Since I posted here. Truthfully, I abruptly stopped posting here because I couldn't log in, said my password was incorrect and when I sent for a new one/retrieval, said it emailed me one but I got nothing, then I thought I could start a new account with my gmail, but it said I had one for that account. I guess I may have had one from way back when, looking for stuff about
Graves. And then real life blew up and I had big things to worry about
. On a lark, sent for a password retrieval and actually got one. I'm keen to inquire in RA forum about
methotrexate, don't imagine too many folk in here are on it but decided to drop in and give an update, for those who remember me.
Currently, on Entyvio because predictably, the Humira crapped out ( ha ha, no pun intended) after being on it for a year and a half, weekly injections. I was sad to leave Humira, my amabassador was so nice, I had to give her the " it's not you, it's me, my doctor says I can't see you anymore." speech.
I've been on. Entyvio almost a year, going off Humira was rough on all my other stuff, psoriatic arthritis, psoriasis and active thyroid eye disease and uvitus came back with a vengeance , so I'm also on Methotrexate. And of course, I'm on ye olde Rowasa enema, though mine is generic. I'm back on Kaiser insurance, so before rowasa, GI at Oregon Health Sciences had me try Tacrolimus supps. They didn't do a whole lot except cost me money to a compounding pharmacy because my insurance wouldn't cover it. I did those for 3 months. After those and weekly Humira, that doc wasn't happy with my level of inflammation in rectum, so Humira got kicked to the curb and Entyvio plus Rowasa it was. It's been Ok, not thrilled with the enemas but I'm used to them and I hate methotrexate but it's all keeping everything stable.
I hung up my career in semiconductors and went through an expediated, very express teaching program specifically designed for people from tech industry wanting to teach STEM. I now teach middle school math. What a crazy year but with a teaching job, came way better insurance. I'm back with same GI I had before, which is fine, he's Ok. Ultimately, I would like to be on Xeljanz, as my OHSU docs said it would be an ideal biologic for me but insurance said no but yes to Entyvio, go figure. I get back to kaiser, where doctor is gatekeeper, no insurance approval and express my interest in trying Xeljanz and he tells me kaiser doesn't have Xeljanz. WTH????How can a huge health care system like Kaiser not have Xeljanz?
So no, not off living an IBD free life. Lol, do any of us ever? Hope everyone is good, enjoying summer.