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songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3694
   Posted 7/11/2018 9:37 AM (GMT -6)   
Hi Friends -
A quick update:
So, background: UC for 35 years, minimal systems for the last decade. Odd cells started cropping up which led to every-6-month colonoscopies and some hormone tests to rule out certain cancers. All fine. In October my scoping showed an extreme stricture. Saw the surgeon for Step One of 2.
He removed the colon, etc and found cancer, which was found just under the surface of the colon and in 6 of 44 lymph nodes: Stage 3. Wow, am I glad I moved quickly on the "elective" surgery!

Anyway, so far CT scans have showed me clear, and I FINISHED turn turn chemo as of this morning! I see the surgeon in 2 weeks to examine the J pouch and set a date for take-down! I'll also have an "end of chemo" scan in about 3 weeks.

My general take is that the surgery has made life better, in terms of bathroom visits, but the chemo does wear on one. You all have been a wonderful support for years! Thanks. I hope you're well! Q, nssg, OH, iPoop Champ, and - brain fuzz kicks in and I know I need to shout out a to number more people, I appreciate you all!
Age 62. Diagnosed UP 1983, UC 1986
Step One surgery on 12/28/17.
Surgery: planned. The colon cancer they found: a surprise.
Prior meds: sulfasalizine, Asacol, Delzicol, Lialda,
6 MP, Humira, Metamucil
two hips replaced thanks to pred.
Bentyl as needed as of 8/31/17

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 13214
   Posted 7/11/2018 10:03 AM (GMT -6)   
Great news, glad you're done with the chemo and clear of the dreaded C.
Moderator Ulcerative Colitis
John
, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

With UC, we're much like a footballer on our way to the bathroom: running, jumping over and agilely dodging around obstacles, and knocking out-of-the-way all that are in our path to the end-zone.

Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2153
   Posted 7/11/2018 10:21 AM (GMT -6)   
Oh that is great! Thanks so much for the update! Glad you are doing so well.
Female, 51, Vancouver BC
Pancolitis: Currently in remission

Jan-Mar2009: Asacol HD. Resulted in severe joint pain and no discernible benefit.
May26-Sep4/2016: Mezavant 4800 mg
Sep5/2016 - : Mezavant 2400 mg

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16724
   Posted 7/11/2018 10:40 AM (GMT -6)   
That's exciting. I am so happy you're done with the chemo. Now it's time to get your life back!! You have always been such a great support to everyone here too. smile
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

quincy
Elite Member


Date Joined May 2003
Total Posts : 30992
   Posted 7/11/2018 12:26 PM (GMT -6)   
I'm soooooooo relieved at the results of your last CT and that chemo is done. Hope the take-down goes smoothly...

Hugs,
q 😚
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Oxeze/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 50 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!

IntestinalWasps
Regular Member


Date Joined Mar 2018
Total Posts : 211
   Posted 7/11/2018 12:36 PM (GMT -6)   
So glad to hear! You're an amazing trooper.
27 years old/Female - Diagnosed December 2017
Ulcerative Pancolitis/CMV/Anemia/Liver damage
Remicade - FAILED
Prednisone - FAILED RESPONSE
Valcyte
Tacrolimus (bridging biologic)
Entyvio (currently on dose #5)
Uceris (secondary bridging biologic due to symptom return)
x2 Iron Infusions
Blood Transfusion
Current Case Study Member/Patient @ UT Southwest in Dallas, TX

Spring
Regular Member


Date Joined Jan 2017
Total Posts : 393
   Posted 7/11/2018 7:34 PM (GMT -6)   
Great news! I hope getting chemo behind you will leave you feeling much better.
36yr old mother of 3 Moderate Pancolitis 1/3/17. Hosp 1 week on Solumedrol, Delzicol. Apriso, pred, then switched to Balsazide 750 mg, and Uceris 9 mg 3 wks. Minor flare in August, flare since Oct 2017.
Acute pancreatitis from mesalamines, allergic to Humira. Started Pred to bridge, still on it. Entyvio started 1/12/18. Flaring worse right now. 15 mgs of Pred.

