Well I'm home even though didn't want me to go

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3timechamp
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Date Joined Oct 2009
Total Posts : 624
   Posted 1/13/2018 1:01 PM (GMT -7)   
Finally peed. Thank God. All my stools in bag have been very loose so suddenly this morning my surgeons assistant wants me to stay another day which was not happening. My surgeon or his assistants were there every day since my surgery (Tuesday). So why didn't they pick up loose stool earlier since records are kept?? Frustrated me a bit. I didn't sleep good the whole week plus last night no sleep at all. At 6'5 it's hard getting comfy unless I have pain killers in me. So Dr sent me home with Imodium Let's see how it works

3timechamp
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Date Joined Oct 2009
Total Posts : 624
   Posted 1/13/2018 2:34 PM (GMT -7)   
Why would I have such a loose stool now that colon is gone?? Is this just part of surgery or is upper intestine diseased?? Eating better at home. More choices. Funny they keep mentioning Gatorade but have none at hospital. Oh well. I have a lot of everything.

Woogy
Regular Member


Date Joined Apr 2004
Total Posts : 53
   Posted 1/13/2018 2:35 PM (GMT -7)   
Hey Champ,

I've been following your threads, I'm going for a surgical consult very soon. Glad your surgery went well and your home. Hopefully you can now get some sleep. Continue resting and healing. wink

Woogy
Regular Member


Date Joined Apr 2004
Total Posts : 53
   Posted 1/13/2018 2:43 PM (GMT -7)   
My GI doc explained the loose stools because the food has less time in the digestive system and the colon would remove the water so stool is thicker. Without the colon there is more liquid.

3timechamp
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Date Joined Oct 2009
Total Posts : 624
   Posted 1/13/2018 2:50 PM (GMT -7)   
Thanks Woogy. That I knew. Is immodium part of life now?? Let's give it few days and see how it's working out. Been home 2-3 hours already slept more then last night. My body needs sleep. I love my big recliner. Good luck with your surgeon search. Where do u live??

notsosicklygirl
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Date Joined Dec 2008
Total Posts : 15664
   Posted 1/13/2018 3:32 PM (GMT -7)   
That's too bad that your doctor didn't inform you that stools are basically compacted in the colon, and the colon removes a lot of the water. Without it, you will not have stools as formed. The terminal ileum is the part at the end of the small intestine. It's the part the pouch is made out of. It does do some work like a colon, but it's not your colon. Some people do take imodium regularly. I do not take it often, but regardless of whether I take it, stools are a variety of consistencies & a lot depends on what you eat and drink. You have an end ileo at the moment if you're having 3 steps. With the end, you should have more form than you will with the loop. The loop has the shortest transit.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

3timechamp
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Date Joined Oct 2009
Total Posts : 624
   Posted 1/13/2018 4:32 PM (GMT -7)   
Thank you NSSG. I knew colon absorbed water but never thought about result after surgery. Stupid me. Thanks for info.

DBwithUC
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Date Joined Feb 2011
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   Posted 1/13/2018 4:40 PM (GMT -7)   
3timechamp said...
Why would I have such a loose stool now that colon is gone?? Is this just part of surgery or is upper intestine diseased?? Eating better at home. More choices. Funny they keep mentioning Gatorade but have none at hospital. Oh well. I have a lot of everything.


I don't understand why you would have any formed stool now that colon is gone. The small intestine absorbs nutrients and continues food breakdown begun in stomach. It is not where water is absorbed and stool is formed.

You are never going to put anything but mush into that bag.

Maybe I am missing something here.

Hope you can get comfortable at home.

Woogy
Regular Member


Date Joined Apr 2004
Total Posts : 53
   Posted 1/13/2018 5:49 PM (GMT -7)   
Glad you got some sleep in already. It will help you heal.

I'm in the Chicago area. I called Dr. Steven Stryker's office on Friday and left a message. So just waiting to get an appointment for a consult.

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4886
   Posted 1/13/2018 6:44 PM (GMT -7)   
Your intestine is in shock from the surgery and not absorbing nutrients as fast. As you heal, your intestine will absorb more.

Your intestine is swollen at the surgery site, if things are moving too fast then you risk a blockage. Just chew well, take it easy and you’ll be fine.

They gave me plenty of Gatorade G2 will I was there.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15664
   Posted 1/13/2018 6:46 PM (GMT -7)   
3timechamp said...
Thank you NSSG. I knew colon absorbed water but never thought about result after surgery. Stupid me. Thanks for info.


It makes sense if you think about it. it's why we go more often. Actually, with an ileo, looser is a little better. If it was big, thick stools, the bag would stick out, and be hard to hide and empty. People with colostomies use different bags, they don't use drainable, they use closed end, they don't empty. On the positive side, with that, they don't have frequent output. It really depends where the stoma is from though, If you had a colostomy high up in the colon, you would maybe have an experience more like an ileo.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

clo2014
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Date Joined Feb 2015
Total Posts : 766
   Posted 1/13/2018 8:48 PM (GMT -7)   
Hey Champ,

Just checking on you. Hoping you are getting the rest you need.

My doctor said with an illeostomy your output is more liquid. Colostomy is thicker. I have an end colostomy and Crohns.(although they swore it was UC at first) My out put is thick. I wear the drainable bags that I empty at least 5 times a day. The doctors also told me that regardless of if it is an illeostomy or a colostomy the out put will slow down a little with time. (And mine has...)

