I'm no doctor, always confirm with yours. Like I wouldn't be at all surprised to hear mild-severity pancolitis to me. The presence/absence of ulcers is irrelevant and not necessary to say.
Whatever is happening in the TI and right side is fairly new inflammation and very mild in severity, it has yet to make permanent architectural-changes (nothing chronic stated). To make it clear, architectural changes are nothing at all to be afraid of, anything that causes symptoms, or anything you should strive to avoid.
What are architectural changes then? They're something important to a pathologist who looks at your biopsies and allows him/her to classify those slides as being characteristic or suggestive of a specific disease. It's a key identifier. Sorta like my driver's license stating my height, hair color, eye color, weight, date of birth, and address: all identifiers things that help identify me as a licensed driver (and qualify me for buying booze at the bar, a bonus, haha). Similarly, architectural changes classify you as an IBD/UC patient (which might make me/you want to buy booze at a bar...ugh).
What's all that medical jargon good for then? Good to know the extent and severity of inflammation as that directly impacts our quality of life and causes symptoms. The TI barely has any involvement at all. The right-side has very, very mild involvement (more than the TI but nothing major). The left side is by far the most active section in your report (as is always the case with UC patients). So, your left side is causing most if not all of your troubles at the moment. Treat that left-side well to resolve your most troubling symptoms. Of course, the right side and TI need treatment as well but are generally doing well.
If it is confirmed as a pancolitis at your next appointment, then your first question should be: what should you/I do to treat this fully (prudent to maybe consider immunomodulators or biologics?)? What you have right now is pretty mild, but you want to catch this early, treat it sufficiently, and keep it from getting worse. One key truth with UC is that the severity of inflammation is a lot more important then the extent of inflammation is. Mild pancolitis cases do much, much better than severe proctitis cases do (better quality of life, less symptoms, etc.). As long as you're well managed and in a remission, then whether you have a pancolitis or a proctitis should be pretty much irrelevant. Yes, CRC risk is higher for pancolitis patients, but unless you've had UC for multiple decades then that is also equally irrelevant. Just make sure to get annual CRC screenings beginning at 8-10 years after your diagnosis. And remember that only 3-5% of us ultimately get a CRC, it's hardly something to loose sleep over.
Post Edited (iPoop) : 8/6/2018 9:58:29 AM (GMT-6)