I am not sure I understand anything they told you, or you think they are telling you. If you're responding to remicade, you will stay on it until you stop responding, or flare up again, it could be years. Even in the case of a flare up, you will continue remicade, change the frequency or dosing, and possibly take steroids and other meds to attempt to continue remicade. If you do not respond, you will likely have to wait until you know for sure you're not responding. They can run tests to see why this may be the case, but some people show no signs and just have no improvement. In that case, they may let you try one more anti-TNF, like Humira, but the chances of responding to that after being a non-responder to remicade, is less likely. If you also do not respond to that, you would probably move on to entyvio at that point. You have about
a 50% chance of responding to that drug. Xeljanz is a trial drug. If you live near a place where someone is conducting the trial, you can try to get into it. but i think you would have to wait until you were off biologics for a few months before being considered a candidate for the trial. That's how the trial here was anyway, and I opted for surgery because I didn't want to have to worry about
expensive drugs, hospitals, infusions, diets...
Moderator: UCCurrently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish