Posted 9/14/2018 1:20 PM (GMT -6)
Just wanted to give an update since I've really been MIA. Sorry it's been so long, it's just been nice not being trapped in the house for fear of not finding a bathroom. I've been able to go out and enjoy the summer!!!
Anyway, I had my 2nd surgery to create the j-pouch and give me a loop ileostomy on Monday, August 6th. I was original only going to be in the hospital until Thursday but the output was way to high for them to release me. So they put me on lomotil, Imodium and Metamucil all at once, 3x's a day. Well that was too much and I was barely having any output. So they kept me until Sunday to make sure they got things right before I could leave. It was very frustrating.
Once I got home I had a lot of issues with leaking under the wafer causing raw skin. And I was very sore after this surgery compared to the 1st one. But I seemed to heal quicker this round, probably because I was off prednisone!! I finally found that I need a convex wafer with a barrier ring but I still need to change this every other day or it leaks. I also take 1 lomotil with lunch and 1 Imodium at bedtime and that seems to keep the output a little thicker.
I'm back to working from home. I will be able to return to the office on Monday, Sept 24th. So that will be nice. It will feel back to normal.
Oh and one nice thing from this surgery, I lost some of the weight I gained with all the prednisone I was on. That was a bonus. LOL
I will try to get online more and post when I can. This forum has been very helpful in this journey of UC and now surgeries. Good luck everyone!