Just another bump in the road

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momto2boys
Veteran Member


Date Joined Jun 2013
Total Posts : 2026
   Posted 3/13/2018 1:40 PM (GMT -6)   
Ugh, had blood in my stool this morning, but haven’t really had any other symptoms lately. The only wrinkle was that I had a very painful ovarian cyst last week on my left side which my gun thought was likely to rupture. If it did I didn’t notice it, but I ended up with mucus for a couple of days after that. I have kept up my rowasa regimen however I only have 9 bottles left and express scripts won’t have more for me until April 2. I called my doctor today and got a new script for 4 lialda a day. Lucky me, of course my husband is leaving town for 10 days for an international work trip on Thursday, too. Likely stress is not helping me here. Fingers crossed this responds quickly. I think I have 3 bottles if cortenemas too, but I need to check the expiration date on those when I get home.
42 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 2 Lialda + sfRowasa every other night- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

hateuc
Veteran Member


Date Joined Jun 2010
Total Posts : 2354
   Posted 3/13/2018 2:49 PM (GMT -6)   
Ugh, hate that whole thing. I was going to suggest cortifoam/cortenema to tide you over...maybe alternate with the Rowasa that you have left. Cmon, people, get in stock the enema already!
B
UC diagnosed in 2010 but had prob. in 2009
2 Lialda/day Rowasa nightly, periodic anucort supp, Cortifoam as needed(needed more than I would like)
VSL#3, slippery elm
Metamucil capsules
Trying Gluten free (why not!)

Poppie
Veteran Member


Date Joined Feb 2014
Total Posts : 2152
   Posted 3/13/2018 3:38 PM (GMT -6)   
That's a blow! I hope you can get things under control asap. I think worrying about whether you have enough rectal meds wont be helping either!

Let us know how you get on.
Samantha
Stopped smoking Jan 2013. Diagnosed Left sided UC, 8th Feb 2014.
Gluten, Dairy, Sulfite, Salicylate, and Histamine intolerant.
Home FMT treatment in July 2016 to ward off reoccurrence of C DIfficile.
Failed Pentasa, Azathioprine and finally Methotextrate due to allergies/intolerance. Taking Humira. Have finally come off Prednisone Yay!!!

momto2boys
Veteran Member


Date Joined Jun 2013
Total Posts : 2026
   Posted 3/13/2018 4:20 PM (GMT -6)   
I have a whole box or cortenemas, yippee! I will alternate them in with my rowasa routine. This totally caught me off guard, I was actually thinking that I haven’t felt this well for this long since I was diagnosed. I feel totally fine, ugh. If I don’t see a change in a week I will ask for some more cortenemas. I just looked at the box and the last date I could have refilled them was 6 weeks ago. Note to self, never leave a script with refills available unfilled.
42 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 2 Lialda + sfRowasa every other night- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 3/13/2018 5:29 PM (GMT -6)   
Great news that you have some ammunition. I noticed my migraine meds were never filled, and I regret that now too... You could always see if your GI has any samples they can give you if you're in a bind.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2156
   Posted 3/13/2018 6:49 PM (GMT -6)   
Just Another Bump in the Road --- is that a new song by Pink Floyd?
Female, 51, Vancouver BC
Pancolitis: Currently in remission

Jan-Mar2009: Asacol HD. Resulted in severe joint pain and no discernible benefit.
May26-Sep4/2016: Mezavant 4800 mg
Sep5/2016 - : Mezavant 2400 mg
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