Development Time for Pancolitis

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RocCity147
New Member


Date Joined Jan 2018
Total Posts : 1
   Posted 1/12/2018 4:01 AM (GMT -7)   
Hi everyone! I'm new to the forum but discovered it in August 2017 and found everything EXTREMELY helpful. Thank you, Thank you, Thank you to everyone for sharing. There aren't many people in Hong Kong with Pancolitis let alone UC and it was relieving to find others with advice and guidance on how to cope. I was literally reading posts and sobbing when I found out there were people suffering like me.

After missing 5 weeks of work in July-August, stupidly trying to self-medicate with LTYG bullcrap Absorb Plus, 22lbs weight loss and 6 days in the hospital I was put on Prednisone and made a drastic recovery. Luckily, I'm in remission now but have to face the ugly issues of my insurance reimbursement.

Even though I was diagnosed in July and my insurance kicked in in May, they are trying to prove that my illness began before May, making it a preexisting condition thus not covered. I have not found any documentation online that says how long the development period of Pancolitis takes. Could it be 5 weeks or 5 months? Does anyone have any similar issues with their insurance policies?


On a side note: Jini Patel Thompson's Absorb Plus shake is horrible and made my pain 10x worse. I do not recommend anyone with Ulcerative Colitis to use this product. I spent hundreds of dollars to ship this across the world only to make my condition worse but I was desperate to alleviate the pain... DON'T DO IT. I didn't read the posts on this forum about it until it was too late. sad

Uniform Charlie
Veteran Member


Date Joined Jul 2015
Total Posts : 549
   Posted 1/12/2018 6:23 AM (GMT -7)   
I would try getting your doctor from the hospital to assist you by writing a letter or calling the insurance company. State when symptoms started and that you've had no prior symptoms before that date.
Male
Diagnosed Proctosigmoiditis (UC) February 2015
Current Meds: Lialda 1.2gm 2x daily, duloxetine, rowasa as needed

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11284
   Posted 1/12/2018 6:36 AM (GMT -7)   
Agreed. That's your doctor's job to explain to your insurance company. I'd talk to him/her and I bet you'll get help.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

A semi-finalist in the Olympic 15-meter bathroom-sprint. Aimed for the gold but just ended up getting brown...

Spring
Regular Member


Date Joined Jan 2017
Total Posts : 163
   Posted 1/12/2018 8:17 PM (GMT -7)   
I can attest that some initial flares can come on quite dramatically. I was first certain I had an issue three weeks before I landed in the hospital. Hope you can get them to pay.
36yr old mother of 3 Moderate Pancolitis 1/3/17. Hosp 1 week on Solumedrol, Delzicol. Apriso, pred, then switched to Balsazide 750 mg, and Uceris 9 mg 3 wks. Minor flare in August, flare since Oct 20. Acute pancreatitis from Balsalazide hosp. 2 days, Started Humira 12/15/17, 40 mg pred, waiting on Entyvio due to reaction Humira. Veg, gf, no cows milk, multi, cal-mag, Aroga, Purrium

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15534
   Posted 1/12/2018 11:59 PM (GMT -7)   
You may want to consider providing a copy of your medical records for the past two years as long as they will not show you going in & there is nothing on record to indicate possible UC. Many times I have seen this happen.
Susie
Moderator in Chronic Pain & Psoriasis Forums
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