Posted 2/1/2018 11:51 AM (GMT -6)
A little background:
I was diagnosed with UC in 2001 when I was 11. Hospitalized twice for two bad flares (Sept 01 and June 02). Finally found a combo of meds that worked. Asacol and Azathioprine. I had the beginnings of a flare around Aug 02, but an infusion of remicade stopped it in its tracks. I went into remission and had no symptoms for 15 years.
In December, a week before Christmas, I got a cold that lasted about a week with a bit of a lingering cough. I was having some loose stools, but I thought it was just because my body was out of whack from the cold. I also had a Squamous Cell Carcinoma (skin cancer) excision surgery scheduled for the day after Christmas. I have the surgery and my dermatologist gives me an Rx for Amoxicillin 1 capsule 2 x day. I notice that I’m still having loose stools, so I google stuff. Turns out Amoxicillin can cause diarrhea. about a week after I started taking the antibiotic, the frequency and urgency of BMs increased. I was going around 20 times a day. I knew something had to change. I ended up calling the dermatologist at about the 2 week mark after my surgery. She said go ahead and stop the antibiotic since I was having side effects. I called my GI right after to see what they thought. Nurse said it can take up to 3 days for antibiotics to get out of system. Well, nothing improved. I already had an appointment for my annual visit set up for a week later. My GI had me do a C Diff stool sample. I also had to go get my stitches out that week.
Day of appointment my GI tells me the C Diff test was negative, but that my symptoms could still be related to the antibiotic. She had me do blood work that day to see what my levels were. She told me to take a half dose of Peptobismol chewable tablets. So, I went home and took a couple tablets that night and about 10 total over the next 48 hours. It helped with the frequency, but that’s about it. My blood work came back and showed a high Sed Rate, which means inflammation, but everything else was normal. She told me to stop the Pepto and to start budesonide.
So, I started taking the budesonide about 2 weeks ago. The Rx said take 3 capsules by mouth every day. I assumed that meant 1 capsule 3 x day. I found out about 5 days later when I called the GI nurse again that I was supposed to be taking 3 capsules 1 x day. And she said budesonide can take about 2 weeks to see any significant improvement, so I’m not sure if that timeline got pushed back another week or not.
I still haven’t noticed any improvement from when I had my appointment or from when I started the budesonide. I’m still have loose stools and average of 10 times a day and I’m waking up in the middle of the night have to go as well. I have some abdominal discomfort when I have a BM. I’ve got low appetite and low energy and I’m extremely frustrated because I can’t do anything or go anywhere because I have to be by the toilet since I never know when I’ll have to go. Not that I want to go anywhere right now with all the flu cases happening. I seem to get a reprieve from going from 1:00 pm to around 5 or 6:00 pm. But then it just starts again. And it’s hard because it’s difficult to explain what I feel because it changes throughout the day and each BM can feel different. Ugh
I don’t know what to eat either because foods to eat for inflammation seem to be the complete opposite of foods to eat for diarrhea. The nurse said stay away from dairy, spicy, and greasy foods. I don’t like spicy foods so I don’t eat that anyway. I try not to eat greasy foods anyway, so not much help there. Dairy is kind of an obvious no-no, but the hardest for me because I can’t eat cereal or cheese or yoghurt. And drinks is hard right now too. I usually drink flavored sparkling water, but the carbonation can cause gas. I’ve been drinking Powerade Zero and some clear sodas like Diet Ginger Ale and Sprite Zero (their carbonation isn’t as strong to me) because plain water was kind of bothering me. I’ve started putting some crystal light type flavoring in the water because that helps me drink more.
Has anybody ever had antibiotic induced colitis before? If so, how long was it until symptoms went away?
For those who have taken budesonide, was 2 weeks how long it took to take effect for you?
Thanks in advance for any advice
Diagnosed September '01 : Remission since July '02
Asacol HD- 2 pills 3xday
Azathioprine- 75mg - morning
2 Adult Gummy Multi-Vitamins / day
Feosol (Iron supplement) 1 tablet as neeeded
"I may be changed by what happens to me, but I refuse to be reduced by it." -- Maya Angelou
"Without suffering there would be no compassion." -- Mandy Moore, A Walk to Remember