Do you have family or friends physically checking in on you? (Just worried) I am such a wimp...I gotta have an occasional hand holder.....

Clo

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 624
   Posted 1/13/2018 11:00 PM (GMT -7)   
Yes 2014 I have family plus mom across street. So I'm good with any needed. Got visiting nurse coming also. Yes stool will be looser once colon is gone. I just looked at all papers I got from hospital and many have articles for only staying hydrated-watching what we eat and keep track of input and output of liguid New chapter in my life. Nothing but good things ahead. Time for bed. Thanks all

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15664
   Posted 1/14/2018 9:39 AM (GMT -7)   
Staying hydrated is extremely important, especially with the ileo. I had the most trouble with my loop and staying hydrated. As for what to eat, I ate perfectly normally with both of my ileos. With the end, I never had any issues, even if I didn't chew well, but one of the tips you will hear over and over, is to chew your food well. With the loop, I had one blockage issue. it cleared on its own, after that i was really nervous and chewed very well. Now with the pouch, I don't worry about any of it, but I do make an effort to stay hydrated. Keith is right, things do get more formed over time. In the early stages, there's a lot of liquid, and it's frequent, same with when you have takedown, but over time, things calm and heal. The terminal ileum performs more like a colon, but it will never be a colon. In the end, you will have a variety of consistency, food changes it a lot. Some things thicken, like potatoes. You will see. There's a happy medium, where it works best for you. Do you have a nurse coming? Your nurse will likely go through some of the dietary stuff. A lot of people start off with low residue diets.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 624
   Posted 1/14/2018 10:35 AM (GMT -7)   
Thank you NSSG. A lot of good info there. Yes nurse coming today. Have gone over diet at Dr office and in hospital. Will look at paperwork again today about diet. My kids got me 2 Qts of chicken noodle soup,croissants,Gatorade. That's a good start. Will keep diet simple. Still have 20-25 staples down middle of my stomach which reminds me to eat slow,chew food and small helpings. Thanks for your info

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15664
   Posted 1/14/2018 12:30 PM (GMT -7)   
Have you ordered any sample supplies? I always liked trying the different products. Do you know what they gave you for now? Usually hospitals stick with one particular brand. Mine gave me coloplast but I switched around a ton. I used different supplies with my loop vs my end. In order to order samples, you need to know the size of your stoma in mm. You will learn more when you see your nurse. Good luck & let me know how it goes. You will get it quickly. It took me a few meetings, and then once I did it myself, I never felt like I needed the nurse again. Actually I opted against having a nurse after step 2. I already knew how to change the wafer/pouch. I didn't feel like having a schedule of seeing someone.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 624
   Posted 1/14/2018 2:59 PM (GMT -7)   
Got supplies yesterday from hospital. Changed everything right before I left. Visiting nurse came today. Will change it Tuesday when visiting nurse comes next. She will give me or order me more supplies then. Not sure of brand I got. I know about measuring Stoma. NSSG what's difference between loop vs ileo??

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4886
   Posted 1/14/2018 3:37 PM (GMT -7)   
Usually your surgeon’s office writes the scripts. If the visiting nurse is an NP then she can write the script for supplies.

Most people like the coloplast brand of ostomy supplies the best. I really like their accessories, they help stop leaks and makes like easier with an ostomy.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 624
   Posted 1/14/2018 4:59 PM (GMT -7)   
Thanks 1905. Should learn more this coming week about supplies

songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3586
   Posted 1/14/2018 6:14 PM (GMT -7)   
Hi Champ! Also - I do a whole lot better if I eat mini-portions and then have more an hour or two later. A normal helping of food all at once gives me discomfort and slight nausea. Actually, I don't have a huge appetite, so it's not an issue.... but today hubby and I had quiche for lunch and then half a donut for dessert. Ugh, I felt like crap for a few hours. If I'd waited till mid afternoon for the donut I likely would have been fine.
Age 61. Diagnosed UP 1983, UC 1986
Step One surgery on 12/28/17.
Prior meds: sulfasalizine, Asacol, Delzicol, Lialda,
6 MP, Humira.
Metamucil - 2 doses/day for 34 years.
two hips replaced thanks to pred.
Bentyl as needed as of 8/31/17

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 624
   Posted 1/14/2018 6:29 PM (GMT -7)   
Song my Drs Stoma nurse said to me don't eat like a New Yorker where we inhale our food. I'm one of 5 big boys. We inhaled our food.My father called us his Irish Cockroaches Have to eat smart as u say. Small portions. Now my incision is from top of stomach to below belly button so eating too much can push against the 20-25 staples I have which wouldn't be good. I had croissant this morn with half glass of choc milk. Think it was too much. Had discomfort good part of day. Maybe half croissant is best. I never eat breakfast. Eat a light lunch and inhale dinner. Can't do that anymore. . How is your liguid retention doing?? Dr put me on Imodium bc too much liguid in stool. Dehydration can set in quick. Have to monitor stool amount each day. Good luck with your journey

Bull101
Regular Member


Date Joined Feb 2015
Total Posts : 478
   Posted Yesterday 8:38 AM (GMT -7)   
Champ, end ileo is what you have currently, I believe it's at the bottom of your small intestine and the transit time is slower. a Loop ileo is in the middle of your small intestine and has 2 openings (1 to the stomach and 1 to the jpouch that will be created) you will have the loop ileo after they create the jpouch. For 2 step surgeries, you only ever have the loop never the end ileo. Loops transit time is faster and more liquid as far as I understand.

Hope that answers your question.
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