pathology results from my surgery

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songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3648
   Posted 1/12/2018 4:56 PM (GMT -6)   
Deep breath... here goes:
Good news; the lesion they had found in a ureter when inserting the catheter was only a papiloma. They had sent me home from the hospital with an appointment to see a urology oncologist, so my imagination was going wild - but it's a non-issue and I was told to cancel the appointment.

The colon had cancer in it. The sessile serrated polyp that had been found by my GI 2 years ago (and never found again) was noted but without comment; the stricture area had cancer. the surgeon had followed his instincts, and when he didn't like the looks of things there, he had removed 44 lymph nodes; 6 had cancer cells.

The surrounding mucosa (? report is not right in front of me) tested negative, which is good.

The cancer was reminiscent of goblet cell carcinoid (which had been found last spring) but in fact did not test out to be exactly that (also good, IMHO.) Classified as adenocarcinoma.

Essentially, the surgeon got it all. He looked me in the eye and told be I would be Fine. But protocol is, just in case there are random cancer cells about, I will have a course of 8 - 12 weeks of chemo, every other week. (16 - 24 weeks! Argh!)

And because the chemo gives diarrhea, he wants me to keep my loop ileo until I'm done with the chemo, so I'm not adding insult to injury sore-butt-wise.

He said if I had done the surgery a year ago, the results would likely have been very similar, so not to beat myself up.

So I am alternately scared and relieved, going from "is this really all? They didn't miss anything?" to "Woo hoo, I just missed that bullet!"

Thanks for being there, friends.
Age 61. Diagnosed UP 1983, UC 1986
Step One surgery on 12/28/17.
Prior meds: sulfasalizine, Asacol, Delzicol, Lialda,
6 MP, Humira.
Metamucil - 2 doses/day for 34 years.
two hips replaced thanks to pred.
Bentyl as needed as of 8/31/17

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 882
   Posted 1/12/2018 5:11 PM (GMT -6)   
Your a winner Song. Let's say we r class of 2017-18. My father told me long time ago I'm responsible for the effort in whatever I do. We put in effort to live a better quality of life. It's not over yet but u keep moving forward. God bless

Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2105
   Posted 1/12/2018 5:49 PM (GMT -6)   
Wow! So thankful you had the surgery done. I felt relief just reading your post, I can't imagine what you are feeling. Hope all goes well with the chemo.
Female, 51, Vancouver BC
Pancolitis: Currently in remission

Jan-Mar2009: Asacol HD. Resulted in severe joint pain and no discernible benefit.
May26-Sep4/2016: Mezavant 4800 mg
Sep5/2016 - : Mezavant 2400 mg

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 1/12/2018 5:51 PM (GMT -6)   
Thanks for updating us. RE chemo: try to find out as much as you can about what they intend to use in advance-- so as to hopefully mitigate the side effects like diarrhea. I just hate that doctors tend to hold cavalier attitudes toward D ..... Grrrrrrrrrrrr! BTW, at Christmas I found out that a dear longtime neighbor (relocated to Arkansas with his family for 4 yrs) required 9 hrs of emergency surgery for pancreatic cancer last spring! This is a guy in his mid-50s who always kept trim, exercised regularly, & spent a lot of time at outdoor activities with his wife & sons ages 16 & 20. Always a picture of good health-- so one just never knows how these maladies crop up. It was only detected because he started to show signs of jaundice. *** Continuing best wishes for your recovery! / Old Hat (37 yrs with left-sided UC; presently in remission taking brandname Colazal)

Kulinarykidz
Regular Member


Date Joined Aug 2015
Total Posts : 462
   Posted 1/12/2018 7:38 PM (GMT -6)   
So glad you opted for surgery! Keep us posted on recovery!!
Female 45 years old- uc diagnosed 7/13
Remicade every 6 weeks since 8/15
Imuran 150 mg, viramin d, probiotic, estrogen, pepcid ac
*hysterectomy, endometriosis and ovarian cysts removed---made a world of difference with uc symptoms!!
**IN REMISSION FINALLY!!!

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12526
   Posted 1/12/2018 7:43 PM (GMT -6)   
Wow, sounds like you had a great surgeon to sense things were wrong and take the nodes then. It's good news but also sucks you have to undergo chemo.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

A semi-finalist in the Olympic 15-meter bathroom-sprint. Aimed for the gold but just ended up getting brown...

Spring
Regular Member


Date Joined Jan 2017
Total Posts : 344
   Posted 1/12/2018 8:44 PM (GMT -6)   
That does sound like a lot to take in. So sorry you have to undergo chemo on top of everything else.
36yr old mother of 3 Moderate Pancolitis 1/3/17. Hosp 1 week on Solumedrol, Delzicol. Apriso, pred, then switched to Balsazide 750 mg, and Uceris 9 mg 3 wks. Minor flare in August, flare since Oct 20. Acute pancreatitis from Balsalazide hosp. 2 days, Started Humira 12/15/17, 40 mg pred, waiting on Entyvio due to reaction Humira. Veg, gf, no cows milk, multi, cal-mag, Aroga, Purrium

DBwithUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4105
   Posted 1/12/2018 9:16 PM (GMT -6)   
it does sound like you beat cancer!!
11/08: ischemic colitis and scope perf colon. 12cm colon/ileocecal resected. IV antib:sepsis.
01/10: Dx: Mod. UC pancolitis. Rx: Lialda 3x.
02/11: Major flare w/antib:sinus. Rx: 40mg Pred taper. 6mp.
07/11: Histol remiss rt/trans; worse sigmoid. Rx: Rowasa & hydrocort
---
Curr: 1-2 soft-formed stool, no urgency: Lialda 2x, NO PRED, probiotics, Vit-D/C

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16284
   Posted 1/12/2018 11:15 PM (GMT -6)   
omg, I am so thankful you went through with the surgery.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 881
   Posted 1/12/2018 11:36 PM (GMT -6)   
Wow....

I am glad you did not wait any longer.

You are in my thoughts and prayers.

Clo
06/12-07/14 symptoms start, no diagnosis.12/14 diagnosed UC & diverticulitis. 01/15 hosp- fistulas, DX changed to Crohns, 02/15 developed new skin rashes, eye problems and painful joints 06/15 Hosp.2x again.. new specialist.Said was worse case he's seen. 7/16 hosp 5mm Stricture stricturplasty to 15 mm.09/16 colostomy. Meds: Remicade, methtrexate, prednison,folic acid, vit D, calcium, pro biotic,

hateuc
Veteran Member


Date Joined Jun 2010
Total Posts : 2353
   Posted 1/13/2018 12:50 PM (GMT -6)   
Wow Songlady, I didn't expect to hear that. Double glad that you had the colon out now. Want to wish you all of the best with the chemo. Your friends are here for you!! Hugs!!
B
UC diagnosed in 2010 but had prob. in 2009
2 Lialda/day Rowasa nightly, periodic anucort supp, Cortifoam as needed(needed more than I would like)
VSL#3, slippery elm
Metamucil capsules
Trying Gluten free (why not!)

quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 1/13/2018 1:15 PM (GMT -6)   
Definitely good surgery was done at this point. I had forgotten about the stricture.
I hope chemo is a smooth process for you....
Huge hug,
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg / Amlodipine 5mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 15 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16284
   Posted 1/17/2018 11:16 AM (GMT -6)   
How are you doing songlady? Thinking about you smile
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish
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