Posted Today 4:02 PM (GMT -7)
I am new to the group. I was diagnosed in November with severe colitis. I had a c diff infection prior too that put me in the E.R. It was also diagnosed with HPV. I had a condyloma on my anal gland with a papiloma on my groin along with several polyps.
After getting over the C Diff which was no fun at all, I spoke with my GI and he discussed my options with a colon rectal surgeon. They said I should probably get those removed. I agreed. I opted for surgery to remove everything they could. They removed the papiloma and condyloma and whatever polyps they could get to. That was in mid December.
I have been on Lialda since I was diagnosed. I take lomitil for those times when going 30 times a day is just too much. I have been through the gambit with steriods, flowmax (UT issue that was found as well) along with another 12 meds. You all know the routine.
Well, of course the Lialda and meds did not work. They put me on Humira (it should be called Chimera.) I took my second course today. I had the loading dose two weeks ago. It does nothing but nullify my psych meds for anxiety, OCD, insomnia and depression. I am just starving myself now. That seems to be the only relief. I have scoured the net as everyone here has. I am in that acceptance stage that my life is changed. The hard part with acceptance and UC is that there still is no relief. Again, everyone here gets that. I am just starting my journey with this terrible disease, and I surely appreciate everyone here. I have learned so much from the forum.
Currently, I have little faith in Humira as you might have guessed by now. I have lost about 40lbs since mid November. I will probably lose another 40 more. I have started food journals over and over, but I just find that starving myself is really the only relief that I have had with UC. I am scheduling visits with both a nutritionist and psychologist to get a handle on everything. I guess you can say that I feel the mental health aspect to my condition is very important to me. I plan on going to a plant based diet.
When it comes to nutrition, I am now realizing that I have to be more pragmatic. It is just the new normal I guess. I know there are a lot of remission stories here in this forum. There are a lot of great resources too. I look forward to being part of the community. I wish everyone here a thought of better days to come.
Thank you so much for the outlet, support, advice and resources. Have a super day.