscopic, which is easier to heal from. I knew if I went home with the drain I would have been miserable... I hope you can pee soon. I remember by first pee after the first step was a big challenge. Getting discharged on the weekend was also a hassle. Everyone's busy with other stuff, or the staff is short. I was trying to leave on a Sunday and it was so difficult to get someone to sign the papers. I hope you're getting some walking in and feeling better. It feels like walking is such a big chore after surgery, but you will be back to your normal self pretty quickly.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 5090
   Posted 1/12/2018 12:27 PM (GMT -6)   
You definitely need to be able to pee and to tolerate eating solid foods without issues before you go home.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12551
   Posted 1/12/2018 1:25 PM (GMT -6)   
You had an open surgery, so your risk of complications like an infection (also known as an abscess) is a bit higher too than laproscopic would be. So, it's a good idea for them to keep an eye on you once you're off of the pain meds for a few days. It'd popup soon if it was going to. No guarantee it will, just say play it safe.

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 882
   Posted 1/12/2018 2:28 PM (GMT -6)   
Wound look great. I'm moving around. Fighting the anestestia ,pain killers and muscle relaxants isn't easy. But I'm ok. Nothing of those 3 today. I'm kind of happy that I couldn't pee bc I think is be home today if I could. I ate solids had mashed potatoes,little chicken,chicken noodle soup. I don't want to leave early. It all had to do with ins comps They want u in and out. I would rather get the care here then at home. Going they a divorce. No compassion from my wife or kids. A lot of selfish they come first stuff. Makes me a stronger person. Have had friends from Long Island see me. And I am always thankful of u guys. Not easy. One day at a time

clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 881
   Posted 1/12/2018 4:17 PM (GMT -6)   
It sounds like you are doing better!! Yea!!! The walking and moving around will help.

They make a Velcro support belt that the doctor can prescribe and the nurses can get for you and it helped me feel better. And when I sneezed or coughed it gave me added support. I wore it a lot the first 6 weeks.

Heads up...they will want to take the catheter out for a "test try". I could not pee either time. (And they kept wanting to put the catheter back in. Did it 3 times total) I finally begged for those little brown pills that they give you when you have UTI, waited 3 hours and had the nurse pour warm water over my feet with the shower running in the background. That worked a couple of times and then I started going by myself. For some people the anesthesia puts the bladder and bowels asleep and it can take 2 or 3 days to wake back up.

I looked at calendar and I was in there almost 6 days post op BUT I had a spouse to help me once I got home. If you don't have anyone at home...just my opinion...I would stay until I couldn't. It is rough being at home with that incision. My doctors went over that plan with me because they wanted me to know what insurance expected. I did not complain and seemed to be able to do things so they got me out asap. I wish I had spoken up and tried to stay longer....

I am glad you are posting and we know how you are doing.

Hang in there. Keep walking and make sure they give you dollars if you give them a peep show while walking! Lol...just joking...

Take care!
Clo

songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3648
   Posted 1/12/2018 4:21 PM (GMT -6)   
Hang in there, champ! Glad you were able to eat a little solid food. To be honest, it took me a while for that to feel comfortable, but it is OK now! Baby steps.
And, yes, what great community this is!
Age 61. Diagnosed UP 1983, UC 1986
Step One surgery on 12/28/17.
Prior meds: sulfasalizine, Asacol, Delzicol, Lialda,
6 MP, Humira.
Metamucil - 2 doses/day for 34 years.
two hips replaced thanks to pred.
Bentyl as needed as of 8/31/17

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 882
   Posted 1/12/2018 4:37 PM (GMT -6)   
I'll be fine guys. Visiting nurse comes twice a week at least. My mom is across street. Should be fine

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 882
   Posted 1/12/2018 8:29 PM (GMT -6)   
I had end ileostomy for u that's interested. J pouch next step

Spring
Regular Member


Date Joined Jan 2017
Total Posts : 344
   Posted 1/12/2018 8:41 PM (GMT -6)   
Glad it went well! Sounds like you are going through a lot to be dealing with this and a divorce. I don't if this would help your difficulty in urinating, but when I was potty training one of my boys the only thing I found to get him to go sometimes was to pour warm water over him. I wonder if that might help with spasms for you. Best wishes on your continued journey!
36yr old mother of 3 Moderate Pancolitis 1/3/17. Hosp 1 week on Solumedrol, Delzicol. Apriso, pred, then switched to Balsazide 750 mg, and Uceris 9 mg 3 wks. Minor flare in August, flare since Oct 20. Acute pancreatitis from Balsalazide hosp. 2 days, Started Humira 12/15/17, 40 mg pred, waiting on Entyvio due to reaction Humira. Veg, gf, no cows milk, multi, cal-mag, Aroga, Purrium

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 882
   Posted 1/12/2018 9:30 PM (GMT -6)   
Don't have spasms while trying to pee. Dr said bc I was on painkillers,muscle relaxants that they would cause problem peeing. Tried every water trick yesterday. Hopeing I don't have to tomorrow

valli1234
Regular Member


Date Joined Aug 2017
Total Posts : 132
   Posted 1/13/2018 9:29 AM (GMT -6)   
3timechamp said...
Everything fine with catheter. Was not a big deal. Yea I think my big incision will keep me in hospital little longer. Had surgery Tuesday. So sometime next week?? When I see Dr today I will ask how many steps. I do have bag. Maybe solid food today


I was out of the hospital within 5 days. But developed an infection 7 days later in the skin near my stoma. so dont rush getting out of the hospital.

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 882
   Posted 1/13/2018 9:50 AM (GMT -6)   
Everything good. Peed very well this morning. Now there saying my stool out of Stoma is very loose which it is. They wanted me to stay another day so they could check it. Told them it's been loose every day why wait til today to check it??? So there giving me Imodium and I'm going home soon. Didn't sleep at all last night. Haven't slept well while here. So time to give body a rest. Feel fine. Eating and drinking. Think I feel stronger once I'm home

Spring
Regular Member


Date Joined Jan 2017
Total Posts : 344
   Posted 1/13/2018 3:45 PM (GMT -6)   
Glad you feel up to going home! Hope you can get some real rest
36yr old mother of 3 Moderate Pancolitis 1/3/17. Hosp 1 week on Solumedrol, Delzicol. Apriso, pred, then switched to Balsazide 750 mg, and Uceris 9 mg 3 wks. Minor flare in August, flare since Oct 20. Acute pancreatitis from Balsalazide hosp. 2 days, Started Humira 12/15/17, 40 mg pred, waiting on Entyvio due to reaction Humira. Veg, gf, no cows milk, multi, cal-mag, Aroga, Purrium
New Topic Post Reply Printable Version
46 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Monday, June 25, 2018 12:37 AM (GMT -6)
There are a total of 2,974,897 posts in 326,220 threads.
View Active Threads


Who's Online
This forum has 161311 registered members. Please welcome our newest member, cannhub.
283 Guest(s), 3 Registered Member(s) are currently online.  Details
The Dude Abides, JayPoppa, F8