Doctor Recommendation Needed - Connecticut?

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Fletch10
Regular Member


Date Joined Feb 2017
Total Posts : 221
   Posted 6/12/2018 10:14 PM (GMT -6)   
So our expensive and crappy insurance is barely covering my (AMAZING) IBD specialist in Massachusetts :/

We're looking for a good long-term solution, but will need to change doctors if I have no other choice. Can anyone recommend a really good IBD specialist in Connecticut?

The thing that scares me is that my current doc is so responsive - if I call or email, I have a call back same-day, often within a couple of hours. There is literally no delay for care - but I've heard people say they go days or even weeks before seeing a GI when they need one.

Any ideas? Central or eastern CT is preferable, but will go where I must.

Thank you!
--
F, 40. Diagnosed Feb. 2017 - left-sided UC.
Finally off prednisone as of 5/15! Remicade 5mg/kg every 4 weeks.
Mesalamine intolerant (Rowasa, Colazal)
Remission as of fall 2017; mild flare March 2018
Zoloft; mostly dairy free.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12516
   Posted 6/13/2018 6:18 AM (GMT -6)   
That stinks, I hope you do not need to switch. I'd make sure to "interview" the new doctor's office and ask those questions: how long will a response take?, how soon can I see the GI in emergencies?

I'm not in your area, but maybe this might help a bit?

Doctor Ratings:
www.ratemds.com/

Finding a GI:
www.medicinenet.com/ulcerative_colitis/city.htm
Moderator Ulcerative Colitis
John
, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

My reviews on Yelp and Trip Adviser will be terrible: @$10,000 a night with uncomfortable beds and awful food, but at least the drugs are good at this hospital.

Uniform Charlie
Veteran Member


Date Joined Jul 2015
Total Posts : 691
   Posted 6/13/2018 3:09 PM (GMT -6)   
What county in Connecticut?
Diagnosed Proctosigmoiditis (UC) February 2015
Hiatial Hernia w/ GERD
Current Meds: Lialda 1.2gm 2x daily (discontinued for now), duloxetine, rowasa as needed, VSL3 occasionally, One a Day Multi-Vitamin
Did SCD for about 2 years but lost willpower. Want to get back to it at some point.

Fletch10
Regular Member


Date Joined Feb 2017
Total Posts : 221
   Posted 6/13/2018 10:45 PM (GMT -6)   
Thanks to both of you!

Uniform Charlie, I'm in Windham County, but will travel as needed (I've been going to Boston, so anywhere other than the Danbury/NY area is fine).

Uniform Charlie
Veteran Member


Date Joined Jul 2015
Total Posts : 691
   Posted 6/14/2018 4:22 AM (GMT -6)   
Sorry, can't help there. The doctors I know of are in southwestern part of the state. Good luck!
Diagnosed Proctosigmoiditis (UC) February 2015
Hiatial Hernia w/ GERD
Current Meds: Lialda 1.2gm 2x daily (discontinued for now), duloxetine, rowasa as needed, VSL3 occasionally, One a Day Multi-Vitamin
Did SCD for about 2 years but lost willpower. Want to get back to it at some point.

songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3647
   Posted 6/14/2018 7:55 AM (GMT -6)   
There are good docs in New Haven, but that's probably too far for you?

CT Gastro.
Age 62. Diagnosed UP 1983, UC 1986
Step One surgery on 12/28/17.
Surgery: planned. The colon cancer they found: a surprise.
Prior meds: sulfasalizine, Asacol, Delzicol, Lialda,
6 MP, Humira, Metamucil
two hips replaced thanks to pred.
Bentyl as needed as of 8/31/17

Fletch10
Regular Member


Date Joined Feb 2017
Total Posts : 221
   Posted 6/14/2018 9:13 AM (GMT -6)   
Thanks! Since I’ve been going to Boston, the drive to New Haven would be fine smile who do you recommend?
--
F, 40. Diagnosed Feb. 2017 - left-sided UC.
Finally off prednisone as of 5/15! Remicade 5mg/kg every 4 weeks.
Mesalamine intolerant (Rowasa, Colazal)
Remission as of fall 2017; mild flare March 2018
Zoloft; mostly dairy free.

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 5090
   Posted 6/14/2018 10:29 AM (GMT -6)   
I think people are going to Yale for their IBD care. Probably depends on who is in-network for your plan.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
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