ulcerative proctitis newly diagnosed

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nafarrate88
New Member


Date Joined Jul 2018
Total Posts : 3
   Posted 7/11/2018 10:51 AM (GMT -6)   
hi everybody!
1.5 months ago i saw mucus contained in blood when i went to the bathroom, it was just one time the blood was bright red but i let it go, one month later I saw it again, it was again contained in transparent mucus, so I freaked out, of course the C Word came to my mind, i went to the GI he performed a colonoscopy and.... yep ulceritive colitis, just in the rectum and just a really small área affected in the sigmicolon, he said that according to the biopsy it "behaves mild" im not sure how he knows that, anyways he put me on mesalizine enemas for one month and oral (3g) pills, i was and i still am shocked (it was one week ago) i didnt feel bad at all, I was completly fine, just a Little delicated stomach, but nothing serious, anyways, i feel really down, i was fine 2 weeks ago and now im taking 6 pills a day that probabbly im gonna need em for the rest of my life... its been a week since medication and my stool is normal, well, the enemas have made em not that "form" and im going 3 times a day (before all this thing just 2 times a day) anyways today i went to restroom and i saw mucus with dark brownish red color inside, so weird...
well anyways first question, the dark bownish red mucus was blood? why it wasnt red? it supposed that im just affected in the rectum so why darker? the meds are not working?
and second question, since i started with really mild "flare" i guess and just in the rectum, how is it gonna be from now? I know I know nobody can predict this dieses but my prognosis in your expirience is good or not? dont know.... just tell me ill be fine

sorry my english is not my first language :P

Post Edited (nafarrate88) : 7/11/2018 12:36:37 PM (GMT-6)


notsosicklygirl
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Date Joined Dec 2008
Total Posts : 16431
   Posted 7/11/2018 11:22 AM (GMT -6)   
Hello & welcome. Sorry you've been diagnosed with proctitis. It all sounds fairly typical for UP. It's possible the brownish residue is from healing, or from the enemas themselves. The enemas tend to come out purplish and they can stain the toilet bowl, so when you see that, don't freak. smile

Mild is the best you can have - besides not having it at all. 6 pills, while it is shocking to go from nothing to 6, it's a mild medication and it comes in a variety of forms. You may be able to get higher dose pills and take only 2 or 3 pills a day, which seems like a lot less than 6 pills a day - but it could be the same dose. I guess at this point, you need to give yourself some time, and see how you do with the treatment plan. Healing is a process and it takes time.

Have you had stool tests?
There are people who have intolerance to mesalamine, so keep an eye out, if symptoms actually get worse, like from 2 a day to 3, to 4, to 5, or you experience headaches, nausea... you would need to look for other options. It's quite rare though, so I wouldn't jump to any conclusions.
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Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

nafarrate88
New Member


Date Joined Jul 2018
Total Posts : 3
   Posted 7/11/2018 11:28 AM (GMT -6)   
yes I had a stool test before the colonoscopy, no blood, no mucus, no nothing... so WTH? haha anyways like in your expierence, and according the symtoms and the location... my prognosis is...? i know it can vary but in general...

quincy
Elite Member


Date Joined May 2003
Total Posts : 30687
   Posted 7/11/2018 12:30 PM (GMT -6)   
You've been on the enemas a week?
Yes...normal for blood and mucus and enema mix to be dark.

Won't go into huge explanation.....your meds are working from the sounds of it.

Give it a month nightly.....and try not to over analyse. You will gain experince, and it is what it is.

Welcome to the forum,
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Oxeze/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 50 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!

Post Edited (quincy) : 7/11/2018 11:33:14 AM (GMT-6)


iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12761
   Posted 7/11/2018 12:44 PM (GMT -6)   
Give the enemas more time, at least 3 weeks before drawing-conclusions. It's too early to tell.

