I'm so jaded about
these new medicines. I tried every one and all they did was buy me some time before the inevitable hell flares started up again. It has only been through extensive research and self-experiment that I've found things to downgrade my UC to near remission.
The way I look at medicines now... they are meant to buy you time until you find a real solution, and the solutions are out there. I just can't trust modern medicine anymore. Their "solutions" all just make you worse, even surgery.
I might lose my bowel one day anyway but I feel that there's a real answer for everyone. I'm one of that 10% of UC cases that is so severe they tell you to get surgery or prepare to die, yet I am still here. It was really, really hard to get to where I am and I know that not everyone has that in them. A lot of people tap out and just get surgery. I'm just not one of those people. Every time they release a drug and get people's hopes up, I get angry. They are not selling real hope. They're just trying to make profit off people's suffering and it really hurts to see it.
I wish we had a pharmaceutical industry had a different fiduciary responsibility... to really cure people, which they CAN do, if their priorities were different!
Post Edited (MarkWithIBD) : 10/23/2018 9:37:52 PM (GMT-6)