I think I'm flaring

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Andrina
Veteran Member


Date Joined Aug 2011
Total Posts : 3154
   Posted 3/11/2018 1:27 AM (GMT -6)   
I've been in remission since spring 2013. I've been having mucus and normally it doesn't faze it as it goes away quickly. Just now I came from the restroom after I bled. Mucus too. I'm on azathioprine 150 mg I recently upped my dosage because I've been gaining weight. I'm 65 kg. I'm also on Wellbutrin and Zoloft. Added CCherbal and cortisone enemas. Three days ago after I had diarrhea I took some immodium. Nothing since until just now. I don't know what to do anymore. As funny as it sounds I feel like I got unstable when I upped my dosage but how can this be. I'm lost.
UC since 2002
Was on Remicade and successfully made the step back to Azathioprine
Currently on 150 mg Azathioprine, Wellbutrin 150 mg, Zoloft 50 mg, CCherbal (as needed), Algaecal
Scope on 6/3/2016 showed no inflammation but scarring
Dexa scan on 10/09/2017 showed decreased bone density, again...

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 13246
   Posted 3/11/2018 12:57 PM (GMT -6)   
Sorry to hear Andrina. Unfortunately, we all do flare eventually. I'd just recommend the standard flare protocol: get a stool test for infectious causes, and contact your gasteroenteroligis asap. Best to nip-it-in-the-bud and catch it early, rather than wait until it's a 5-alarm-flare.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

UC experience: wakeup with noisy bowels so no lingering in bed, soon after poop with discomfort/pain/mild-nausea, eat something, poop, get dressed, poop, leave in car and worry whole drive about more...

Poppie
Veteran Member


Date Joined Feb 2014
Total Posts : 2152
   Posted 3/13/2018 4:04 PM (GMT -6)   
Hi Andrina, I hope you are okay.

It is frightening when you realise you may be about to flare.

Keep us posted, let us know how you are.
Samantha
Stopped smoking Jan 2013. Diagnosed Left sided UC, 8th Feb 2014.
Gluten, Dairy, Sulfite, Salicylate, and Histamine intolerant.
Home FMT treatment in July 2016 to ward off reoccurrence of C DIfficile.
Failed Pentasa, Azathioprine and finally Methotextrate due to allergies/intolerance. Taking Humira. Have finally come off Prednisone Yay!!!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 3/13/2018 5:22 PM (GMT -6)   
I hope you're not and it's just a minor blip. I know how anxious you get. It is possible that you will get through this and not have a flare. How long have you been doing the cort enemas? Can you add something to do 2x daily rectals if things don't improve? When I saw you this my heart kind of sunk because I hate to see you stressing.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

Andrina
Veteran Member


Date Joined Aug 2011
Total Posts : 3154
   Posted 3/14/2018 7:29 PM (GMT -6)   
I'm still not doing so well. Urgency and mucus. At least I had no more bleeding so far. I was supposed to see my GI today but my husband had an accident and I needed to go there so I missed my appointment. Surely doesn't help.
UC since 2002
Was on Remicade and successfully made the step back to Azathioprine
Currently on 150 mg Azathioprine, Wellbutrin 150 mg, Zoloft 50 mg, CCherbal (as needed), Algaecal
Scope on 6/3/2016 showed no inflammation but scarring
Dexa scan on 10/09/2017 showed decreased bone density, again...

Andrina
Veteran Member


Date Joined Aug 2011
Total Posts : 3154
   Posted 3/15/2018 10:12 PM (GMT -6)   
Nevermind I'm bleeding again. I should have had an appointment yesterday but we got into ab accident (only car damage nobody got hurt) but that made me miss my appointment. The next available one is in a month.
UC since 2002
Was on Remicade and successfully made the step back to Azathioprine
Currently on 150 mg Azathioprine, Wellbutrin 150 mg, Zoloft 50 mg, CCherbal (as needed), Algaecal
Scope on 6/3/2016 showed no inflammation but scarring
Dexa scan on 10/09/2017 showed decreased bone density, again...

