"I need to know what sort of risks I’m taking? What sort of side effects will I experience with Remicade? Will it give me acne like prednisone (worst acne of my life my face litterally looked like a pizza)."
No acne from Remicade. I got horrible acne on Prednisone too!
I've had zero side effects from Remicade despite being on it since 2012. The most common side effects are temporary during or within 48 hours of the IV infusion. All minor things that they give you pre-medications of tylenol and an anti-histamine for (fatigue, rash, headache, increased heart rate, etc.). They're temporary and go away fast and a nurse monitors you during the IV infusion. There's rare but serious side effects as well. There's a good presentation and read from the Crohn's and Colitis Foundation of America that talks about
the risks versus benefits of taking these medications:
"Can I remain on this drug for a long time?"
Yes, a few of the moderators have been on remicade 8-10 or more years. Take it as long as it works well for you.
"Is there anything else I should know?"
They weigh you when you get there (weight-based drug), give you pre-medications of tylenol and an antihistamine (either claritin or benadryl); claritin is non-drowsy, benadryl is drowsy and you might take a nap if you get it. I always ask for claritin. The IV experience is nothing to worry about
, all you feel is a small needle-prick when they set the IV. The nurse checks your temperature and pulse periodically. The IV infusions take 2-3 hours where you essentially just sit in a chair and wait. I feel no sensation while getting Remicade. It is boring so bring entertainment: cellphone, book/kindle, headphones to listen to music, etc. Most infusion centers offer snacks and drinks to you while you wait. They remove the IV, put a band-aid on you and you leave. I'm fine afterwards and can drive myself home. Some say they are fatigued for a number of hours after the IV infusion, so you might want to plan a low-key rest of the day just incase you need to nap/relax.
Moderator Ulcerative Colitis
John, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasaUC experience: wakeup with noisy bowels so no lingering in bed, soon after poop with discomfort/pain/mild-nausea, eat something, poop, get dressed, poop, leave in car and worry whole drive about more...
Post Edited (iPoop) : 2/22/2018 6:58:55 AM (GMT-7)