Posted 1/7/2019 4:35 PM (GMT -6)
I guess it somewhat depends on your priorities. Living with inflammation for years can put you at risk for other issues, so that is always something to consider, and it can be alleviated by surgery. That aside, you would save money and probably live more predictably after surgery. For me, the urgency was always the worst symptom, even if i was only going a few times a day, not having time to get to the bathroom was by far the largest concern. If i pooped myself once a year, I would consider that WAY too often personally. If i had to wear diapers regularly, or even walk around with changes of clothes and undergarments, that wouldn't work for me either - unless there was no option of course! if UC impacted my career because of the unpredictability, or if it made me unable to fulfill obligations to my finances or my family, that would make me lean toward surgery. If treatment was taking up a considerable amount of my time and costing a lot of money, that's not a bad reason. If you don't like taking drugs or being dependent on doctors/drugs/insurance, that could be a reason. The thought of needing surgery at an advanced age really scared me too.... All of these, and probably a few more, were reasons I opted for surgery.
What's so great about living with a diseased colon forever? The difference between living with inflammation and without a colon are quite different in cost, time, accidents, predictability, overall health (but surgery nay-sayers would debate this based mostly on unfounded claims). Going 3x a day without any notice, and spending time on the toilet in pain many mornings, isn't a very desirable way to live your life, but if you think it is better than going 6x a day free of drugs, doctors, insurance, procedures, cancer risk, excuses, that is a choice only you can make. Many people feel that hanging on to a sick colon is better than going more times a day. If you are able to get in remission and it's easy enough to take drugs and you're only going to the doctor yearly, that's great, but I was going very often and spending tons, not getting any better... I wasn't going a ton either, but only because I didn't eat much - I could have gone on like that forever, but why? I eat whatever i want now. I eat better than I did the entire time I had UC - back then I was too scared to eat anything decent.