Spring
Regular Member


Date Joined Jan 2017
Total Posts : 396
   Posted 3/15/2018 10:16 PM (GMT -6)   
That is a long time to wait. Can you get on a waiting list for cancellations?
36yr old mother of 3 Moderate Pancolitis 1/3/17. Hosp 1 week on Solumedrol, Delzicol. Apriso, pred, then switched to Balsazide 750 mg, and Uceris 9 mg 3 wks. Minor flare in August, flare since Oct 20. Acute pancreatitis from Balsalazide hosp. 2 days, Started Humira 12/15/17, reaction, Entyvio 1/12/18. 40 mg of Pred, still waiting for a change!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 3/16/2018 12:02 AM (GMT -6)   
Are the steroid enemas helping? How long have you been doing them?
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

Andrina
Veteran Member


Date Joined Aug 2011
Total Posts : 3154
   Posted 3/16/2018 6:06 AM (GMT -6)   
A good week now.
UC since 2002
Was on Remicade and successfully made the step back to Azathioprine
Currently on 150 mg Azathioprine, Wellbutrin 150 mg, Zoloft 50 mg, CCherbal (as needed), Algaecal
Scope on 6/3/2016 showed no inflammation but scarring
Dexa scan on 10/09/2017 showed decreased bone density, again...

Andrina
Veteran Member


Date Joined Aug 2011
Total Posts : 3154
   Posted 3/19/2018 7:52 PM (GMT -6)   
I'm starting uceris now. I will talk to my GI on the 27th and I will mentioned surgery. I will still give myself some time until some other issues are resolved and then I will make a decision.
UC since 2002
Was on Remicade and successfully made the step back to Azathioprine
Currently on 150 mg Azathioprine, Wellbutrin 150 mg, Zoloft 50 mg, CCherbal (as needed), Algaecal
Scope on 6/3/2016 showed no inflammation but scarring
Dexa scan on 10/09/2017 showed decreased bone density, again...

marcell
Regular Member


Date Joined Mar 2018
Total Posts : 128
   Posted 3/20/2018 10:16 PM (GMT -6)   
What happened to the whatsapp topic?

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 3/20/2018 10:46 PM (GMT -6)   
Unfortunately, i think it was deemed competition to some extent, and removed. Please be aware that this forum has the capability to have real time chat - it's under the chat tab on the top right.

We could meet there at a scheduled time. smile
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

marcell
Regular Member


Date Joined Mar 2018
Total Posts : 128
   Posted 3/20/2018 11:00 PM (GMT -6)   
notsosicklygirl said...
Unfortunately, i think it was deemed competition to some extent, and removed. Please be aware that this forum has the capability to have real time chat - it's under the chat tab on the top right.

We could meet there at a scheduled time. smile


Doesn't make sense. It was no competition. And the people are never in the chat.

Andrina
Veteran Member


Date Joined Aug 2011
Total Posts : 3154
   Posted 3/20/2018 11:09 PM (GMT -6)   
I didn't mean to cause competition. Sorry guys
UC since 2002
Was on Remicade and successfully made the step back to Azathioprine
Currently on 150 mg Azathioprine, Wellbutrin 150 mg, Zoloft 50 mg, CCherbal (as needed), Algaecal
Scope on 6/3/2016 showed no inflammation but scarring
Dexa scan on 10/09/2017 showed decreased bone density, again...

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 3/20/2018 11:30 PM (GMT -6)   
Not your fault. It's a gray area. I know people mention other sites and support groups, so I don't see too much difference, but I guess "promotion" of any site, is somewhat against the rules. Posting resources, like blogs or websites, is allowed, with the intent of providing information. Once it's considered promotion with the intent of drawing users, it is deemed spam. Even in the case of advocacy for proUC causes.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 13246
   Posted 3/21/2018 8:34 AM (GMT -6)   
I didn't delete it, there was a discussion among the mods on the other forums on HW and a decision was made to remove it. FYI there's healingwell chat function is still available, the Chat link (Up by Home, Calendar...Members and Help). Not getting much use but it is there and an option. I think many of us had forgotten about it, myself included.
/www.healingwell.com/community/chat/default.asp
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

"Don't make me angry. You won't like me when I'm angry." - Your colon

Andrina
Veteran Member


Date Joined Aug 2011
Total Posts : 3154
   Posted 3/27/2018 10:55 PM (GMT -6)   
I'll have scope on Friday.
UC since 2002
Was on Remicade and successfully made the step back to Azathioprine
Currently on 150 mg Azathioprine, Wellbutrin 150 mg, Zoloft 50 mg, CCherbal (as needed), Algaecal
Scope on 6/3/2016 showed no inflammation but scarring
Dexa scan on 10/09/2017 showed decreased bone density, again...

