Anyone on here with severe UC ever been tested for cytomegalovirus?

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Canada Mark
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Date Joined Jan 2013
Total Posts : 3495
   Posted 3/10/2018 11:11 PM (GMT -6)   
Just scanned these and became curious is all. I know some with severe UC run out of options fast, which is a horrible situation to be in.

(2016) - /
(2017) - /

Seems it's a bit up in the air if it makes things worse or not, but I was just curious if someone on here was actually tested and if so, did they try antiviral treatment?

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Date Joined Jun 2013
Total Posts : 1934
   Posted 3/11/2018 8:40 AM (GMT -6)   
no, never been tested or diagnosed with CMV to my knowledge, but these are an interesting pair of articles!
42 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 2 Lialda + sfRowasa every other night- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

Regular Member

Date Joined Jan 2018
Total Posts : 303
   Posted 3/11/2018 8:44 AM (GMT -6)   
I was tested every time I had a colonoscopy
Diagnosed at 7, in the gray area between crohns and UC. Surgery on Jan 27, 2018 #nocolonstillrollin

Uniform Charlie
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Date Joined Jul 2015
Total Posts : 622
   Posted 3/11/2018 2:58 PM (GMT -6)   
This article may be referencing the same study but I posted this a month or so ago.

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Date Joined Jul 2016
Total Posts : 519
   Posted 3/13/2018 2:03 AM (GMT -6)   
CMV is hard to diagnose. The colon biopsies have to be taken from a site where CMV is active. The antibody test is a good standard to see if CMV is anywhere in the body. It's a pretty nasty virus sad
DX left-sided UC 2015, 3 fulminant flares since then
Started FMT clinical trial Feb 2018
Dx w/mycobacterium avium paratuberculosis (MAP) Sept 2017
Stopped AMAT @ 6 weeks due to intolerance of meds
Others: Entyvio every 4 weeks, Low Dose Naltrexone 3mg at bedtime, natural ferments
Current status: lingering rectal bleeding, otherwise healthy

New Member

Date Joined Feb 2017
Total Posts : 15
   Posted 3/13/2018 4:58 PM (GMT -6)   
I have not been tested lately, but had the CMV 15 years ago. It was like a 5 week trip to hell and back. I didn't receive any anti-viral meds, was told just to drink Gatorade and take ice cold baths. Lost 30 pounds.

New Member

Date Joined Mar 2018
Total Posts : 11
   Posted 3/16/2018 12:56 PM (GMT -6)   
Yep. I was in the hospital for nearly two months because of my UC symptoms. They found I also had CMV and put me on Valcyte for a few weeks to treat it..
27 years old/Ulcerative Pancolitis/Diagnosed in December 2017/Admitted for a month and a half into hospital care due to extreme symptoms.

Treatments given:
Prednisone, Remicade, Tacrolimus, Valcyte, Blood Transfusion, Celebrex, Neurontin, Pantoprazole, Bentyl, Entyvio.
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