I hate to see you feeling this way. I wish I could swing by and see you. I really don't think you should make any decisions based on number of surgeries, yes, they do suck, but one more isn't the end of the world. I am very happy with my life with my jpouch. I am very active and healthy now. I can't promise you anything, but I can tell you things have turned around for me in a way I could only dream of from my UC days. I hate to think of you feeling so desperate that you feel there is no hope. There is hope.
I also hate that you feel like the practitioners that you currently have are the only ones available to you... I wish you had an
open door with many options. I think you need to get healthy and make decisions when things aren't so desperate, which basically means what I said before with your condition unfortunately, collectomy if necessary, and move on when you're ready. Of course, one and done is also a nice idea, but is a BCIR one step? I do not know, as I never researched it, but I do think if you had the first step, the collectomy, it would get you healthy and give you a chance to see what you're dealing with, and move on from there. It's a difficult step because it feels like you're still far from your ultimate goal, whatever it is, but it's actually a huge step because you're committed to changing your situation for good. Things happen quickly from there anyway. So whether it's a perm ileo, or a bcir, or a jpouch, you get there within a year if you want to. No reason to make decisions. If you don't like the team you're workig with though, that's a bigger issue, and you need to figure out how to get healthy and move forward.
Moderator: UCCurrently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish