Started smoking after 9 years -- stomach pain

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Sara14
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Date Joined Mar 2007
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   Posted 5/11/2018 11:54 AM (GMT -6)   
I made a really bad choice and started smoking again a few weeks ago after being quit for 9 years. Unlike the norm, I actually got UC while I was a smoker. I do not remember flaring when I quit either. Because of this, I have always wondered if I actually have Crohn's. Since I started smoking again, I have been having stomach pain. No other UC symptoms, and I am not sure this pain is a flare symptom or not. It does feel kind of crampy. It is not constant or severe. Do you think I actually have Crohn's? Anyone else have a similar effect from smoking? I know the answer is just stop smoking, which I am trying to do. Thanks for any insight, advice, support in quitting, etc. I have been in remission since December 25, 2016.

Old Mike
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Date Joined Jan 2007
Total Posts : 3881
   Posted 5/11/2018 1:34 PM (GMT -6)   
Hi Sara: Been some time.
Believe you know possibilities as well as I do.
Unlikely to get UC while smoking, but I assume it is possible.

Tips to quit.
Your choice, cold turkey, slow taper, taper with nicotine gum or patch.


Whenever I quite I get huge mouth ulcers, cant talk or eat, have to restart.
After I quit in 1977 got UC 1980.

By the way how did you get into remission.

Good Luck with this.
Oldmike

Sara14
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Date Joined Mar 2007
Total Posts : 4509
   Posted 5/11/2018 2:28 PM (GMT -6)   
Thanks, Old Mike! Prednisone has gotten me into remission every time I have flared since 2013. I was really sick with reoccurring campylobacter and then c diff. from October-December of 2016. Eventually, after many rounds of antibiotics, that went away and hasn't come back. I thought that was a flare-up initially but it wasn't.

Do you mean you have to restart smoking due to the mouth ulcers? I think I remember getting some small canker sores when I quit 9 years ago, but nothing major.

Thanks for the input and suggestions.
32 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016.
Current meds: Delzicol, 6, 2xday; Rowasa nightly; singular and Allegra for allergies; Xanax.

Old Mike
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Date Joined Jan 2007
Total Posts : 3881
   Posted 5/11/2018 2:42 PM (GMT -6)   
Yes last time I quit two years ago cold turkey, really bad mouth ulcers.
Will try again soon with slow taper, and loads of zinc which may help.
They were so bad, I had to carry a bottle of benzocaine in my pocket if I wanted
to talk to someone or even eat. Had about 10 really deep ones.
Started smoking again, they were gone in about 2-3 days, go figure.
Besides immune response, smoking also changes oral bacteria, so might
be a combo effect.
oldmike

Sara14
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Date Joined Mar 2007
Total Posts : 4509
   Posted 5/11/2018 2:46 PM (GMT -6)   
Wow, that sounds horrible. I hope you can quit successfully next time. It is hard enough to quit without that happening.
32 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016.
Current meds: Delzicol, 6, 2xday; Rowasa nightly; singular and Allegra for allergies; Xanax.

Canada Mark
Veteran Member


Date Joined Jan 2013
Total Posts : 3549
   Posted 5/12/2018 7:40 PM (GMT -6)   
Never Take Another Puff:
whyquit.com/NTAP_large_print_212_pages.pdf - PDF Version.

Worth reading smile Not a paid program. The guy is pretty awesome. Does all this stuff for free.

Main site: whyquit.com/joel/#book

--------

As for me personally - with Crohn's colitis. In the past I have found it calms my system when I was in a severe flare. Now being in remission, I think it's counter productive and triggers some symptoms at times, but darn hard to stop... The whole addict thing. It's time to give it a go though. I suspect that I might find a lasting remission in doing so. But you never know with this darn disease.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 5/12/2018 7:49 PM (GMT -6)   
Thanks! I used that site during my first quit 9 years ago. I didnt smoke today and dont plan to again because this stomach pain has me scared. Im wondering if it is gastritus. Based on internet research, it can be caused by smoking but it says it is a dull or sharp continuous pain and that is not what I have. It hurt throughout the night every time I would wake up and throughout the day today. It comes in waves. I have had hardly any desire to even smoke today, so that's good. If it isnt improved by Monday, I'll have to call my GI and tell him what I did.
34 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016.
Current meds: Delzicol, 6, 2xday; Rowasa nightly; singular and Allegra for allergies; Xanax.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 5/15/2018 9:07 PM (GMT -6)   
My doctor's nurse called me back and they said they think the pain is just constipation. I don't think so though. I started myself on prednisone two days ago and I'm feeling a lot better. And nothing has really changed as far as going to the bathroom. I really don't think that that kind of pain is from constipation. I suffered from constipation for years and years before I got you UC and I dont remember it feeling like horrible waves of pain, but maybe... Why would smoking cause constipation? I think this is UC or Crohns related.

