lobotomy to treat ulcerative-colitis

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beatUC
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Date Joined Mar 2010
Total Posts : 1438
   Posted 6/12/2018 7:14 PM (GMT -6)   
Lobotomies were once used to treat this gut disease, part of a shameful medical history
This was pretty recent, 1951!
/www.statnews.com/2018/06/12/lobotomy-ulcerative-colitis-shameful-medical-history/

Sara14
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Date Joined Mar 2007
Total Posts : 4188
   Posted 6/12/2018 7:54 PM (GMT -6)   
Wow-- I thought this was going to be a joke. Great article though.
34 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018.
Current meds: Delzicol, 6, 2xday; Rowasa nightly; singular and Allegra for allergies; Xanax. Have tried Bentyl, Donnatal, and Levsin; dont help.

notsosicklygirl
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Date Joined Dec 2008
Total Posts : 16278
   Posted 6/12/2018 9:48 PM (GMT -6)   
Yeah, that's scary. I always imagine in 100 or 200 years, people will think a lot of the treatments we use now are totally barbaric. Look at the stuff people go through to fight cancers...
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

Uniform Charlie
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Date Joined Jul 2015
Total Posts : 691
   Posted 6/13/2018 3:07 PM (GMT -6)   
One day people will be disgusted that we used to just cut the organs out when we couldn't fix them.
Diagnosed Proctosigmoiditis (UC) February 2015
Hiatial Hernia w/ GERD
Current Meds: Lialda 1.2gm 2x daily (discontinued for now), duloxetine, rowasa as needed, VSL3 occasionally, One a Day Multi-Vitamin
Did SCD for about 2 years but lost willpower. Want to get back to it at some point.

Poppie
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Date Joined Feb 2014
Total Posts : 2133
   Posted 6/13/2018 3:15 PM (GMT -6)   
Crikey that is awful, also remember that they used to bleed sick people.

"For thousands of years, physicians relied heavily on a single treatment for hysteria, heart disease and just about every other malady: bloodletting. The theory behind the practice changed often over time, but the practice itself remained much the same -- with doctors often bleeding patients until they were weak, pale and, sometimes, unconscious"
Samantha
Stopped smoking Jan 2013. Diagnosed Left sided UC, 8th Feb 2014.
Gluten, Dairy, Sulfite, Salicylate, and Histamine intolerant.
Home FMT treatment in July 2016 to ward off reoccurrence of C DIfficile.
Failed Pentasa, Azathioprine and finally Methotextrate due to allergies/intolerance. Taking Humira. Have finally come off Prednisone Yay!!!

beatUC
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Date Joined Mar 2010
Total Posts : 1438
   Posted 6/13/2018 3:27 PM (GMT -6)   
Aside from the horrors of some UC treatment at the time, this is great article about the guilt sometimes associated with UC and the ripple effects.
Imuran
Asacol
Rowasa
prednisone as needed

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12516
   Posted 6/13/2018 6:36 PM (GMT -6)   
Once they know the cause and cure for UC, I'm sure fmt, enemas, immunosuppressive meds, endoscopy, and surgery would seem as primitive as bloodletting.
Moderator Ulcerative Colitis
John
, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

My reviews on Yelp and Trip Adviser will be terrible: @$10,000 a night with uncomfortable beds and awful food, but at least the drugs are good at this hospital.

subduedjoy
Regular Member


Date Joined Dec 2012
Total Posts : 120
   Posted 6/13/2018 9:03 PM (GMT -6)   
The Crohn's and Colitis Foundation has been supporting research into the causes of IBD. There are three: an impaired immune system, an imbalanced gut microbiome, and genetics.

This organization also recently funded a study into probiotics and their affect on mice. If I remember correctly, the study's details and conclusions were as follows:

After giving bad bacteria to the experimental group and not the control group, neither group of mice had a colon flareup.

After putting both groups under stress, the experimental group got colon flareups. The control group didn't.

After giving probiotics to the experimental group, the experimental group's symptoms improved.

The results of this study show that the gut microbiome can cause ulcerative colitis, that probiotics can help reduce symptoms, and that while stress doesn't cause ulcerative colitis, it can trigger colon flareups in people with ulcerative colitis.

I agree that immunosuppressive meds and surgery will one day seem as primitive as bloodletting. I'm not so sure about FMT though. I think FMT can help balance the gut microbiome. It might not fix the immune system though.

Post Edited By Moderator (notsosicklygirl) : 6/14/2018 11:00:44 AM (GMT-6)


Uniform Charlie
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Date Joined Jul 2015
Total Posts : 691
   Posted 6/14/2018 4:55 AM (GMT -6)   
Great article, BeatUC.

@joy - "Stress" is such a wishy-washy term. I don't even know how doctors can evaluate stress in humans in today's Western societies where we are, generally, socially isolated, fed constant images of death/danger through media, under constant pressure to perform at work and home etc. etc. etc. You can put a mouse in a cage and poke/prod them etc to create stress but I don't know how you recreate this in humans, at least not legally.

