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Nimpy
New Member


Date Joined Oct 2017
Total Posts : 7
   Posted 7/8/2018 11:07 AM (GMT -6)   
Hi all!
I was wondering if anyone on this forum was/is pregnant with Ulcerative Colitis??
I was diagnosed 2 years ago, was on Prednisone for 6 weeks, and have only been on Mezavant ever since.
I've been more or less under control, I had one mini flare 6 months ago but got it under control by proper diet. I haven't really consistantly been totally clear in the past 2 years, but mostly fine- seeing mucus pretty often, but no pain as long as I'm eating well.

Good news is I am 12 weeks pregnant!! I am having a hard time eating properly as I must be constantly eating or I become super nauseous... I'm afraid of another flare-up god-forbid during pregnancy which could be really dangerous for my little baby...
Has anyone out there had a healthy pregnancy with Colitis? or can anyone give me some tips??
I'm so desperate to get under control!!

Thank you all again for this amazing forum! The support I gain here is unmatched anywhere else! tongue
21 year old
Female
Montreal Quebec
Diagnosed with Ulcerative Colitis 2016
Currently treating with 4800mg Mazavant daily and anti-inflammatory diet
Diagnosed with Hypothyroidism 2012
100mg synthroid daily

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16431
   Posted 7/8/2018 12:53 PM (GMT -6)   
Congratulations. We have had members have healthy babies, and there are definitely posts in the archives here on HW. Some of the people were on heavy duty UC meds, others with fairly mild UC, and not on much so far as medication goes. Thankfully we've seen healthy babies in both cases. Pregnancy can have good or bad effects on UC. Some people do great throughout pregnancy and beyond, others flare up worse, others stay the same. There's really no way to know how you will react. I hope things stay calm for you. Do a search in the search box on the top of the forum.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

quincy
Elite Member


Date Joined May 2003
Total Posts : 30687
   Posted 7/8/2018 1:48 PM (GMT -6)   
Congrats.

Get on rectal meds.....maintenance to start and increase to nightlu if you start flaring (continual constipation, rectal discomfort during bms, excessive mucus poos....etc). I suggest salofalk enemas and not suppositories....the enemas will cover the rectum and sigmoid.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Oxeze/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 50 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!

U.C.Me?
Regular Member


Date Joined Jun 2018
Total Posts : 30
   Posted 7/11/2018 11:58 PM (GMT -6)   
Hi, there;

Congratulations on your pregnancy! What a wonderful thing. I'm hoping and praying it goes really well for you!

I'm really poor at writing short answers to questions, partly because I want my answer to be detailed, and partly because I want it to be clear. Sorry if this is a bit long-winded, and please know that this is something I wish someone had written to me when I was struggling through my pregnancy.

I was pregnant last year with a major, almost 18 month long flare which I wrote about in another post; to sum it up, I nearly died. My G.I. Dr. told me last week I am officially in remission after doing the (dairy-free) Specific Carbohydrate diet for 5 months (which I continue to do). I did it while breastfeeding; baby is super healthy and beautiful - almost 10 months and weighs about 20 lbs.

I have a few ideas for you that I wish I had done during my pregnancy last year. These are suggestions; you will most likely need to experiment to see what works for you:

1. Eliminate chocolate, coffee and sugar from your diet at the very least. Use honey as a sweetener instead.

2. Read the book, "Breaking the Vicious Cycle" by Elaine Gottschall. If you aren't really sick, you probably shouldn't go on the intro diet, which is extremely restrictive and probably not a good idea during pregnancy. If you just follow the principles (good meats, veggies, beans, some fruit, and plenty of fats like coconut oil, homemade yogurt, "legal" cheese and nut butters), you'll probably do just fine. Don't pressure yourself too much; it's more important for you to be healthy and happy and find what works for you. Some people find that some parts of the diet don't sit well with their gut, so you will have a bit of trial and error.

3. Keep a food journal to keep track of things (B.M.s, foods eaten, how you feel, weight, etc.) It can be a challenge to make sure you are eating enough while pregnant; try to make yourself eat even when you aren't hungry (unless it's hurting you, of course). Almond butter on banana is a great, quick snack; yogurt, avocado, banana, almond butter, coconut oil, lime juice, and honey whizzed up in a blender with ice is really yummy and high calorie, too. Watch your weight, especially if you decide to try the SCD.

4. Take a quality prenatal vitamin, good probiotics and digestive enzymes.

5. Drink raspberry leaf tea if you can; there isn't a lot of evidence that I can point you to as far as studies go, but I believe it helped me during my first pregnancy (my labor was 3 and 1/2 hours - total; but I was drinking a quart of tea from fresh leaves a day). No evidence that it shortens labor, but..... This tea is safe for pregnancy, and if you can make it from fresh leaves, all the better.