You seem anxious. There are no easy answers with an UC. No way of knowing if your prognosis is good or bad. Time will answer it for you.
Moderator Ulcerative Colitis
John
, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

With UC, we're much like a footballer on our way to the bathroom: running, jumping over and agilely dodging around obstacles, and knocking out-of-the-way all that are in our path to the end-zone.

nafarrate88
New Member


Date Joined Jul 2018
Total Posts : 3
   Posted 7/11/2018 1:33 PM (GMT -6)   
I AM anxious, haha but starting to accept it, is just that ive never Heard of UC and its like shocking i have it, specially since ive been Reading and some stories are scary but they dont sound anything like me... right now sad ... anyway, hope everything turns good... thank you all smile

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12761
   Posted 7/11/2018 2:04 PM (GMT -6)   
I hear you, a new UC diagnosis is one major head-trip. We all go through different stages from denial, to anger, and finally to acceptance. We are all scared that the absolute worst-case scenario we read about will be what we, ourselves are about to experience (and there are outlier nightmare stories to feed those fears online). For the majority of us all of those fears are 100% unfounded and just pointless worrying/anxiety all for nothing/naught. I know as I was there thinking the sky was falling and was doomed from that point forward (a common misconception for the newly diagnosed). You will be fine, survive and thrive despite your UC.

I wish I could tell you that UC was all sunshine, wagging puppy-dog-tails, and smiles. However, there's no sugar-coating all of this UC crap.

UC prognosis is wildly different person-to-person (especially in the first 5-years after diagnosis which is when it will spread in extent or severity if it is going to), some of us have an easy go of UC, others have a moderately difficult time, and for about 20-25% of us surgery quickly finds us.

Generally speaking, proctitis patients have an easier time of it (there's always outliers though). If ulcerative colitis is initially limited to the rectum (a proctitis) at the time of diagnosis, fewer than 30% of individuals will go on to develop more extensive disease (Rowe). Approximately 10% of patients presenting with proctitis will develop a pancolitis (Rowe). The disease remains confined to the rectum in approximately 25% of cases (Rowe).

Post Edited (iPoop) : 7/11/2018 1:08:49 PM (GMT-6)


fighter87
New Member


Date Joined Sep 2017
Total Posts : 11
   Posted 7/11/2018 6:00 PM (GMT -6)   
iPoop said...
If ulcerative colitis is initially limited to the rectum (a proctitis) at the time of diagnosis, fewer than 30% of individuals will go on to develop more extensive disease (Rowe). Approximately 10% of patients presenting with proctitis will develop a pancolitis (Rowe). The disease remains confined to the rectum in approximately 25% of cases (Rowe).

30% develop more extensive disease, including the 10% pancolitis. 25% stay the same. So what happens to the remaining 45%? smile
Male, 10cm Ulcerative Proctitis. Currently in remission?

Salofalk Supp 1x1gr

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12761
   Posted 7/12/2018 8:19 AM (GMT -6)   
fighter87 said...
30% develop more extensive disease, including the 10% pancolitis. 25% stay the same. So what happens to the remaining 45%? smile
Oops looks like I had two entirely different sets of data in close proximity within one paragraph, should have been separated. Sorry for the confusion. Let's take a better look at the points I was trying to get at:

Let's look at 100% of UC cases and explore what percentage of patients have each of 3 possible extents: a proctitis, a proctosigmoiditis, and a pancolitis. UC remains confined to the rectum (a proctitis) in approximately 25% of all cases. Pancolitis occurs in 10% of all cases. The remaining 65% of cases are all a proctosigmoiditis. 25+10+65=100%

Let's look at just that subset of those who have an initial diagnosis of proctitis and see how they they fare and progress over many years (the long term). If ulcerative colitis is initially limited to the rectum at the time of diagnosis, fewer than 30% of those individuals will go on to develop a more extensive disease extent (that is a pancolitis or a proctosigmoiditis). If ulcerative colitis is initially limited to the rectum at the time of diagnosis, approximately 10% of those patients will ultimately develop a pancolitis. If proctitis spreads, it is far more likely it will become a proctosigmoiditis than a pancolitis.

Hoping that's more clear! Unfortunately my attempt at brevity added to a bit of muddling of points. Doh :-p

For the curious among us, there's lots of stats and odds of various things in this long article (my source). Cheers!
/emedicine.medscape.com/article/179037-overview#showall
Moderator Ulcerative Colitis
John
, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

With UC, we're much like a footballer on our way to the bathroom: running, jumping over and agilely dodging around obstacles, and knocking out-of-the-way all that are in our path to the end-zone.

Post Edited (iPoop) : 7/12/2018 7:24:29 AM (GMT-6)

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