9 weeks post op-2nd surgery April 9th

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3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 1028
   Posted 3/10/2018 6:23 PM (GMT -6)   
Hows everyone doing? good i hope.Well had check up yesterday with surgeon and stoma nurse,everything looks good.Bag is easy to change,can usually go anywhere from 4-6 days before change is needed.Was concerned that i went back to work after 4 weeks[i'm a contractor in New York].Dr looked at area around Stoma and said it looks fine so that was a relief.I haven't lifted anything heavy but what line do u not go over lifting stuff??? Guess i haven't gone over line yet which is good.Scheduled 2nd surgery which I'm happy with,time does go quick which I'm glad. Trying to eat the right foods to bind me up some.Always have immodium in case stool is too loose.Overall surgery has been great,no more anxiety-im free of the BS that comes with this dreaded disease.Any of you that aren't sure if surgery is right thing to do?? It has been the right thing for me.No more Meds,No more worries about pooping in my pants,no more wheres the nearest toilet.Good luck to u all

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 13220
   Posted 3/10/2018 7:17 PM (GMT -6)   
Sounds like you're doing well, I'm happy for you!
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

UC experience: wakeup with noisy bowels so no lingering in bed, soon after poop with discomfort/pain/mild-nausea, eat something, poop, get dressed, poop, leave in car and worry whole drive about more...

hateuc
Veteran Member


Date Joined Jun 2010
Total Posts : 2354
   Posted 3/10/2018 9:31 PM (GMT -6)   
Great 3timechamp!! Glad all is going well!! Hasta Levista UC!
B
UC diagnosed in 2010 but had prob. in 2009
2 Lialda/day Rowasa nightly, periodic anucort supp, Cortifoam as needed(needed more than I would like)
VSL#3, slippery elm
Metamucil capsules
Trying Gluten free (why not!)

quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 3/11/2018 12:35 AM (GMT -6)   
Awesome to hear things are going well!!!
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg / Amlodipine 5mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 15 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 5162
   Posted 3/12/2018 9:52 AM (GMT -6)   
You will be healthier going into this surgery but this is a much larger surgery, they will be working on you a lot longer and doing more things. Be prepared to need more time to recover from this surgery and you may not be able to lift stuff as soon afterwards. I’m also assuming that you’ll need another open or partial open surgery.

The dehydration and blockage risks ar greater with this surgery.

I’m not trying to scare you, we’ve all made it through this surgery but it’s better to know about this stuff going into it. I remember that you overdid it after your first surgery and almost hurt yourself.

I’m glad that you are feeling well.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

momto2boys
Veteran Member


Date Joined Jun 2013
Total Posts : 2025
   Posted 3/12/2018 10:29 AM (GMT -6)   
Glad all is well, make sure you keep taking it easy!
42 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 2 Lialda + sfRowasa every other night- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

Michelejc
Forum Moderator


Date Joined Jan 2011
Total Posts : 2172
   Posted 3/12/2018 10:44 AM (GMT -6)   
Glad you are doing well!!
MODERATOR-UC FORUM
59, female - diagnosed with moderately severe proctitis/mild diverticulosis
Lialda - one a day
6mp - 50 miligrams
VSL#3 DS - 1 pack a day or as needed
Zocor - 40 mg
Calcium with Vitamin D
Glucosamine
Magnesium
B-Complex

"Fly under the radar" - Dad -

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 1028
   Posted 3/13/2018 7:03 AM (GMT -6)   
Keith didn't hurt myself at all. Just mentioned that Dr looked at Stoma area and no sign of hernia. I'm being very careful not to lift anything heavy

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16732
   Posted 3/13/2018 10:15 AM (GMT -6)   
Happy to hear you're still doing so well & that you're looking forward to the future with a jpouch! You are smart to take it easy.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 1028
   Posted 3/13/2018 10:41 AM (GMT -6)   
NSSG-2nd surgery seems little less complicated then first especially since i had 35-40 staples on 1st surgery.I will have new small incision above groin area,i will have new stoma,upper intestine gets connected to my butt[maybe lil sore after surgery?}.Will have a drain Dr said.What else can i expect?? Is recovery easier then 1st??? [remember i had large incision on 1st so my thinking is recovery is easier]

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16732
   Posted 3/13/2018 11:30 AM (GMT -6)   
I didn't have an open procedure, but for me, the first was the hardest. Some people think #2 is just as difficult, or worse, so I will be interested to hear your opinion, but for me, it was easier. I wasn't as sick for #2, being stronger helps heal faster. Step 2 is complicated internally. This is the step where they build the jpouch. The pouch is then connected up to the new stoma. The loop ileo has two ends, but you would never know unless you really went nuts trying to figure it out. It functions similarly to the end, mine was more difficult and faster transit. The part that the pouch is made from, will be down at the bottom, so it is no longer part of your system (until you reconnect). That part is valuable because it gives longer transit, and helps to absorb fluids. Without it, things are less formed, and transit is fast. Dehydration is more common. You will be fine, you've done so well asjusting. I had two small JP drains just under my incision. They stayed for a day I believe. I think I was out of the hospital in 3 days, some people need to stay longer. i didn't have a home health person after step #2. I figured, I already had supplies and knew how to use them. I didn't want to be bothered.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 1028
   Posted 3/13/2018 12:05 PM (GMT -6)   
Cool.Yea I'm feeling good now.Weight up to normal.Will bring bunch of gatorade this time to hospital

Mak37
Regular Member


Date Joined Jan 2018
Total Posts : 313
   Posted 3/13/2018 1:32 PM (GMT -6)   
Glad to hear you are doing well, hope the recovery after second surgery goes smoothly for you!
Diagnosed at 7, in the gray area between crohns and UC. Surgery on Jan 27, 2018 #nocolonstillrollin

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 1028
   Posted 3/14/2018 7:47 PM (GMT -6)   
Mak when r u having next surgery?? how u doing now?

