Had my colonoscopy today and results were surprising

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RubyT
New Member


Date Joined Jun 2018
Total Posts : 10
   Posted 7/10/2018 5:08 PM (GMT -6)   
I've been reading these boards for about a month, thinking I had proctitis or uc. My symptoms are very frequent bowel movements, urgency to go, and ALWAYS bloody. My symptoms honestly started last year, and I put off seeing a doc (I actually would have mentioned it to my doc last year but saw a resident instead and wasn't comfortable enough) until May 15th of this year.

She sent me for a lot of bloodwork, an abdominal and pelvic scan, and stool tests. Inflammation numbers were high, but hemoglobin wasn't too low........... so I saw the surgeon that was doing my scoping last Wednesday and I was scheduled for my test this afternoon.

I'm actually glad I chose the afternoon test vs the early morning, as I only had to take 1 day off work, and I could do the prep in 2 doses vs back to back guzzling of that awful prep stuff. It went down easier when I pinched my nose, and when I gargled with apple cider vinegar.... and the trips to the bathroom? I think I went 5 times last night and 3 times this morning, slept all night and even managed a 1.5 hour nap this morning after I'd taken the potion.

The test itself was easy... I was mildly sedated but saw everything, spoke to the team and I remember everything. I didn't need to sleep it off after, as a lot of people do either, I was very conscious of my surroundings. The doctor found a tumor, which is MORE than likely cancerous, as we are talking radiation, surgery................ So I went from suspecting uc or proctitis and ended up with colorectal cancer.

I'm not here to scare anyone, but if only one person who passes blood reads this and hesitates about getting checked, JUST DO IT. Please. I first saw blood in my stool in November 2016... then it passed and saw more here and there last year and when it got worse in April of this year, every single time I went, that's when I knew something was really serious.

I'm 45. I just hope it hasn't spread elsewhere but we'll see I guess sad

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 5752
   Posted 7/10/2018 5:34 PM (GMT -6)   
My non-UC friend of many years had this happen at 50-ish, glad you caught yours and best wishes on your future prognosis. Friend is doing well 10 years later, no issues that I've heard of, removed a foot of her colon.

UC people are scoped more often than "regular" people so cancer tends to be caught early. It's the non-IBD population who ignore bloody bowels that needs a "heads-up" to get a colonoscopy. It's such a secretive subject, our anus and bowels, families don't talk about it, primary doctors don't ask (mostly) but it's a killer left unattended to.

Your colon cancer appeared early so if you have family I'm sure you've strongly suggested to get a c-scope done. Best wishes going to you.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16431
   Posted 7/10/2018 5:34 PM (GMT -6)   
Wow Ruby, thanks for sharing your story. I had surgery due to UC, so I want to let you know that life after surgery is good, and that you can reach out to me if you have any questions. I am thankful you got checked out, but I wish you had done it sooner.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2128
   Posted 7/10/2018 5:47 PM (GMT -6)   
Oh no, sorry for your result, but yes it is so much better than you found it! My mother's was not discovered until it was too late and there was nothing they could do for her.
Female, 51, Vancouver BC
Pancolitis: Currently in remission

Jan-Mar2009: Asacol HD. Resulted in severe joint pain and no discernible benefit.
May26-Sep4/2016: Mezavant 4800 mg
Sep5/2016 - : Mezavant 2400 mg

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4395
   Posted 7/10/2018 6:45 PM (GMT -6)   
Im so sorry to hear of your news. I'll be thinking of you. Please keep us posted.
34 years old; diagnosed UC March 2007.
Latest scope: 9-29-16: "mild-to-moderate" chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018. 25 mg pred. Trying to re-quit smoking. Maintenance meds: Delzicol, 6, 2xday; Rowasa nightly; Singular & Allegra for allergies; Xanax

RubyT
New Member


Date Joined Jun 2018
Total Posts : 10
   Posted 7/10/2018 7:19 PM (GMT -6)   
Thanks everyone... still somewhat in shock and waiting for more tests and results. I will keep you posted even though this isn't really an uc matter anymore. I did have so many similar symptoms though, weird (like a lot of foods would bother me lots)

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4395
   Posted 7/10/2018 8:14 PM (GMT -6)   
You're welcome to post here anytime.
34 years old; diagnosed UC March 2007.
Latest scope: 9-29-16: "mild-to-moderate" chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018. 25 mg pred. Trying to re-quit smoking. Maintenance meds: Delzicol, 6, 2xday; Rowasa nightly; Singular & Allegra for allergies; Xanax

Oligodar
Regular Member


Date Joined Jul 2017
Total Posts : 44
   Posted 7/11/2018 6:34 AM (GMT -6)   
Hi,

take therapy as soon as possible.
Modern medicine is veeeery powerful.
You have good chance that it will be OK.

Be mentally prepared for: surgery, radiation and chemotherapeutic medicaments.

Good luck!
==========================================================
Ulcerative Colitis for 34 years. 14 years ago sigmoideum adenocarcinoma - surgery successful
==========================================================
Salofalk 500 mg - 6 tablets, Entocort Enema 2mg, Mirtazapine 30 mg, Magnesium
==========================================================

U.C.Me?
Regular Member


Date Joined Jun 2018
Total Posts : 30
   Posted 7/12/2018 12:54 AM (GMT -6)   
You're in my prayers; wish there was something I could do. Please continue to let us know how it's going.
First Flare 11/2016, Diagnosed via sigmoidoscopy with severe U.C., colonoscopy diagnosed pancolitis.
Currently: Dairy-free SCD, Probiotics, Digestive Enzymes, Multi-vitamin;
In remission!

"The real things haven't changed. It is still best to be honest and truthful, to make the most of what we have; to be happy with simple pleasures, and to have courage when things go wrong." ~ Laura Ingalls Wilde

valli1234
Regular Member


Date Joined Aug 2017
Total Posts : 139
   Posted 7/14/2018 7:53 PM (GMT -6)   
Glad they found it early on, wish more people would get the test done right away when symptoms appear. Wishing you health and God bless
47 year old female mother of 4
UC since 1993 remission off and on
The last flare-up was 2008 till 2009 then remission till June 2017
Hospitalized November for 5 weeks removed my colon Dec 12
Anemia 4 blood transfusions in those 5 weeks.
prednisone, asacol, pentasa,encort enemas, steriod enemas, hurmia all failed
Proctitis Jan 2018
March 19 2nd surgery J pouch
Next surgery late July ( take down )

quincy
Elite Member


Date Joined May 2003
Total Posts : 30687
   Posted 7/15/2018 12:08 AM (GMT -6)   
I'm sad to hear of your diagnosis....it's good you chose to see a doctor when you did and will soon be having surgery and treatment asap.

Discuss with your doc about what type of cancer and the best longtime result if your entire colon will be removed instead of a part. Much depends on the kind. As well, do lots of research and get copies of all your results for that research and proactive decision-making.

I agree with the suggestion of imagardener to encourage your blood related family to have a c-scope, considering your diagnosis, for a baseline.

Please let us know results, how yiu are doing and if you're up for it....after surgery and treatment.

Hugs,
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Oxeze/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 50 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!
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