After one of those mini flares in September 2017 I’ve been put on hydrocortisone suppositories. I’ve been using them ever since – for past three month I’ve been doing them every fourth day (once a week basically). He also said that he is a little concerned with the prolonged use of the hydrocort suppositories, but at this point it is a lesser evil out of other options that are out there.
My GI brought up immunosuppressants yesterday, but said that he thinks I am not yet there. To be honest I am super scared to take that step and don’t want to go there until I absolutely have to.
If you cannot get off the steroids then I would definitely go for the immunosuppressents. You've been struggling, and nothing is working. And that's when I would say let's go up a class of UC medications and get rid of the steroids.
I've been on 6MP since 2012 and have yet to experience a side effect on them. Everyone is a little scared when considering going on them, myself included. In the end the benefits far outweigh the risks. You're talking very small odds of side effects.
Moderator Ulcerative Colitis
John, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasaUC experience: wakeup with noisy bowels so no lingering in bed, soon after poop with discomfort/pain/mild-nausea, eat something, poop, get dressed, poop, leave in car and worry whole drive about more...