Mak37
Regular Member


Date Joined Jan 2018
Total Posts : 313
   Posted 3/15/2018 12:14 AM (GMT -6)   
They won’t talk to me about another surgery because they aren’t sure if it’s crohns or UC, they also won’t do it because I’m 20 and they don’t want there to be a lot of scar tissue in my pelvic area because it makes it hard to have children... I am doing great though! The inside of my scar is sore if I try to use my abs and I get a burning sensation every now and again, pretty sure it’s just the nerves healing themselves but I’m out hiking and everything, couldn’t ever do that before the surgery!

** I am still trying to taper prednisone though, and I’ve felt unwell since going under 10, hopefully I feel better when I’m all the way off though!
Diagnosed at 7, in the gray area between crohns and UC. Surgery on Jan 27, 2018 #nocolonstillrollin

Post Edited (Mak37) : 3/14/2018 11:17:51 PM (GMT-6)


3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 1028
   Posted 3/15/2018 10:01 AM (GMT -6)   
Gotcha.Hope for the best

RunJerRun
Regular Member


Date Joined Oct 2017
Total Posts : 72
   Posted 3/15/2018 5:45 PM (GMT -6)   
That is exciting news! The 9th will be here before you know it. I hit my three week post surgery mark today. Recovery has been great. I went back to work part time a few days ago. I have a desk job and its been great to get out of the house (so sick of Netflix and sweat pants). I had my follow up appointment with my surgeon yesterday. He said the ball was in my court as far as if or when to go forward with step 2. I told him after having two major surgeries during the past 4 months, I need to take a break and build my health back before I make any decisions (as well as build my sick leave back up).

So for now, just enjoying getting stronger every day and enjoying food again. I’ve gained 8 pounds since surgery (only 10 more to go until I’m at my “normal” weight. I’m also on my final week of prednisone! I’ve tapered down to 2.5mg and will be done next Monday. Hurray!!!
42 year old male
DX: Sept 2017 -Left Side UC - Symptoms since Jan 2016
Nov 2017 - Diagnosis Kidney Cancer, Partial Nephrectomy Surgery.
Dec 2017 - Trip to ER, 5 Days in Hospital- DX: Pancolitis
Feb 22, 2018 - Surgery, Step 1 - Subtotal Colectomy, Ileostomy
Current Meds: Only Prednisone, Taper currently at 10mg
Tried w/ no luck: Lialda, Aspiro, Uceris, Enemas, Entyvio, Diet,

StillsufferingUC
New Member


Date Joined Mar 2018
Total Posts : 4
   Posted 3/15/2018 7:21 PM (GMT -6)   
So happy for you. I'm considering the surgery at this point. I'm in constant pain and meds are doing nothing. I can't take it anymore. What kind of doctor does this surgery?

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 1028
   Posted 3/15/2018 9:34 PM (GMT -6)   
Colorectal Surgeon

valli1234
Regular Member


Date Joined Aug 2017
Total Posts : 192
   Posted 3/16/2018 10:26 PM (GMT -6)   
3timechamp that's great I am glad you are feeling well.
47 year old female mother of 4
UC since 1993 remission off and on
The last flare-up was 2008 till 2009 then remission till June 2017
Hospitalized November for 5 weeks removed my colon Dec 12
Anemia 4 blood transfusions in those 5 weeks.
J pouch scheduled for the end of March
prednisone, asacol, pentasa,encort enemas, steriod enemas, hurmia all failed
Proctitis Jan 2018

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 1028
   Posted 3/17/2018 7:31 AM (GMT -6)   
Feeling great.No complications,quality of life much better then before.

songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3696
   Posted 3/17/2018 8:13 AM (GMT -6)   
Good to hear, Champ!
Age 62. Diagnosed UP 1983, UC 1986
Step One surgery on 12/28/17.
Surgery: planned. The colon cancer they found: a surprise.
Prior meds: sulfasalizine, Asacol, Delzicol, Lialda,
6 MP, Humira, Metamucil
two hips replaced thanks to pred.
Bentyl as needed as of 8/31/17

irish4me
Regular Member


Date Joined Nov 2011
Total Posts : 161
   Posted 3/31/2018 9:11 PM (GMT -6)   
Glad to hear you're doing well!
Dx 2011, Flared Sept 2017 - severe pancolitis
4-Lialda
Rowasa - nightly
Imuran 100mg
Humira
Multi-vitamin, Calcium, Vit. D

marcell
Regular Member


Date Joined Mar 2018
Total Posts : 128
   Posted 3/31/2018 10:15 PM (GMT -6)   
Don't you guys have any problems with vitamins and bone loss?

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 1028
   Posted 4/1/2018 9:05 AM (GMT -6)   
No i don't, i take a vitamin every day.No bone problems even though I've been on Pred on/off over 32 yrs
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