Has anyone taken pred at night instead of morning?

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Sara14
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Date Joined Mar 2007
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   Posted 7/8/2018 12:57 AM (GMT -6)   
Prednisone is keeping me up until 2 or 3 a.m. I am tired all day and then wide awake at night. I take it first thing in the morning, around 8 a.m. I read online that one doctor suggested his patients take it at night since it takes awhile to kick in. Anyone ever tried that. I just went down to 25 mg two days ago. I was on 50 mg for 7 days, 40 mg for 6 days, 35 and 30 for 5 days each. Doctor said I could taper by 5 mg every 5-7 days. In the past, I always tapered by 10 mg.
34 years old; diagnosed UC March 2007.
Latest scope: 9-29-16: "mild-to-moderate" chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018. 25 mg pred. Trying to re-quit smoking. Maintenance meds: Delzicol, 6, 2xday; Rowasa nightly; Singular & Allegra for allergies; Xanax

suchatravesty
Regular Member


Date Joined Dec 2017
Total Posts : 193
   Posted 7/8/2018 1:05 AM (GMT -6)   
Well, how low does it take for it to kick in for you? At 30-40mg, It kicks in about 2.5 hours later for me -- I start feeling hyper and spazzy. 10-20mg doesn't really impact my energy. I take it around 7am and so by 9:30 I am wide awake, and by 9:30-11pm, I am crashing from being wired all day. With this pattern, I'd be concerned about taking it before bed, but I think it depends on how quick your body metabolizes it.
Left-sided colitis dx on 12/28/17.

Current: Remicade & imuran; Saccharomyces Boulardii 2x/day
Wheat-free as of 1/18.
4.8g Lialda (1 month, caused migraines & stopped working)
Budesonide 9mg (3 weeks, did nothing)
40mg Humira weekly for 8 weeks, developed antibodies

Sara14
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Date Joined Mar 2007
Total Posts : 4395
   Posted 7/8/2018 1:18 AM (GMT -6)   
I guess I can't really tell. All I know is I'm wide awake late into the night. Maybe I will just wait it out. I'll be down to 20 in a couple days. Thanks for the feedback.
34 years old; diagnosed UC March 2007.
Latest scope: 9-29-16: "mild-to-moderate" chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018. 25 mg pred. Trying to re-quit smoking. Maintenance meds: Delzicol, 6, 2xday; Rowasa nightly; Singular & Allegra for allergies; Xanax

iPoop
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Date Joined Aug 2012
Total Posts : 12761
   Posted 7/8/2018 4:40 PM (GMT -6)   
I only experienced insomnia at high dosages of pred. 20mgs+ (can't remember the exact dose it stopped).

I believe steroids work very fast, metabolized and then effective zoom.
Moderator Ulcerative Colitis
John
, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

A completely different kind of party-pooper

Sara14
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Date Joined Mar 2007
Total Posts : 4395
   Posted 7/8/2018 4:43 PM (GMT -6)   
Ok, thank you. That's what I always thought too.
34 years old; diagnosed UC March 2007.
Latest scope: 9-29-16: "mild-to-moderate" chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018. 25 mg pred. Trying to re-quit smoking. Maintenance meds: Delzicol, 6, 2xday; Rowasa nightly; Singular & Allegra for allergies; Xanax

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16431
   Posted 7/8/2018 4:48 PM (GMT -6)   
I always take sleep aids when I am on pred. I take the pred in the AM so hopefully i've wound down by the evening, but no matter how "down" i am, it's not enough to sleep while on high doses of pred. Sleeping pills were the only reason I'd sleep.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

Sara14
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Date Joined Mar 2007
Total Posts : 4395
   Posted 7/8/2018 4:51 PM (GMT -6)   
I take a xanax, but I have been taking one almost every day for the past two years, so Im not sure it really even does much at this point. Only other sleeping aid I ever tried was trazadone and that was not a pleasant experience for me. Will never take that again. I'll just tough it out. Thanks guys.
34 years old; diagnosed UC March 2007.
Latest scope: 9-29-16: "mild-to-moderate" chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018. 25 mg pred. Trying to re-quit smoking. Maintenance meds: Delzicol, 6, 2xday; Rowasa nightly; Singular & Allegra for allergies; Xanax

