You should try enemas instead of canasa. Canasa only treats a small area. The enemas can treat into the left side. I had my proctitis in remission a few times, and I ended up with it progressing regardless. I am not sure where they come up with these facts, like, if it's in remission, it will not travel... That would be nice I guess, if you stay in remission forever - but this is chronic, who stays in remission forever? when you flare, who's to say what will happen? I had proctitis, then I was in remission for quite some time, then the next flare up was much more severe regardless of treatment. Luckily, asacol alone got that flare up under control even though it was quite severe.
What drugs have you failed? It sounds like you've tried almost nothing. There are uceris oral, uceris enemas, steroid enemas, rowasa, canasa 2x daily, steroid suppositories, other 5ASAs, different doses of 5ASAs, immunomodulators.... I feel like you're being a little rushed. Though I will say, we've had a lot of members have great luckw tih both entyvio and humira. Of course, entyvio is slightly more enticing since it's gut specific. Humira is a TNF blocker and it reduces overall immunity.
How many times are you going?
Have you had a recent scope?
When was the last scope and what were the results? For me, when I had proctitis, my symptoms were bothersome, but more limited compared to a full-blown UC flare up. Frequency wasn't my issue with straight proctitis, it was more blood and some tenesmus.
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Post Edited (notsosicklygirl) : 7/29/2018 6:42:17 PM (GMT-6)