I've never looked into research about stress and U.C. flares in humans but my intuition tells me any study looking into this would be inherently flawed since we all interprate "stressful" situations differently. I can't tell you how many times a doctor has asked me "Are you stressed?" I have no idea how to answer that question.
Diagnosed Proctosigmoiditis (UC) February 2015
Hiatial Hernia w/ GERD
Current Meds: Lialda 1.2gm 2x daily (discontinued for now), duloxetine, rowasa as needed, VSL3 occasionally, One a Day Multi-Vitamin
Did SCD for about 2 years but lost willpower. Want to get back to it at some point.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16278
   Posted 6/14/2018 5:15 AM (GMT -6)   
I would imagine that someday all "treatments" and surgeries would look primitive... I'd imagine people could heal and not need to maintain with drugs. Pumping stuff through your veins is quite barbaric too - as is swallowing chemicals. Then you start to question perhaps being able to weed out these issues before birth, like gene editing, or whatever it's called, to make it so the issue never arises. Which leads to people wanting to edit to give people all sorts of advantageous qualities, better looks, strength, smarts, health... I feel like I will be long gone before everything we know looks primitive (though it already does to some extent), but it's interesting for the people of generations of the future.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

subduedjoy
Regular Member


Date Joined Dec 2012
Total Posts : 120
   Posted 6/14/2018 8:33 AM (GMT -6)   
Hi Uniform Charlie,

That's a good question. I listened to the talk about the study from the person who was in charge of it at a recent symposium held by the Crohn's and Colitis Foundation. She explained how they incorporated stress into the model. Apparently, mice get stressed out when they are in lighted areas and will frantically try to get to dark places to get out of the light. The researchers used mazes with light to stress the mice. The mice that didn't get the bad bacteria didn't get sick. The mice that did get the bad bacteria got colon flareups.

Post Edited By Moderator (notsosicklygirl) : 6/14/2018 10:58:58 AM (GMT-6)


iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12516
   Posted 6/14/2018 10:13 AM (GMT -6)   
Subduedjoy, the link in your signature goes to a fundraising page, could you remove it due to forum rules? I think it's great that some of us want to raise money and awareness to IBD/UC causes but we cannot through this forum smile
Moderator Ulcerative Colitis
John
, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

My reviews on Yelp and Trip Adviser will be terrible: @$10,000 a night with uncomfortable beds and awful food, but at least the drugs are good at this hospital.

countess18
Regular Member


Date Joined May 2016
Total Posts : 232
   Posted 6/14/2018 10:24 AM (GMT -6)   
I may not mind a lobotomy to forget I have this disease.....
Thanks

T
diagnosed proctitis April 2016 s/p a c diff infection age 53
Nov 2017- ?Crohns colitis to mid transverse - mild/moderate
remission March-Sept 2017 then flared again-failed prednisone/balsalzide wean
started Humira 11/17/17, -5/17- failed Humira
started Remicade 6/8/17
past meds- cortifoam, canasa, rowasa,balsalazide, prednisone

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4188
   Posted 6/14/2018 10:39 AM (GMT -6)   
countess18 said...
I may not mind a lobotomy to forget I have this disease.....


I was thinking the same thing.
34 years old; diagnosed March 2007.
Latest scope: 9-29-16: mild-to-moderate chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018.
Current meds: Delzicol, 6, 2xday; Rowasa nightly; singular and Allegra for allergies; Xanax. Have tried Bentyl, Donnatal, and Levsin; dont help.

MarkWithIBD
Regular Member


Date Joined Jun 2018
Total Posts : 26
   Posted 6/14/2018 11:26 AM (GMT -6)   
I think it's because whenever someone says their stomach hurts and there is no reason that doctors can see they just call it an emotional problem instead of saying they just don't know. They still do that today. It took me three years to get diagnosed because my doctor kept telling me I just had severe IBS and he tried to put me on antidepressants. When I arrived in the ER with 24 BMs per day of blood and mucous they started to take me seriously. I think being told every time "it's all in your head" by my GP really did give me anxiety and depression because I felt like I had no help in the world and I was going to die. Then I really did start dying from the UC and that's when I got the real help.

I fired that GP and got a better one. The old one always said things about my health but did no labs or anything to look for evidence. I said to him that medicine is supposed to be scientific and he can't diagnose me without evidence but he just rolled his eyes. Telling a severe UC patient that they just have IBS and they are being emotional is like how they would diagnose people with hysteria way back when. Lots of people still confuse IBS with IBD. No wonder they gave people lobotomies, they were too lazy or stupid as doctors to do anything else.

Oh well, if your brain is half gone you won't complain about your UC anymore! Cured! hah

subduedjoy
Regular Member


Date Joined Dec 2012
Total Posts : 120
   Posted 6/14/2018 1:36 PM (GMT -6)   
iPoop said...
Subduedjoy, the link in your signature goes to a fundraising page, could you remove it due to forum rules? I think it's great that some of us want to raise money and awareness to IBD/UC causes but we cannot through this forum smile


Oh. I didn't realize because its a non-profit, volunteer-driven organization and website. I took the link out and added a link to my personal website instead. My personal website is relatively new though. It still needs work.
Paleo and SCD diets: Lots of vegetables, fruits, fish, coconut yogurt smoothies, and meaty bone broth soups. Anti-inflammatory supplements, probiotics, digestive enzymes. Meditation, breath regulation, and exercise.

Systemic chronic microscopic inflammation, including the kidneys.

ACE Fitness Nutrition Specialist

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12516
   Posted 6/14/2018 1:59 PM (GMT -6)   
Thanks, appreciated! Links to personal blogs are fine. I've yet to find a web page that isn't a work-in-progress ;-)
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