Post Edited (Sara14) : 5/15/2018 8:10:05 PM (GMT-6)


Serenity Now
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Date Joined Jan 2009
Total Posts : 2135
   Posted 5/15/2018 9:23 PM (GMT -6)   
Hahahhaha... sorry to laugh but when I read "just constipation" it reminds me of the first time I went to a doctor with what I know now is UC and was told it's "just constipation". I was actually told to take Ex-Lax (which I stupidly did) and that's when the fun really began.

So I have to say, no, I don't think your pain is "just constipation". Keep pursuing it until you get a real answer.

p.s. whenever I see you I feel compelled to ask about Pumpkin... do you still have her??
Female, 51, Vancouver BC
Pancolitis: Currently in remission

Jan-Mar2009: Asacol HD. Resulted in severe joint pain and no discernible benefit.
May26-Sep4/2016: Mezavant 4800 mg
Sep5/2016 - : Mezavant 2400 mg

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 13024
   Posted 5/16/2018 7:51 AM (GMT -6)   
Have you tried anti-spasmatic, prescription meds (Dicyclomine/Bentyl)? Intestinal spasms are incredibly painful, and that can be treated with those meds.

Can you assist on an lower-abdominal xray, just to make sure there's nothing else going on? A small-bowel check with some contrasting dye can help make sure there's nothing wrong. I'd wonder if there's a partial-obstruction or something else going on...
Moderator Ulcerative Colitis
John
, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

There are two certainties in life: paying taxes and prednisone side effects...

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 6/10/2018 8:22 AM (GMT -6)   
Hi! Sorry I didnt see your replies. So here is an update: I did not follow my doctor's advice and take Miralax. Instead I quit smoking, and two days later, I put myself on prednisone (this was before he got back to me). I felt better within a few days and did a super fast taper off the pred, since at that point, I was unsure if it was even a flare or constipation or what. I was only on pred 10 days. The 5th day of pred, I stupidly started smoking again (May 18). I felt mostly fine until a few days ago, when I started having some gut pain return and I was only going to the bathroom sometimes every other day (not normal for me at all since getting UC) and it was small amounts. Well, yesterday the pain got somewhat bad again and today I see blood. I did take Miralax last night to see if my doctor was right, but it did nothing. And now that there is blood, I have again started myself on prednisone. I will call my doctor tomorrow morning. I am assuming smoking must be causing this and will quit this week.

Serenity Now: I know! Same thing happened to me when I first got UC in 2007! I was told I just had a fissure and to take stool softeners. I did and then all hell broke loose. And yes, I still have Pumpkin! She is doing great! She turns 7 this summer. Thanks for asking. smile

IPoop: Thanks for the suggestion. Yes, I have tried every anti-spasmodic out there and unfortunately, they dont do anything for me. I'll see what my doctor says about a scan. He is generally a great doctor, and I have been pleased with him, but I dont think he was right this time.
34 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016.
Current meds: Delzicol, 6, 2xday; Rowasa nightly; singular and Allegra for allergies; Xanax.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 6/10/2018 8:30 AM (GMT -6)   
One more thought --This is how I felt when I got my very first UC symptoms ever. I am not having some of my typical flare symptoms, like tenesmus, which is good, I guess. And I have been able to retain my Rowasa all night with no problem. Usually, that is hard for me to do when flaring. It also makes me wonder if something is going on higher up though. I read about distal constipation yesterday, when you are constipated higher up in the digestive tract. Ive had 3 BMs this morning, not a lot of volume is coming out, not well formed, mushy, and some blood. Pain is not unbearable at this point, but is highly unpleasant. Comes and goes in waves that only last a minute or so. Anyway, I hope my GI calls in more pred for me. I dont have much left.
34 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016.
Current meds: Delzicol, 6, 2xday; Rowasa nightly; singular and Allegra for allergies; Xanax.

Post Edited (Sara14) : 6/10/2018 7:34:59 AM (GMT-6)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 6/11/2018 9:27 AM (GMT -6)   
I feel even worse today. Feel really bad. sad
34 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018.
Current meds: Delzicol, 6, 2xday; Rowasa nightly; singular and Allegra for allergies; Xanax.

