We're no experts here, you'll not find any doctors or anything. We're all just UC patients like you, some have had this illness for decades and might've picked up a few things over the years ;-)
I know you are fairly new at this whole UC thing. We've all been there and can relate to the uncertainty, worry, and realize it's only human nature to assume we'll be the very worst-case scenario, ourselves. When I was newly diagnosed, I worried each and every new thing meant the sky was falling. Let me assure you that you will be fine, that you're worrying over nothing. You will survive and thrive despite your UC diagnosis. We're mostly normal with the occasional inconvenience of a flare. We have successful careers, families of our own, pursue our hopes, dreams, enjoy our hobbies, and travel.
Having UC is like growing up with an annoying sibling. He/she throws fits from time to time, we know what upsets them and try to avoid or at least mitigate those situations. The same goes with UC, certain things like spicy, hot chili upset my UC and avoid it. You get to know your UC over time, realize it has random fits and random bad days, but as long as the long-term trend is good then it's nothing to worry about
I happen to like odds and can give you some.
Only 30% of those in remission in a given year will have active disease in the following year. The longer a person with ulcerative colitis remains in remission, the less likely he or she is to experience a flare-up of the disease in the following year."
If ulcerative colitis is initially limited to the rectum (an Ulcerative Proctitis) at the time of diagnosis, fewer than 30% of individuals will go on to develop more extensive disease (Rowe). Approximately 10% of patients initially presenting with proctitis will develop a pancolitis (Rowe).
So to answer your question, there's 90% odds you will NOT develop a pancolitis over your lifetime.
Moderator Ulcerative Colitis
John, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasaA screenwriter with Crohn's disease came up with that iconic scene in the movie Aliens (1986) where an alien bursts out of a guy's abdomen. I've musingly wondered whether my UC pains meant that ...
Post Edited (iPoop) : 8/2/2018 11:57:27 AM (GMT-6)