6. Get lots of rest, and, conversely, enough exercise. A 15-20 minute walk in the evening is plenty.

IF you have to go on prednisone while pregnant, which hopefully you won't have to, I want you to know this: I had to go on it while pregnant in order to save my life and my baby's life. I was afraid to take it because of the potential harmful effects; but if you need to do it, don't hesitate. My baby turned out just fine, and weighed 9lbs, 6oz. at birth (I'm 5' 3"). The benefits often outweigh the risks when considering meds during pregnancy. Don't blame yourself if you get sick and need to do the meds; it's not your fault.

Hopefully this was somewhat helpful; I tried to think of everything I could that might give you some ideas. Stay healthy and strong; you'll be a great mama, I'm sure. : )
First Flare 11/2016, Diagnosed via sigmoidoscopy with severe U.C., colonoscopy diagnosed pancolitis.
Currently: Dairy-free SCD, Probiotics, Digestive Enzymes, Multi-vitamin.
Mom of two

"The real things haven't changed. It is still best to be honest and truthful, to make the most of what we have; to be happy with simple pleasures, and to have courage when things go wrong." ~ Laura Ingalls Wilder

kloz31
Regular Member


Date Joined Jan 2018
Total Posts : 71
   Posted 7/12/2018 1:52 PM (GMT -6)   
Hey I’m fairly inexperienced with regards to UC. But I can tell you I was diagnosed mid pregnancy with my first flare. Not fun.
I used suppositories for the rest of my pregnancy and all was well. She did come early. But so did my first before UC.
Had a natural birth with no complications. And she is now 4 months old and still perfect! I healed really well.
I haven’t suffered any major problems yet either.. (fingers, toes and legs crossed!!) 😁
You should make sure you are under a specialist consultant. Just to monitor you and baby. Even if you are mildly flaring you want to make sure that your body is absorbing as many nutrients as possible. For yourself and baby! You may be offered extra growth scans. That is normal so don’t worry. And it’s actually nice to have a look at baby more often than “regular” folk.

Take a pre natal vitamin throughout the entire time. If you find iron supplements bung you up then find an alternative. Definitely take some kind of vitamin D everyday for the entire time 👍🏻

I can’t think of anything else other than to make sure you rest as much as poss. Because when that babe is here. Life as you know it is gone. And it’s bloody brilliant, but not so restful haha.

Congratulations!! Enjoy it all and try not to overly worry about stuff. It will all be fine I’m sure xx

kloz31
Regular Member


Date Joined Jan 2018
Total Posts : 71
   Posted 7/12/2018 1:55 PM (GMT -6)   
Ps... don’t drink raspberry leaf tea until you are well near the end of your pregnancy. It’s used to help bring on contractions!
Just drink plenty of H20!! ;)

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12761
   Posted 7/12/2018 2:34 PM (GMT -6)   
Congrats. Certainly the uncertainty of having a chronic illness like UC adds another layer to concerns of new mothers. We have a good link in our Resources thread that goes over some of the common questions and concerns that many face (pasted below for convenience sake). Certainly a good read and starting point for further discussion with your obstetrician and/or gasteroenteroligist doctors.

The Second European Evidenced-Based Consensus on Reproduction and Pregnancy in Inflammatory Bowel Disease
ecco-jcc.oxfordjournals.org/content/eccojc/9/2/107.full.pdf

Overall, keeping mom in the best possible health is paramount and produces the best possible outcome for her child. Should you flare during pregnancy or postpartum (as sometimes happens) then you'll have to face decisions on adding new medications and worry about the risks to the child associated with it whether in-utero or nursing. We've had moms post here about delivering happy and healthy babies on all manner of UC treatments, from mesalamines/5ASAs, to immunomodulators (6MP/imuran), to biologics (remicade/humira) without issue. There's always small risk in most things, and important to understand them and decide accordingly with the help of your doctors advice.
Moderator Ulcerative Colitis
John
, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

With UC, we're much like a footballer on our way to the bathroom: running, jumping over and agilely dodging around obstacles, and knocking out-of-the-way all that are in our path to the end-zone.

Nimpy
New Member


Date Joined Oct 2017
Total Posts : 7
   Posted 7/14/2018 1:21 PM (GMT -6)   
Thank you so much all! Your support and good wishes are really supportive to me at this timesmile
U.C. ME? - Especially thanks to you! You really covered most of me concerns.

I have one more question for you guys... Thank g-d I've been under control for awhile with just Mesalamine and good diet. Since I'm expecting, I'm having a lot of cravings and am having a hard time keeping to my diet... I've been having some Mucus and pain during the pregnancy so far but not enough to help me control the cravings!! Anyone have any tips to help with that? Some days are better than others but I'm afraid if I continue this way- I'll really mess myself up...

Thanks again! turn
21 year old
Female
Montreal Quebec
Diagnosed with Ulcerative Colitis 2016
Currently treating with 4800mg Mazavant daily and anti-inflammatory diet
Diagnosed with Hypothyroidism 2012
100mg synthroid daily
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