Just curious, how often do you tend to get a colonscopy done or how bad do you let things get before going for one?
When I was first diagnosed I was having one every year or when things got bad. But now I'm kind of wondering at what point is it excessive. I've had results ranging from full remission to full flaring during the scopes and for the most part my treatment is always based on my symptoms.
It would seem to me the main reason to get a colonoscopy when symptoms are only mild would be to determine if perhaps inflammation is going on that you're not feeling.
That's kind of where I am now. My last scope was Fall of 2016 so it's been almost a year and a half. I'm only 26 but it seems they recommend people with IBD have one every year. Having said that, I have seen the studies showing complications with colonoscopies and while they are rare they're not THAT rare (if I recall, 1-2%).
As of right now....I am on the meds/supplements shown in my signature (mostly just mesalamine). If 0 is perfect and 10 is a horrible flare I'm at a 1-3 most days. Kind of constipated and bloated, occasional cramps, have seen some blood on the stool 1-2x total in the last month due to holiday junk binges but very much livable. My hs-CRP is only 0.3. My ESR was only 2 (scale 0-15). My ANA titer was negative. My only concern is that the cramps I am getting, while minor, are significant and I wonder if I am having some inflammation going on that I'm not particularly aware of that could be worse than it seems.
More importantly, wondering if that potential inflammation warrants going through a colonoscopy and if it will even change treatment (for example if they just show mild inflammation I'm not going to all of a sudden jump up to new medications and I think my current 5000mg Pentasa is already the max dose).
Anyway, long winded lol, would love to hear your thoughts