Apologies for not getting back sooner. My Internet connection was acting like my colon the past few days. Firstly thank you all for your responses. Really great to read through them all, with all perspectives. I have a meeting with my consultant this week. My first request is going to be a colonoscopy to establish what exactly is going on in there. I'm in the UK and it seems to be a bit of a struggle to get them to give me a check. My last one was 3 years ago, so they are just of the opinion, you have uc, so here's the treatments you can have. In all honesty in the past few weeks, my mind has started to play tricks, and it's the what if questions are always there. What if there are polyps, what if there is cancer, blah blah blah. I'm going to be brutally honest and tell this to the consultant. A colonoscopy would really help me get back on track from a mental perspective and help me focus on what the next step is. If I see I'm in not awful shape internally, I'd be happy to give the entyvio a good go. If it's a mess, then let's see what's suggested. I've really come to despise my ass, so the thought of having nothing ever appear out of it again is totally appealing. If it goes that way I would definitely be going for a permanent bag. If im going to the bother, I want that bad boy closed up and left redundant, It's had its hay day, had so much potential but been an absolute disaster! It's the not knowing is starting to grate on me. I agree with comments about
a colon in remission is better than no colon. And i agree if possible this is the avenue I need to go down. Thanks again for the responses. You have really no idea how much they are appreciated. Uc can be a lonely place. Not so lonely when people take time to respond and advise.
Post Edited (Steph6n) : 7/29/2018 4:04:51 PM (GMT-6)