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16431
   Posted 7/8/2018 4:55 PM (GMT -6)   
They gave me ambien, which was effective, but left me feeling quite groggy in the morning. Still better than not sleeping at all. Xanax seems like it would be helpful too, but if it's not working well for you, you should ask if there's something else, that's mild, that you can take to get some rest.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 902
   Posted 7/8/2018 7:02 PM (GMT -6)   
After being on pred many times over 32 yrs i always tried to remember to take in the morning when i took at night sleeping was an issue

Spring
Regular Member


Date Joined Jan 2017
Total Posts : 375
   Posted 7/8/2018 9:03 PM (GMT -6)   
Cortisol is your bodies wake up hormone, so to speak. It would be worse, not better to take it at night. (Has experience with split dose and resulting insomnia)
36yr old mother of 3 Moderate Pancolitis 1/3/17. Hosp 1 week on Solumedrol, Delzicol. Apriso, pred, then switched to Balsazide 750 mg, and Uceris 9 mg 3 wks. Minor flare in August, flare since Oct 2017.
Acute pancreatitis from mesalamines, allergic to Humira. Started Pred to bridge, still on it. Entyvio started 1/12/18. Flaring worse right now. 15 mgs of Pred.

momto2boys
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Date Joined Jun 2013
Total Posts : 1981
   Posted 7/9/2018 6:01 AM (GMT -6)   
I found taking melatonin helped me get to sleep in pred. Nothing helped me stay asleep for more than 4 hours, though.
43 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 4 Lialda (sfRowasa when needed)- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4395
   Posted 7/9/2018 8:48 AM (GMT -6)   
Thanks everyone.
34 years old; diagnosed UC March 2007.
Latest scope: 9-29-16: "mild-to-moderate" chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018. 25 mg pred. Trying to re-quit smoking. Maintenance meds: Delzicol, 6, 2xday; Rowasa nightly; Singular & Allegra for allergies; Xanax

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4395
   Posted 7/12/2018 7:21 PM (GMT -6)   
I went down to 20 mg 3 days ago and I am starting to sleep better. It is making me break out pretty badly on my shoulders and chest, but I can handle that side effect! Lol.
34 years old; diagnosed UC March 2007.
Latest scope: 9-29-16: "mild-to-moderate" chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018. 25 mg pred. Trying to re-quit smoking. Maintenance meds: Delzicol, 6, 2xday; Rowasa nightly; Singular & Allegra for allergies; Xanax

Jay79
Regular Member


Date Joined Jun 2011
Total Posts : 181
   Posted 7/13/2018 6:18 AM (GMT -6)   
Always took Prednisone first thing in the morning followed by a sleep aid before bed. However the last time I was on Prednisone it made me so tried after taking it first thing in the morning I had to lay down. Took it before bed for the remainder of that prescription.
My Dr. was surprised to hear me say that. Have talked with one other person who experienced fatigue when taking Prednisone.

Good to hear you are tapering down well. Hope the side effects are minimal.
Diagnosed with Pancolitis 05/2009
Lialda 04/09 - 09/11, 07/12 - 03/15
Humira 09/11 - 05/12
VSL#3DS 01/12 - 05/12
6MP 50mg 04/12 - 05/12
Remicade 05/12 - 5mg/kg every 8 weeks
Remicade 08/15 - 10mg/kg every 6 weeks
Multi vitamin, Vitamin C, Vitamin D3 and Calcium supplements
Metamucil

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12761
   Posted 7/13/2018 7:33 AM (GMT -6)   
I got the pred-hormonal-acne (no acne treatment touches it) at lower dosages too, a total bummer, but being able to sleep sure is a big win!
Moderator Ulcerative Colitis
John
, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

With UC, we're much like a footballer on our way to the bathroom: running, jumping over and agilely dodging around obstacles, and knocking out-of-the-way all that are in our path to the end-zone.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4395
   Posted 7/13/2018 9:23 AM (GMT -6)   
Jay -- That's interesting to hear. There were a few times I woke up at 5:30 a.m. (cat wakes me up almost every morning around that time) and decided to take my pred then and go back to bed. I had no problem falling right back asleep and staying asleep for several hours after taking it.

Yeah, the acne started when I was on 30 mg, I think.
34 years old; diagnosed UC March 2007.
Latest scope: 9-29-16: "mild-to-moderate" chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018. 25 mg pred. Trying to re-quit smoking. Maintenance meds: Delzicol, 6, 2xday; Rowasa nightly; Singular & Allegra for allergies; Xanax
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