Some background. I've been on Entyvio every 8 weeks since July 2016, Was in complete remission since Oct of 2016. I have been simmering since the end of Dec 2017. No D, urgency or frequency, but increasing blood and stools not well formed and softer than usual. I tried my own fixes at first (adding mesalamine enemas, increasing Asacol to max and started drinking nopal water again.) That helped some for a while and then slowly regressed. Was on Uceris for 2-1/2 months and 2 weeks ago switched to pred
Symptoms weren't horrible but they were getting worse and I was seeing more and more blood. Blood is nearly gone and stools are better now. Scope scheduled for mid June
But I know that Entyvio every 8 weeks isn't enough. At my appt at the beginning of March I asked about
checking my levels and increasing the dosing to every 4 weeks. She wanted to wait because at that time I had only been on Uceris a couple weeks. After regressing the doc submitted a request to insurance to increase the dosage but still hasn't checked my entyvio levels (I even asked several times about
getting it checked). Insurance denied the request today because the doc didn't submit any reason for the increase in dosage. Will have to call the doc tomorrow to find out what is going on.
I have seen people here say they were on Entyvio very 4 weeks:
Did you have any problems getting it approved?
Did insurance require that the Entyvio levels are checked?
How long did approval take?
Did changing to 4 weeks work for you?
I don't know if I should keep pushing for the Entyvio @4 weeks or switch to something else while I am stabilizing on pred. I loved Entyvio ... felt like I did pre-UC ... so I am hoping that 4 weeks does the trick again. I just don't want to get worse.
58 yo female diagnosed w/UC to mid transverse 1/1/13, now UC or Crohn's colitis. Remission since 10/16, confirmed by scope in Dec 16. Current meds: Entyvio 7/22/16, Asacol HD 2 Tabs 3x/day, Capozide 1/day (hypertension). omeprazole. OTC: Loratadine 1/day, multivitamin 1/day.