I'm sorry to hear you developed UC while pregnant. I had the same happen to me but unfortunately it went undiagnosed for a long time - proctologist kept on saying it was "just hemorrhoids" and was confused as to why I had so much pain...
Anyway, I thought I focus here on the actual birth and share my experience with you since I gave birth during a UC flare-up as I had no idea I had it...
My symptoms started possibly around my 6 month of pregnancy, loose stools and diarrhea but the Dr. said that it's normal for pregnant women to have diarrhea so I didn't worry. Around week 37 I felt like my pelvis was cracking
open every time I went to the bathroom and I felt little I had a cattle prod in my rectum (sorry for the language but there is no other way I can describe this). Once I passed out from the pain while pooping
My advice to you is don't let it get this far if you can. How? I don't know anything about
your life but if you work and have stress try to scale back on all of those even if it is financially difficult. Once your UC gets really bad it's harder to come back.
I had a natural, unmedicated birth, so it's possible. It was really hard because I think that I was having birth contractions and intestinal spasms at the same time. I did Hypnobirthing for my daughter's birth and I believe it really helped. Here is what happened to me after the birth. I hope none of this happens to you but I am sharing in the hopes that you might be able to better manage your UC and the toll it takes on your body and family.
Right after the birth I was in the bathroom and felt a little gassy, next thing I know the entire floor is covered with a beige mucus. This is such a clear sign of UC and I can't believe no doc caught it... Anyway, I was not able to control my bowel movements for three months. I spent these months in adult diapers (waaaay better than cleaning your clothes all the time). I got a big pack of Depend (US brand) and found that they are better than using pads after birth anyway.
I breastfed my daughter until she was 18 months. I can probably write a book about
medications/breastfeeding and UC, so if you have any questions even after birth just send me a note or reply here. I would say that 50% of the breastfeeding was done in normal places and the rest on the toilet (yep, you read that right). I had a nursing pillow and would just sit on the toilet and breastfeed my hungry baby. It's possible to do if that is what you choose to do (don't let anyone tell you what you should or shouldn't do - the choice is yours and the Mom always knows what's best for her baby).
I battled with UC which was severe with deep ulcers with natural supplements, "mild" medications and so on for almost two years. I did take Mesalamine (Asacol) and all the suppositories you can imagine including hydrocortisone but that did nothing for me. I consider those the "mild" ones. Then last year in August I was rushed to the ER via ambulance and stayed for 15 days. I had developed pancolitis (when your whole intestine is inflamed) and was between life and death for 3 days. I got on Remicade (brutal biologic) which helped 50% but I am a former CFS/ME sufferer and Remicade obliterates your immune system so I am having some CFS symptoms again. Also, after going from 5mg/kg to 10mg/kg I got much worse on Remicade and had to swap to Entyvio. I'm still in bad shape but meanwhile my girl is two years old and I love her to the moon. Giving birth and being a Mom with UC is brutal but on a positive note it does make you stronger and I am grateful for every day that I am alive.
If there are any other questions that come up, please send a note. I don't think there is anything as TMI when it comes to sharing experiences about
UC. There are some days when I'm really desperate but then I look at my little one and everything just falls into place.
This road you're on won't be one of medical issues only. It's a very emotional journey and my advice to you is to always try to see the things you have as opposed to the things you don't have or are missing out because of the condition. I have to tell myself that every. single. day.
I do hope that you will never develop a full flare but now that I and a lot of people on this site are here for you if you need us!
This is the first time I ever post something on a forum but I wanted to add a little note of gratitude for everyone at HealingWell. I can't recount how many hours I spent here reading advice from other UC sufferers and it helped me a lot!
Sending you all a lot of love and well wishes!
Former CFS/ME & Fibromyalgia sufferer. Symptom-free for 5 years. Fibromyalgia completely gone with immunizeLABS PainRelief.
Developed UC. Past treatments: Chinese herbs, Ayurveda, acupuncture, meditation. Meds: Prednisone almost killed me, Mesalamine, hydrocortisone enemas did nothing for me. Hospitalized with severe pancolitis. Remicade helped 50% then stopped working. Currently on Entyvio.
Post Edited (HealedMommy) : 2/22/2018 12:23:14 PM (GMT-7)