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Bull101
Veteran Member


Date Joined Feb 2015
Total Posts : 539
   Posted 3/12/2018 2:44 PM (GMT -6)   
Just giving an update for the few that had been curious. My mucous layer has now fully recovered and is very smooth. No signs of fissures or hemmys. Bleeding is still there.

What my doc thinks it is, is if I go frequently or my stool is too thick, the staples where my jpouch is stapled to my rectum stretches some and tears skin which causes the bleeding. This can last for 2-4 years so as long as I'm not anemic my doc doesn't think it's much of an issue.

Lomotil and Immodium don't work that well for me so he gave me some cipro to cut in half and take for a few days if I know I have some event coming up where I'd like to go less. Cipro can reduce the # of times I go in a day down to about 3.

All given, I'm content where I am. I'm the heaviest I've ever been (167 lbs roughly at 5'11"), in good shape, BP at 123/78 and resting pulse at 60 so general vitals are alright.

momto2boys
Veteran Member


Date Joined Jun 2013
Total Posts : 1970
   Posted 3/12/2018 7:30 PM (GMT -6)   
Glad your pouch is on the right track. Hope everything continues to improve!
42 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 2 Lialda + sfRowasa every other night- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16288
   Posted 3/13/2018 9:14 AM (GMT -6)   
Thanks for the update Bull. Is it just a little bit of blood on the TP, or is it more than that? I hope it continues to improve. I wonder why cipro helps if there's nothing going on? I have days where I go a lot, and other days where I don't go too often. I haven't really gotten to the bottom of it, but it's never urgent so I just go when I go. Have you ever asked about tincture of opium? I've been curious about that...
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

Bull101
Veteran Member


Date Joined Feb 2015
Total Posts : 539
   Posted 3/13/2018 12:56 PM (GMT -6)   
NSSG, I'm not sure. It's not associated with pain though. It is just blood on the TP yeah, maybe the first few wipes have some degree of blood, once or twice a day. Usually frequency ranges from around 6-7 and i often get up once in the middle of the night. It's not terrible. I can hold it but it gets uncomfortable for sure.

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 5090
   Posted 3/13/2018 3:06 PM (GMT -6)   
I use Cipro for pouchitis but if you’re not that severe then you’re playing Russian Roulette with c.diff.

I’ve taken tincture of opium before and it works but it is hard to get a script for and most pharmacies don’t carry it.

I’m not sure what state that you live in but maybe medical marijuana is an option for you.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

Kanva
Regular Member


Date Joined Mar 2017
Total Posts : 135
   Posted 3/14/2018 1:54 AM (GMT -6)   
I’m glad you have the problem figured out and that you’re healing well. Hope you don’t even have to use the cipro much!

Bull101
Veteran Member


Date Joined Feb 2015
Total Posts : 539
   Posted 3/14/2018 6:07 AM (GMT -6)   
KS, I wasn't planning on using cipro much. I'd take it for a few days when I have to be on campus for finals or this weekend when I go on a ski trip. It wouldn't be a regular thing.

As mentioned, all in all things aren't terrible. I have good and worse days. Yesterday for example without immodium, lomotil or anything else I had to go 4 times and once last night. I'll take that over my UC days.
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