Hello & welcome. What do your parents think about
your options? Just curious... It sounds like you've been on quite a whirlwind for the past 2 years, and I can definitely understand wondering about
surgery. It has been a short period on the other hand, so you definitely want to do all your research, and make sure you seek all other alternatives before accepting surgery. Have you been rechecked for pathogens since the last c diff infection? How many scopes have you had and what did the pathology show? Have you had an upper series? There's actually another member here, who is from NZ and had surgery about
a year back. I think his whole schedule ended up getting pushed back and he just recently got reversed, but his username is ki-wi /www.healingwell.com/community/profile.aspx?f=38&m=3465579&p=214199
. I am goign to alert
him to your post and see if he's around to say "hi".
To answer your questions:
1. The pouch is made of the end part of the small intestine which has some properties similar to the large intestine. It will never absorb as much fluid as the colon, but it gets better over time. I am not too careful to stay hydrated at this point, I know I should be, but it hasn't been a problem for me. You will go to the bathroom more often since output will not be compacted like it is in the colon.
2. I didn't really let the appliance hinder my life too much. I would think a little about
what to wear, but I basically wore my normal clothes without issue. If the bag is full of air or output, your shirt can look fluffy. In your case it sounds like it would be temporary, so any inconvenience, would only be for a few months.
3. The procedure, while fairly well-tolerated, can have varied results. They say 90+% of people are thankful to be done with UC, and live a very full life, occasionally you see people here and on j-pouch.org who are unhappy with their results. There are risks, but there are also risks of living with UC and there are risks of the drugs.
4. Having surgery younger seems to provide better results from what I've seen. People who have surgery younger, often move on free of drugs, doctors, tests... and never turn back. We've had so many parents here with children who had surgery, and the kids moved on. Some of the parents have come back to say hi, but it's generally a happy ending.
I hope you find something that works for treatment.