For anyone following this thread, the plot has thickened (pun kind of intended, as you’re about to see). I’ve been waiting for my gastro/cardiology appointments but in the meantime went for an abdominal ultrasound that I had to convince my doc to order. I’d been experiencing upper right quadrant pain that didn’t feel like my UC and worried me, so he eventually conceded. Turns out they found a blood clot in my liver!!!
So two trips to the ER total and a new Rx later I’m being told this is probably just the result of my body being in an inflamed state and is UC-related. Ironically the last time I saw my gastro doc he was happy the disease activity was mild and I didn’t need to see him for 6 months! I had NO IDEA UC could be so complicated, and this has honestly been a nightmare few weeks.
The moral of the story is to please trust your body, pay attention to how you’re feeling, and advocate for yourself! If I hadn’t had this ultrasound who knows what could have happened — I still don’t even really know now what this means for me... to be updated soon I hope!
Dx mild proctitis 2012; 25 cm moderate-severe inflammation Dec 2017.
Current meds: Salofalk suppository AM; Salofalk enema PM; Entocort enema PM (supposed to taper)
Suppléments: curcumin, Vit D, Calcium, B12
Diet: avoid gluten, dairy, red meat, alcohol, caffeine, sugar, and beans