The positive sides of colitis

Nothing positive.....but it seems people have to balance and glorify it....a behaviour that is interesting. It is what it is. People make choices based in their hardwiring....not a disease.

Not all learn.....but it's helpful to do so for enquiring minds.

I haven't changed my diet.....and my meds cost a hell of a lot of money for all the other crap I deal with.

The last one gave me a chuckle...
My 2cents.

q

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*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Oxeze/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 50 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
"TREAT (FROM)BOTH ENDS" worth it !!

Post Edited (quincy) : 10/7/2018 10:43:11 AM (GMT-6)

Sometimes I think some positives came out of it. I am more compassionate, but i feel like I could have gotten that from elsewhere, like having a child, or being raised by decent human beings.

I guess overall, nope, it's a curse. No sickness is beneficial, and if i could, I would definitely pass on ever having another diagnosis.

I always ate relatively healthy, even before UC.

I also think, perhaps we believe we understand our bodies, brains, and chemistry better than the general public, but we don't. We are just facing a crap situation and trying to make it into a superpower to make ourselves feel better about how crappy it is.

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Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

Since I have no choice but to deal with it, I can find positives. I would trade all of those positives today if it meant never having developed the disease.

The positives:
- major advancement of my understanding of human health and my body
- more awareness of food
- respect for my healthy boundaries and limits
- a lot of networking with people I never would've met
- an ability to help others that even a lot of doctors don't have
- a change in my lifestyle that has giving me a unique perspective

I'd try and stay positive if you can, and maybe running through the pluses of UC help toward that end. However, UC is, in my mind, a lot of crap (physical, emotional collateral to depression/anxiety etc.), and I cannot really put a shine on that turd even with a good wax.

Has UC made me a better person?, lol probably not. I was a pretty good person before UC who ate healthy, exercised a lot, etc. I am a stubborn Taurus the bull, ornery and stubborn to a fault, so not much changes me

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Moderator Ulcerative Colitis
John, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa
You never really appreciate what you've got until it's gone. Toilet paper is a good example.

I'm with wendi...

-I am helping lower the unemployment rate by keeping at least one vampire (phlebotomist) employed.
-I have perfected my toilet cleaning skills.
-I have the coolest collection this side of the country (of unused drugs, that is).
-I am more in tune with my bathroom habits than I have ever been before.
-Bodily functions are no longer TMI, and it is fun to squick my mom out.
-I have an excuse to work from home on those days I am too lazy to get out of bed and go to the office.

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Left-sided colitis dx on 12/28/17.

Current: Inflectra & Imuran 50 mg. (7/18); Saccharomyces Boulardii 2x/day
Wheat-free as of 1/18.
4.8g Lialda (1 month, caused migraines & stopped working)
Budesonide 9mg (3 weeks, did nothing)
40mg Humira weekly for 8 weeks, developed antibodies

Learned to be skeptical about the healing wisdom from the medical establishment and that Big Pharma can be motivated by greed. Learned to more than ever question authority.

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Male, born 1951, DX IBD Feb08. No meds, allergic to Mesalamine. Food diary instead of SCD or Paleo.
When needed VSL#3DS sprinkled over powdered psyllium seed is very helpful.

Lactobacillus Reuteri (NCIMB 30242), Culturelle, Saccharomyces boulardii.
Fish oil, curcumin, extra D3, magnesium, multivitamin, glutamine when gut repair needed.

Resistant Starch and lots of fruit & vegetables (but no cruciferous), No Gluten, no soda, no HFCS, no shellfish. No processed foods with maltodextrin, sorbitol, polysorbate80 or carrageenan. No GMO foods saturated with Roundup.
Nature created all of the locks, therefore Nature has all of the keys

I can see only one incredibly positive impact which it has Not on you, but on your adversaries. When they learn about your misfortune, they will start flourishing and have all possible successes in life. And believe me, I know something about it

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Ewa, 24 yrs old from Warsaw
Left-sided colitis, diagnosed in September 2012
Current meds: 2x2 Asamax (500 mg) and Salofalk enemas (twice a week)
Mutaflor or VSL#3

Positive

Pride in managing the illness well.

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Remission. Diag. Mild to mod pancolitis 9/09. Hospitalized twice. Took pred for 10 months 4/10 flare. Flared 2914 for 2 weeks. Lialda 2.4 gm, Rowasa 5 weekly. 1/2 cap Miralax daily for constipation. Calcium/mag /vitamin D, multi-vitamin, folic acid. No gluten or alcohol. depression, anxiety, insomnia, ADHD: lamictal 100 mg, Zyprexa, 10 mg, Ambien 5 mg, Lexapro 20 mg., Strattera 100mg,

Lots of negativity in this thread.

UC has definitely given me perspective. It's helped to show me what is really, truly important in life and that nothing really matters if we don't have our health. Of course, I don't always apply this to my life, because I still get upset over things that don't really matter in the long-run, but I like to think I have a greater appreciation for my health and don't take the good days for granted quite as much anymore.

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34 years old; diagnosed UC March 2007.
9-29-16: "mild-to-moderate" chronic and active proctosigmoiditis (infectious cause). Battled reoccuring campylobacter & c diff. Oct-Dec 2016. Healthy since Dec. 25, 2016 until I started smoking May 2018. Re-quit smoking 8/30/18 & stayed in remission. Maintenance meds: Delzicol, 6, 2xday; Rowasa nightly. Singular & Allegra; Xanax.

Sara....what negativity?



"I'm more a realist and pragmatist about it all now. "

👍

q

---

*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Oxeze/Airomir (asthma); Effexor XR 75mg (depression); Rosuvastatin 10mg (cholesterol); Telemesartin 80mg (BP)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 50 billion @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
~Sjogren's (secondary)...symtomatic treatment
"TREAT (FROM)BOTH ENDS" worth it !!

The problem is, that if you are newly diagnosed with a mild case seeking information then people here rightly/wrongly come across very negative.

When in truth it is a minority who struggle with the illness, the rest live full, rewarding life's, all be it with more doctor visits.

It has been positive for my son in a sense that it has improved his diet, maturity and awareness of hospitals and illness.

He has never missed school, or suffered any pain, touch wood however, reading on here would sometimes, again rightly or wrongly give the impression that he is headed towards a life of misery and pain.

Most chronic illness manifest different in types and severity whether it be Asthma or UC or anything else. Everyone's journey is different and I think perhaps as a struggling newby, that isn't necessarily portrayed on here. Still a great place for advice and information however, I wouldn't read to much into the negativity.

I feel lucky as well my son is the same. I learned knowledge is power, and that can be in the form of experience or indeed medical knowledge from doctors.
Your symptoms londonred look like my sons, all he ever has is small blood but it can be a pain to get totally stopped. Now suspecting piles, how long can hemoroids (piles) last? Have you ever required steroids?