Posted 6/13/2018 11:41 PM (GMT -7)
Hello, everyone. Looks like I'm back to this forum with a whole load of questions.
Long story short: I joined this board back in summer of 2016 when I was diagnosed with ulcerative colitis...or wasn't. I had three GI doctors give me three different diagnoses. One guessed "hemmoroids," another said "antibiotic-caused colitis, non c-diff," and the third insisted (to the point of screaming in my face) that it was ulcerative colitis. I finally went to a fourth GI in a different city. By that time, my symptoms of occasional blood in stool and cramps had disappeared entirely, without medication, and the fourth GI told me "You're fine, enjoy life."
Fast forward to January 2018, when I get the worst stomach flu of my life, followed by a round of acute colitis that landed me in the hospital for three days. Even then, the worst symptom was nausea and vomiting--no blood or anything. In March, that's when the blood in the stool started showing up...but even then, very intermittent, about once a week. Nonetheless, my new GI doctor (Number Four in the other city) said to get a colonscopy, which we did today.
Here's the diagnosis: pancolitis with ulcerations. He's putting me on Flagyl and Pentasa--Flagyl for 10 days, Pentasa for the foreseeable future.
Granted, my symptoms are a bit worse than they were in summer 2016--more loose stools, more frequent BMs, more urgency, and now occasional bouts of nausea. But not really diarrhea, and the bleeding is so minor you have to look for it. I get the prescriptions and agree with them, but...why such mild symptoms for pancolitis, which supposedly is severe? Shouldn't my toilet, in the words of my doctor, look like a "murder scene"? Shouldn't I be going 8-10 times a day instead of 3-4?
Moreover, he's also ordered a CT arteriogram of mesenteric vessels (small intestine). Why I have no idea. The doctor was not available to talk to after the colonoscopy today (he was very busy and had four of us today on a colonoscopy conga line), and the nurses were more concerned about freeing up a bed in the recovery room than talking to me. I can understand that procedure if he can't find the bleeding or he's worried about ischemic colitis--though I haven't had those symptoms either, really--but you'd think someone would've taken time to explain.
I know this is bolt out of the blue from someone who hasn't been here in two years, but can anyone give me advice on what's going on? Why I supposedly have a severe condition but mild symptoms? Why I've been prescribed what looks to be a fairly invasive procedure with no explanation other than "be here next Wednesday"?