Andrina
Veteran Member


Date Joined Aug 2011
Total Posts : 3154
   Posted 3/31/2018 10:37 PM (GMT -6)   
Inflammation in the rectum, as expected.
UC since 2002
Was on Remicade and successfully made the step back to Azathioprine
Currently on 150 mg Azathioprine, Wellbutrin 150 mg, Zoloft 50 mg, CCherbal (as needed), Algaecal
Scope on 6/3/2016 showed no inflammation but scarring
Dexa scan on 10/09/2017 showed decreased bone density, again...

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 13246
   Posted 4/1/2018 8:54 AM (GMT -6)   
What grade inflammation: mild, moderate, severe?
Moderator Ulcerative Colitis
John
, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

You might have UC if walking the dog results in you pooping side-by-side in the bushes.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 4/1/2018 9:52 AM (GMT -6)   
I am sorry andrina. Hopefully it gets better quickly. What's the plan?
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

Andrina
Veteran Member


Date Joined Aug 2011
Total Posts : 3154
   Posted 4/1/2018 1:33 PM (GMT -6)   
They didn't say the severity. Plan is to stay on uceris and hydrocortisone enemas.

Edit: I just reviewed the report and it says mild inflammation.
UC since 2002
Flaring since March 2018
Currently on 150 mg Azathioprine, Wellbutrin 150 mg, Zoloft 50 mg, CCherbal, Tumeric 50 mg, Nicotine lozenges 4 mg, Probiotics
Scope on 3/30/2018 showed inflammation in the rectum
Dexa scan on 10/09/2017 showed decreased bone density but some improvement in the spine

Post Edited (Andrina) : 4/1/2018 9:19:15 PM (GMT-6)


Andrina
Veteran Member


Date Joined Aug 2011
Total Posts : 3154
   Posted 4/3/2018 9:25 PM (GMT -6)   
I'm not getting better although I'm on uceris and hydrocortisone enemas. I don't know what to do. Also my scope showed a semi-sessile polyp and I read online that it might be pre-cancerous? Can anyone comment on that? I need some help and encouragement.
UC since 2002
Flaring since March 2018
Currently on 150 mg Azathioprine, Wellbutrin 150 mg, Zoloft 50 mg, CCherbal, Tumeric 50 mg, Nicotine lozenges 4 mg, Probiotics
Scope on 3/30/2018 showed inflammation in the rectum
Dexa scan on 10/09/2017 showed decreased bone density but some improvement in the spine

Post Edited (Andrina) : 4/3/2018 10:02:00 PM (GMT-6)


TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8361
   Posted 4/3/2018 9:47 PM (GMT -6)   
pretty sure this won't help anything, and i;m sure you've already made note of it, but Wellbutrin and Zoloft both have diarrhea as one of many side effects -
dx'd with pancolitis 12/21/03
current supplements:vit D, vit K2, cal/mag - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

Andrina
Veteran Member


Date Joined Aug 2011
Total Posts : 3154
   Posted 4/3/2018 11:04 PM (GMT -6)   
TroubledTurds said...
pretty sure this won't help anything, and i;m sure you've already made note of it, but Wellbutrin and Zoloft both have diarrhea as one of many side effects -

I actually didn't know about that. I have been on this combination for years without any diarrhea issues. Thank you for letting me know though.
UC since 2002
Flaring since March 2018
Currently on 150 mg Azathioprine, Wellbutrin 150 mg, Zoloft 50 mg, CCherbal, Tumeric 50 mg, Nicotine lozenges 4 mg, Probiotics
Scope on 3/30/2018 showed inflammation in the rectum
Dexa scan on 10/09/2017 showed decreased bone density but some improvement in the spine

ambling
Veteran Member


Date Joined Feb 2011
Total Posts : 762
   Posted 4/3/2018 11:08 PM (GMT -6)   
The semi-sessile polyp shouldn't be of any concern. That is just the shape (slightly flattened).

Hope your inflammation stays mild. I think you will get it under control.
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