I am sorry you're having to consider surgery. It's a tough blow to have to go to this extent to get things managed, but I can relate because it happened to me. Never at any point in my life did i think this was headed my way until it happened...
for your first question, yes, my surgeon said the same. He said he would hope for 2 steps, but that he thought it would probably be 3 in my case. I am sure you will get 2 steps since she seemed to insinuate that it was hopeful in your case. Mine was the opposite, more like, "i will try for 2 but i can't promise anything". I was on quite a bit of steroids since diagnosis, various doses, and I was holind extra weight from those courses. I guess 3 steps was my best and safest option, and it was a blow when I woke up and heard I would require 3, but in the bigger picture, I made it, I am happy with my outcome & I have my whole life ahead of me. So hope for 2, but don't be heartbroken if it's 3. You will get through it.
After my first step, I was in the hospital for about
5 days I think. I was pretty useless. I was trying to do basic chores around the house, but you can't lift more than a laptop, so about
10 pounds max. If you're on pain meds you can't drive. I was off them within a week, and I drove myself to my follow up. I am sure my surgeon thought I was nuts, but I had to get there and I wasn't on drugs, and I felt capable enough. It wasn't the most comfortable driving and parking at a meter and walking at a week post step 1. My insurance set me up with an at home nurse. I think she came 3x. she checked vitals and helped me learn how to use the appliance. I think it's smart to familiarize witht he products a bit, but don't order samples until you know the size of your stoma. Usually you meet with the stoma nurse once before surgery, she marks you and gives you a kit with some information and supplies. After that, you might see her in the hospital for your first change after surgery. Then you go home, and the at home nurse helps you. before you know it, you're a pro. You know what you like, you know what products work for you... things are pretty easy. Actually easier with the end ileo (in 3 steps). The loop was awful for me.
I didn't go to UCSF so i can't give any advice there, but i have heard good things. Perhaps someoen who went there will respond.
Moderator: UCCurrently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish