When do you call the doctor?

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PamSmith
Regular Member


Date Joined May 2010
Total Posts : 238
   Posted 3/12/2018 9:50 AM (GMT -6)   
I have been doing well on 6mp+Delzicol. Then I had to change from Delzicol to Lialda. I have noticed increase in gas but yesterday I saw blood. I started Canasa(morning) and Rowasa(night). But should I call doctor? How do you approach flare? Do you try few things and wait or call doctor right away?

I am not sure at this point he will do anything different but wondering how everyone does. Thanks.
Current medication: 6mp 75mg/day, Lialda 2x2
Current supplements: multivitamin, VSL #3,Citracal, Vitamin D,Biotin
Diagnosed :crohn's colitis 2010 now changed diagnosis to Indeterminate Colitis(prometheus serology sgi test)

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12493
   Posted 3/12/2018 10:22 AM (GMT -6)   
I'd contact your doctor and let him/her know you saw blood and have added back canasa and rowasa back. He/she might want to run some labs (CRP or FCP) to see what's going on, and measure your inflammation.

Whatever it is, it sounds like you caught it early and a few weeks of upping your doses and then tapering could be enough to beat a minor blip like that.

How long have you been on Delzicol now?
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

UC experience: wakeup with noisy bowels so no lingering in bed, soon after poop with discomfort/pain/mild-nausea, eat something, poop, get dressed, poop, leave in car and worry whole drive about more...

PamSmith
Regular Member


Date Joined May 2010
Total Posts : 238
   Posted 3/12/2018 10:38 AM (GMT -6)   
Thanks. I never thought of blood test. I will call his office.

I have swiched from Delzicol(4.8 gram) to Lialda(4.8 gram) since January. I was so concerned as I was doing well and didn't want to mess it.
Current medication: 6mp 75mg/day, Lialda 2x2
Current supplements: multivitamin, VSL #3,Citracal, Vitamin D,Biotin
Diagnosed :crohn's colitis 2010 now changed diagnosis to Indeterminate Colitis(prometheus serology sgi test)

quincy
Elite Member


Date Joined May 2003
Total Posts : 30585
   Posted 3/12/2018 11:01 AM (GMT -6)   
I wouldn't call the doctor until after you've been on your rectal reginen for a week or more and don't have any improvement.

I also don't see the point of having other blood tests since you're obviously flaring.

I do, however, suggest you go through tapering to maintenance with the rectal meds.

Keep us updated whatever you decide and how you're doing..
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg / Amlodipine 5mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 15 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!

Post Edited (quincy) : 3/12/2018 11:05:10 AM (GMT-6)


TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8334
   Posted 3/12/2018 1:02 PM (GMT -6)   
i agree with quincy -
dx'd with pancolitis 12/21/03
current supplements:vit D, vit K2, cal/mag - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

momto2boys
Veteran Member


Date Joined Jun 2013
Total Posts : 1969
   Posted 3/12/2018 7:32 PM (GMT -6)   
My doctor asks that I call as soon as I see bleeding. His preference is to check things out right away and adjust meds in person. It can be a pain if I have to wait for an appointment, but the longest I waited was callin Thursday and getting an appointment for the next Tuesday.
42 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 2 Lialda + sfRowasa every other night- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

Poppie
Veteran Member


Date Joined Feb 2014
Total Posts : 2133
   Posted 3/13/2018 2:49 PM (GMT -6)   
Why not do both suggestions?

Best of luck.
Samantha
Stopped smoking Jan 2013. Diagnosed Left sided UC, 8th Feb 2014.
Gluten, Dairy, Sulfite, Salicylate, and Histamine intolerant.
Home FMT treatment in July 2016 to ward off reoccurrence of C DIfficile.
Failed Pentasa, Azathioprine and finally Methotextrate due to allergies/intolerance. Taking Humira. Have finally come off Prednisone Yay!!!
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