Each time I taper, my symptoms come back just a bit, and then when my body adjusts to the taper the symptoms go away.
That's a good way to describe it. There is a reason why they get you to stay on each dose level for a week. Often after 2 or 3 days of dropping, I get some uptick in one symptom or another that goes away in a day or two. If I end up with diarrhea, then (at least for me) it won't go away on it's own and I have to go back up and re-taper. I've only had to go back up and re-taper once, and I think I was tapering too fast.
In Spring's case, she has the added complication of adding Entyvio fairly recently, which muddies the waters even more.
With my last flair (triggered by c-diff), I was able to get completely off pred in only 8 weeks. 40 mg for 2 weeks, then drop to 30 mg, and then drop by 5 every week until off. That is the fastest taper I have ever done. The pred withdrawal has been minimal... just a little sluggish with minor joint and muscle aches, and head aches. Still able to function no problem.
DX Ulcerative Pancolitis 2003. Subsequent flares limited mostly to left side
Flare every 2-3 years that is bad enough to require Pred.
9x Salofalk tabs, Sulfa free Rowasa nightly and Canasa each morning
Probiotics: Florastor Fiber: Psyllium.
Back in remission after getting rid of c-diff with Vanco, and a quick blast of Prednisone to cool things down.