I have two more chemo sessions to go, so about a month. Hooray! I can hardly wait. I am feeling worn down from the small but annoying side effects of the chemo.
Surgeon says we can do the take-down a month after the chemo is finished.
This PG thing is weird. I had a day a few weeks back when I had three or four bag changes in one day. (One was because of my screwup; I was hurrying and I wrinkled the cloth-like stuff around the edges so it was under the actual wafer; the other issues were, I think, because the weather had turned suddenly hot and very humid and my skin was not allowing things to stick.) Anyway, I developed a "crater" about 1/2 inch from my stoma. I kept doing my thing per usual and watching it.
Then one day I was getting something out of the back seat of the car and in closing the car door (think how back doors are sometimes funny-shaped) I HIT my stoma/bag area with the door! YEOUCH did that hurt! My belly swelled some, turned pink..... and 2 days later when I changed the bag, I found another open area on my skin. I thought I'd broken the skin by hitting it with the car door.
All of this was not healing, and the area was seeping blood under the cloth-like wafer extender area of the bag, so bags were not staying put for more than a day. So I went in to see the ostomy nurse. Boy, am I glad I was proactive!
So today I pursue the pharmacy and figure out whether to shell out $50 for the tube of #1 ointment (my insurance won't cover it) or pay less for the steroid-based ointment that might also work. Hmmm.
mom, I am thinking the way you are, and hoping this is just a strange chemo-induced thing that doesn't stay with me!
Age 62. Diagnosed UP 1983, UC 1986
Step One surgery on 12/28/17.
Surgery: planned. The colon cancer they found: a surprise.
Prior meds: sulfasalizine, Asacol, Delzicol, Lialda,
6 MP, Humira, Metamucil
two hips replaced thanks to pred.
Bentyl as needed as of 8/31/17