momto2boys
Veteran Member


Date Joined Jun 2013
Total Posts : 2000
   Posted 6/11/2018 9:33 AM (GMT -6)   
Sorry you are feeling so miserable. Have you been able to get in to see your doctor? Hang in there!
43 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 4 Lialda (sfRowasa when needed)- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 6/11/2018 10:55 AM (GMT -6)   
Thanks. No, they havent called back yet. I bet he will want to do a scope and just thinking about that prep makes me feel sick. This is just so weird. Cigarettes help everyone but me. I dont even know for sure if thats what is causing me to flare. I hate not having answers. I live alone with just my cat and always worry someday I will pass out from pain and no one will know. Just had a breakdown and started bawling and feeling sorry for myself.
34 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018.
Current meds: Delzicol, 6, 2xday; Rowasa nightly; singular and Allegra for allergies; Xanax.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30854
   Posted 6/11/2018 12:18 PM (GMT -6)   
You've had stool samples checked for invaders?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Oxeze/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg / Amlodipine 5mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 50 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 6/11/2018 12:27 PM (GMT -6)   
Not yet. Still waiting for a call back. Kinda feels like possible c diff. but I havent been on antibiotics in a long time. Doctor will order the tests; he always does. Thanks Quincy.
34 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018.
Current meds: Delzicol, 6, 2xday; Rowasa nightly; singular and Allegra for allergies; Xanax.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 6/11/2018 4:26 PM (GMT -6)   
My doctor called in stool samples, labs and a chest x-ray. The nurse told me this in a voicemail and made it seem like the xray was to plan for potential future meds. What would those be...? She also asked me where I got the prednisone and said nothing to answer my question about getting a few pain pills. I got the pred from him, 2 years ago. He actually gave me a script and said it would be good for me to have extra on-hand in case I ever needed it. She also asked me if Ive ever used Uceris. Yes, from him, and it did nothing. Im a bit frustrated.
34 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018.
Current meds: Delzicol, 6, 2xday; Rowasa nightly; singular and Allegra for allergies; Xanax.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30854
   Posted 6/11/2018 11:28 PM (GMT -6)   
Can understand your frustration.....good that further tests are ordered.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Oxeze/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg / Amlodipine 5mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 50 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!

Oligodar
Regular Member


Date Joined Jul 2017
Total Posts : 45
   Posted 6/12/2018 5:31 AM (GMT -6)   
It might be individual, but I think that smoking is a risk factor. Smoking affect whole body. I would try to quit.
==========================================================
Ulcerative Colitis for 34 years. 14 years ago sigmoideum adenocarcinoma - surgery successful
==========================================================
Salofalk 500 mg - 6 tablets, Entocort Enema 2mg, Mirtazapine 30 mg, Magnesium
==========================================================

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16605
   Posted 6/12/2018 7:44 AM (GMT -6)   
Miralax will not work over night, it often takes several days to work. It is not like a laxative at all. If you have pain meds on hand, they will contribute to constipation. Drink lots of water. In the crohns forum some have also mentioned using Colace. I prefer Miralax because it does not cause cramping. My grandson was put on Miralax by his pediatrician, he went through a period of having terrible constipation.

I hope you can get some relief.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 6/12/2018 2:51 PM (GMT -6)   
My dr told me to go to the ER this morning and that I would probably be admitted. I went and they discharged me. sad Got one dose of Fentanyl, which only helped for 3 hours and got a script for a whopping 12 pain pills. I am pooping out mostly pure blood, mucous and what looks like pieces of my colon. They did a CT scan and it showed some inflammation up the left side. Bloodwork was normal but mine always is, no matter how severely I am flaring. I have to make the 40-minute drive back there now to drop off a stool sample because of course I couldnt go during the 3 hours I was there right after they gave me fentanyl.
34 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018.
Current meds: Delzicol, 6, 2xday; Rowasa nightly; singular and Allegra for allergies; Xanax.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 6/13/2018 12:40 PM (GMT -6)   
Well, I don't have an infection. So not sure what my GI will do now.
34 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018.
Current meds: Delzicol, 6, 2xday; Rowasa nightly; singular and Allegra for allergies; Xanax. Have tried Bentyl, Donnatal, and Levsin; dont help.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 6/18/2018 2:51 PM (GMT -6)   
I thought I was going to get out of getting a colonoscopy, but my doctor's nurse called today and said he wants to do one, even though I'm having no symptoms anymore, thanks to the 50 mg of prednisone I am on. I really don't want to do a prep and get scoped now that I'm feeling better. I've had scopes bring back symptoms for me before. Also, what is the point of doing it right now if I'm no longer having symptoms? Will he still be able to see where the inflammation was last week? I'm not sure how all that works.
34 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018. Started 50 mg pred 6-9-18. Trying to re-quit smoking. Maintenance meds: Delzicol, 6, 2xday; Rowasa nightly; Singular & Allegra for allergies; Xanax

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 13024
   Posted 6/19/2018 7:10 AM (GMT -6)   
You can always just say no, if you're symptom-free at 50mgs of pred, and either cancel or reschedule it a few months down the road. To me, it would make more sense to see how you're doing once you're off of pred, or at least at a very low dosage.

Dunno, what do others think?
Moderator Ulcerative Colitis
John
, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

My reviews on Yelp and Trip Adviser will be terrible: @$10,000 a night with uncomfortable beds and awful food, but at least the drugs are good at this hospital.
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