Welcome to the forum but sorry you suffer from bowel issues as we do. Take a big, deep breath. You will be fine, thrive, return to your normal life despite whatever they found!
If you have an infectious-colitis, then they will give you a one-time treatment of antibiotics that will clear it up and you'll be back to your normal within a few weeks and then move on with the rest of your life without worrying about
If you have an Ulcerative Colitis then the goal is to get you into what's known as a remission. During a remission, we are essentially normal, like we were pre-diagnosis. They will give you medications to treat your symptoms and you will heal over a series of weeks and months until you achieve a remission. They often give us temporary steroids, which are rocketship fast in healing us, while our other long-term maintenance medications are given time to work.
The cause of UC is currently unknown, so I would not beat-yourself up on the why's. Most of us were young, healthy, and had no health troubles at all and then *wham* a UC diagnosis seemingly out of nowhere. A lot of us are diagnosed in our 20's or 30's. I was diagnosed at 34 and am 6 years into a UC diagnosis. My life is mostly normal, despite the occasional flareups of my UC (UC goes through periods of remissions and flares). Despite UC we have successful careers, wonderful family lives, and enjoy our hobbies and interests. A UC diagnosis is anything but the end of happiness, but just a bump in the road, a temporary inconvenience that you will get over. I know when we're awaiting a diagnosis we tend to assume the absolute worst-case scenario, human nature and all, but that instinct is often wholly wrong and is just needless anxiety/stress/worry.
"Erosion, edema (reddened tissue), and ulceration" are all consistent with an UC diagnosis. Nothing you said screams infectious causes. Not sure if the doctor saw something else that makes him think it very well could be an infection (thinking, yes he might have or else he would have said UC). Although some doctors are inherently cautious and want to see all of the data points before stating a diagnosis (could be him). As a diagnosis is composed of three tests: a stool test negative for infections (nothing wrong with multiple of those tests), a colonoscopy report, and a biopsy report. I guess the doctor said nothing about
chronic architectural changes, and that IS needed for an IBD/UC diagnosis.
Moderator Ulcerative Colitis
John, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasaWith UC, we're much like a footballer on our way to the bathroom: running, jumping over and agilely dodging around obstacles, and knocking out-of-the-way all that are in our path to the end-zone.
Post Edited (iPoop) : 7/11/2018 7:34:02 AM (GMT-6)