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 7/11/2018 8:14 PM (GMT -6)   
Thanks mucho for updating us and congratulations on finishing chemo!!!!!!!!!!!!! You surely are due for a break from treatment regimens; I hope your surgeon presents a reasonable schedule for the pouch follow-ups so that you get quality rest in between procedures. And I agree with NSSG's comment that you've been a terrific help (+ an inspiration) to us on the forum, too. *** Since you asked: thankfully King Colon responds to its Rx med & gyn-onc follow-ups have gone well thus far (had my 2 1/2 yr post-surgery office visit in May) ; still need competent periodontal long-term care. At the end of this month the oral surgeon will assess my April bone-regraft at troublesome premolar site where implant had to be removed. Having done some recent I'net research on periodontitis, it seems to me that I ALREADY HAD IT in 2011, at the time of my 1st oral surgery/bone graft on that premolar where a cyst had developed above the root. But neither that oral surgeon nor my general dentist who referred me back then EVER told me that I have periodontitis!!!!! They may have underestimated my problem because I've done enough hygiene to avoid bleeding gums & pus pockets-- so receding gums are my only observable symptom, which is also a characteristic of aging. Of course I need to treat this cautiously due to the Rx antibiotics issue & may no longer tolerate implant placement. That latter point might be what the 2nd consulting periodontist was screaming about in March, but he did not say periodontitis, either! (Apology for long explanation!) *** Continuing best wishes & please keep us posted on your progress. / Old Hat (37 yrs with left-sided UC; presently in remission taking brandname Colazal)

3timechamp
Veteran Member


Date Joined Oct 2009
Total Posts : 1025
   Posted 7/11/2018 8:21 PM (GMT -6)   
Great job. Very happy for you. God bless and be well

momto2boys
Veteran Member


Date Joined Jun 2013
Total Posts : 2025
   Posted 7/11/2018 9:05 PM (GMT -6)   
Great news!
43 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 4 Lialda (sfRowasa when needed)- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

Kulinarykidz
Regular Member


Date Joined Aug 2015
Total Posts : 468
   Posted 7/14/2018 9:06 AM (GMT -6)   
So glad to hear from you! Wishing you continued healing!
Female 45 years old- uc diagnosed 7/13
Remicade every 6 weeks since 8/15
Imuran 150 mg, viramin d, probiotic, estrogen, pepcid ac
*hysterectomy, endometriosis and ovarian cysts removed---made a world of difference with uc symptoms!!
**IN REMISSION FINALLY!!!

ewafromwarsaw
Veteran Member


Date Joined Jun 2013
Total Posts : 1234
   Posted 7/14/2018 4:45 PM (GMT -6)   
Great news !!! wishing you quick and complete healing <3
Ewa, 24 yrs old from Warsaw
Left-sided colitis, diagnosed in September 2012
Current meds: 2x2 Asamax (500 mg) and Salofalk enemas (twice a week)
Mutaflor or VSL#3

fawad malik
New Member


Date Joined Jun 2018
Total Posts : 16
   Posted 7/14/2018 6:14 PM (GMT -6)   
Glad you caught it .

valli1234
Regular Member


Date Joined Aug 2017
Total Posts : 192
   Posted 7/14/2018 7:45 PM (GMT -6)   
Good news about the end of chemo. Wishing you well with the take down.
47 year old female mother of 4
UC since 1993 remission off and on
The last flare-up was 2008 till 2009 then remission till June 2017
Hospitalized November for 5 weeks removed my colon Dec 12
Anemia 4 blood transfusions in those 5 weeks.
prednisone, asacol, pentasa,encort enemas, steriod enemas, hurmia all failed
Proctitis Jan 2018
March 19 2nd surgery J pouch
Next surgery late July ( take down )
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