So... I got diagnosed with UC in late 2015 and was managed fairly well, symptoms classified as 'mild' and definitely were not interfering with my life in a major way. I was upset but things were livable.
Fast forward to Jan 2018; I develop severe diarrhea, watery, going every 2 hours at least - with bleeding present. It lasts for 4 days so I go straight to the ER due to worsening dehydration. I only waited that long because I suspected a virus at first (I work as an RN and our unit had a small cluster of norovirus patients). The ER doctors did basic blood tests and after a consult were sure I was just having a UC flare up. I was given a prednisone taper and a GI follow-up.
I improved on the steroids to having 0 symptoms, totally healthy BM's once a day. Of course, as soon as I tapered off and was only taking my normal UC meds, all the symptoms came roaring back even worse--with the added joy of abdominal pain, nausea, and anorexia. This time, I was sure something else had to be wrong, and asked my doctor to test me for C. Diff. Well wouldn't you know it came back positive and I'm being started on Vancomycin (while still taking pred. that he ordered days earlier for the suspected 'flare').
I've been reading studies tonight about
the difficulties of treating IBD patients for C. Diff.. needless to say, I face yet another cross-up of on one hand feeling relieved to have determined the source of my awful illness, and on the other, worried almost sicker about
what the future holds.
Just how grim is the outlook for this combination? I see so many horror stories about
constant relapses that are more and more difficult to treat.. A lot of studies say it's something like 40% for people with underlying IBD.
Has anyone actually had any long-term success in keeping away from this thing after being treated?
Isn't this such a fun, never-ending hell that we navigate?
Post Edited (Sir Egg Benedict) : 3/15/2018 11:53:47 PM (GMT-6)